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TMJ Treatments

Berkeley Parents Network > Reviews > Health & Medical > TMJ Treatments


July 2002

I am looking for an orthodontist who has experience with jaw problems and jaw surgery. I live in Hercules, so someone north of Berkely is preferred, but I am willing to drive as far as Oakland, San Francisco, or Walnut Creek. I have read the previous recommendations, but these are not specific to jaw problems. Here's the background: As a young child I suffered an injury to my right jaw joint. The injury didn't cause any problems until much later. I went through 4 years of braces, headgear, retainer, etc without regard to any jaw problems. Towards the last year of my orthodonia treatment, I began having pain in my left jaw joint. My orthodontist dismissed the pain. The pain continued to get worse, and I continued to ask my orthodontist about it. It wasnt' until my jaw started locking four years later that my orthodontist took my pain seriously (I was young, so I didn't realize that I should get a second opinion). He then sent me to a specialist. It turned out that due to my earlier injury the bone on the right side of my jaw had stunted growth where my left side grew normally. My orthodonia work was forcing my bite to stay centered, putting extreme pressure on the left jaw joint. I was promptly given a mouth piece that allowed my jaw to move freely to where it needed to be to and at the same time, I lost my bite entirely (my top teeth and bottom teeth do not connect, so I cannot eat without my mouth peice). The specialist indicated that I would need to have jaw surgery to cut out part of the left jaw bone, and go through several years of braces, etc. again. He warned that it is extrememly important that I get someone who knows what they are doing and is familiar with jaw problems, jaw trauma, and jaw surgery, since my jaw has been through serious stress. At the time, he said that there was no hurry to move forward, so I put this off - - being pain free has been my main concern. Now, 15 years later, I know that I need to deal with this. All of my treatment took place in Colorado, and both my orthodontist and my specialist are now retired anyway. If my mouth piece breaks, I will be in serious trouble, so I need to take action. I am terrified of starting orthodontia again with someone who is not an expert with this type of problem, and potentially ending up with the pain that I previously was experiencing. So, any recommendations for orthodontits that specialize in jaw problems, and that are extremely thorough in their work, and LISTEN to their patients would be greatly appreciated. Thanks! Marie


I don't know an orthodontist but know of an excellent dentist -- Dr. Charles Mohn -- in San Francisco who specializes in jaw problems. He was recommended to my husband by the myofacial pain clinic at UCSF after he had gotten an infection in his jaw. He is absolutely incredible and very intelligent. His number is 415-781-2269 Ramsey
To the person seeking advise regarding Orthodontist -Jaw Problem Experience - Dr. Dwight Jennings at Northern Califiornia Cranio- Facial Diagnostic Center is amazing! I have somewhat of the same problem and have been under his care for nearly 1 1/2 years. He is located in Alameda (Oakland border), but would be well worth the 45 minute drive from your area. He is an orthodontist/miracle worker that specializes in TMJ disorder. His number is 510-522-6828 and his address is 875 B Island Drive, Alameda. See the website at http://www.dentalphysician.com/work.htm. Feel free to email me directly if you would like more information. Good Luck! Anon
March 2002

I'm looking for an East Bay dentist specializing in TMJ. My current dentist made an acryllic mouth guard for me to wear at night, but the bite's not correct. I've heard that a new development is to build up the canines and use them as ''sliders''. Does anyone have experience with this, or a great East Bay tmj dentist to recommend? Thanks for any responses. night grinder


I recommend going straight to specialists: your problems might be beyond the scope of a regular dentist. UCSF has a TMD clinic, as does the University of the Pacific. UCSF just diagnosed my chronic jaw and neck pain as severe oseoarthritis. (UOP missed it, but they are great for simpler matters.) Anyway, for me, the lack of early intervention means lots and lots of bone damage. May your problems be easier and your diagnosis quicker! http://dentistry.ucsf.edu/p_i.htm Jenifer
I found having a few visits with Dr. Linda Centori, a psychologist who specializes in chronic pain and TMJ and is affiliated with the UCSF School of Dentistry, very helpful. She knows all the TMJ specialists in the Bay Area, and can match you up with someone appropriate. Dr. Centori's phone number is (415) 502-6301. I'd also recommend visiting www.tmj.org, the web site for the TMJ Association. This site covers all the assorted treatment options for TMJ.

Close to two years ago, I sent a posting to the Recommendations Digest about TMJ specialists (now archived.) At the time, I recommended University of the Pacific, as well as a pain management specialist at the Kentfield Rehabiliation Center, Dr. Marvin Zwerin. For the record, UOP's TMJ treatment plan turned out to be worthless: very expensive (close to $3,000.00), caused permanent damage to my bite, and did nothing for my pain. I no longer recommend them, needless to say, nor do I recommend Zwerin, who referred me to UOP. MarinaH


4/00 I've been having some problems with my TMJ joint and have gotten a referral to Dr. Brian Krey. Does anyone have any experience with him? Also, any general advice about TMJ would be appreciated - what sorts of treatments are out there for someone with relatively mild pain and soreness? Any ways to prevent progression of joint damage?
Brian
I've never heard of this doctor, so I can't comment on him. However, I can recommend the University of the Pacific's Dental School; they have a TMJ Center and they actually seem to know what they're doing.

TMJ is kind of a blanket term; there isn't a one-size-fits-all treatment. I felt U O P was terrific at actually figuring out what was specifically wrong with me. One other thing that I found helpful: The Kentfield Rehabilitation Hospital Pain Treatment Center, in (you guessed it) Kentfield. I saw Dr. Marvin Zwerin (he's in a lot of medical plans), and he's really (really, really) good. (He also has TMJ problems himself occasionally and is very sympathetic.) Best of luck. WHatever you do, don't go to a physical therapist or chiropractor...it's very easy to get hurt...and definitely stay away from UCSF's Center for Orofacial Pain. I found them extremely cold. They failed to diagnose a jaw misalignment, and instead attributed the problem entirely to stress. They wasted a lot of my money and time. Stress is quite possibly a component of TMJ, but it's not necessarily the whole story.


8/25/00 Marina
My dentist has recommended sacrial-cranial (or is it cranial-sacrial?) therapy for my TMJ pain. Has anyone done this? Is there a practitioner that they like? Is it New Age voodoo or proven science? Can they hurt you? All I've been able to find out on my own is that it's expensive.
8/26/00: Gail
My husband and I brought our newborn to a cranio-sacrial therapist to help us with some breast feeding problems. Before we started treatment, I too was a bit skeptical the therapy. However, after just one session I was a very impressed with the results. Nursing went from a very painful experience (bloody nipples from chomping) to a wonderful bonding time. (This was our second child so it just wasn't a matter of inexperience on my part).
We went to Kathy Adachi who is located in Point Richmond. Her number is 510-237-7899. She works with adults as well as children, but is quite popular, so you may have to wait a bit for an appointment. (By the way, the lactation consultant who turned us on to cranio-sacrial therapy is Sylvia Boyd. Her e-mail address is sylviaboyd at juno.com. I highly recommend her as well.
Hilary
My mother is a physical therapist ("retired" now) but she has done some craniosacral therapy on me before, and in my case, it worked wonders. It was for headaches while pregnant. It was very gentle and soothing. Other than that, I don't know much about it. But I do know the name of a woman who does craniosacral work (she is an occupational therapist too). Her name is Nancy Sabin and her number is 528-9161 in Berkeley. I honestly don't know if that is her home or work number (although she does some work out of her home), and I'm pretty sure she still does the craniosacral work. She did massage/body work on me while I was pregnant which was fabulous, and she was just starting to get into birth trauma "stuff" (can't think of the right term) last time I saw her. A very nice, nurturing person.
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