|Berkeley Parents Network|
|Home||Members||Post a Msg||Reviews||Advice||Subscribe||Help/FAQ||What's New|
BPN is now a 501(c)(3) non-profit and we are building a new website!
Read more, and see how you can help:
I need neurosurgery for cervical spinal stenosis. I have been referred to Bruce McCormick in San Francisco. Anyone know anything about him? Trying to get reviews over the internet has yielded nothing. Anyone have other recommendations or suggestions how to learn more about McCormick? jenny
I wish you the best with your surgery-you would be in good hands with any of the above doctors! ortho NP
My cousin's 9-month-old baby has hydrocephalus and recently started having severe seizures. She lives a few hours away but is considering seeking a consultation in the Bay Area, just to make sure her son is receiving the best, most cutting-edge treatment possible. Does anyone have any recommendations for top-notch pediatric neurologists? We could easily take them to Oakland Children's, UCSF, Stanford -- wherever the best doctors are -- and they can stay here if multiple appointments are necessary. anon
He has had 4 shunt revisions, all done by Dr. Sun with the last one done in 2002. Dr. Sun was very honest and matter-of-fact about the cause of the failure and the probabiltiy of the success on the latest revision.
Although we no longer see Dr. Sun, Dr. Sun and his staff are wonderful. On those occassions when my son has had hospital stays at CHO or other appointments, they still know my son by name and check on him as well when he is admitted at CHO.
We now see Dr. Michael Edwards at Lucile Packard Children's Hospital at Stanford (LPCH). We see him twice a year and he comes by whenever my son is admitted to the hospital. He is also an excellent neurosurgeon and recognized by name with the other doctors my son sees. If you don't mind the drive, the facilities and support staff are excellent at LPCH.
My son was admitted into the NICU and ICU units mutliple times at both hospitals, and I had a better experience at LPCH than CHO.
Michael S Edwards, MD Service Chief, Pediatric Neurosurgery Clinic: Pediatric Neurosurgery 730 Welch Road, Suite 206 Palo Alto, CA 94304 (650) 724-4270Just to let you know, my son sees many medical specialists and they are scattered through-out the Bay Area CHO, LPCH, UCSF, and John Muir. You're on the right track in checking out recommendations and getting feedback on the different doctors.
was a kind and gentle man. The surgery was long & complex, and successful. I trusted him with my daughter's life, and he was deserving of my trust. Dr. Zovikian was in the same practice, and visited us at the hospital once or twice after the surgery, and he seemed like a good man and a fine physician too. Judy
Nagle was good in explaining options about the different kinds of surgery that could be done. He did have clear opinions about what he planned to do (which from my point of view was fine, since I was in no position to determine which kind of surgical procedure was better). But he did listen to the opinions of other doctors (in the beginning I took my son to a pediatric neurosurgeon at UCSF, who suggested a different procedure). In the end, Nagle consulted with a different colleague at UCSF about how to handle my son's case and changed his approach. He ended up doing the first surgery in the way that the UCSF pediatric neurosurgeon I had seen would have done it. The shunt failed within a few months and was redone as Nagle had first proposed. There were complications with the revision which scared me, but Dr. Nagle took it all in stride and assured me he would get him out of the hospital (which he did). The revision ultimately failed as well a year and a half later, but by then my son seemed to be o.k. without a shunt (much to all the doctors' great surprise). I periodically take my son in for follow-up, just to make sure he is doing o.k., and always enjoy the office visits. Kate
Jenny 10/99 I am posting for a good friend of mine who needs cervical disk surgery and is looking for recommendations for brilliant neuro-surgeons. He has had a couple of consultations and wants to be sure he has chosen the right doctor for him so he is looking for further names. If anybody has experience either good or bad we would appreciate your posting. ---------------------------------------------------- Kathleen I'm a bit cynical about famous neurosurgeons, based on experience. I had cervical disk surgery twice. The second surgeon was world-famous, the head of a Northern California university teaching-hospital neurosurgery unit. The operation and post-surgical care were immediately followed by long-term problems that may have been avoidable. (My spinal cord swelled up and was damaged). When the symptoms showed up a few days after surgery, someone on the surgeon's staff said I wasn't supposed to be having the symptoms I was experiencing, but nobody followed up. The surgeon seemed to think it was my problem -- as if I was being an uncooperative patient by not getting well. Some problems with using a world-famous surgeon: 1) He or she is probably a professor, and residents have to practice on someone. Of course, your friend can ask about this, but how can you really tell who did the actual surgery? 2) He or she may be more overconfident even than the average neurosurgeon -- it takes a lot of arrogance to cut into somebody's brain based on a fuzzy MRI. The downside of arrogance is that if something goes wrong, the doctor may be unable to admit it to him/herself, and respond early. This may have contributed to the problems I now have. Plus it's damn irritating! 3) Disk surgery is relatively routine neurosurgery. World-famous surgeons, sought out for the tricky, nonroutine surgeries, may get less practice on disks. 4) World-famous surgeons maybe get less sleep than the less famous. (Mine had been at work for 10-12 hours before he got to me.) Plus they may be past their prime -- they're famous for what they did 10-20 years ago, not last week. My advice: Don't be in a hurry; do your homework on what the surgery and post-surgery entail. Ask several neurologists who they would recommend - it may not be the famous guy. How often does the doctor do this type of surgery? (It should be weekly or more often.) Does the doctor prefer laminectomy only or does he/she also do fusion? What type of procedure makes more sense to your friend? Does the doctor reschedule you if a prior operation keeps him/her working late, or does the doctor keep going no matter how tired? Does your friend have any say about this, can your friend get schedules for early in the day? What does the doctor use to prevent swelling (prednisone, naloxone, something else, nothing?) Does the surgeon *listen* to your friend? How does the surgeon follow up on patients while ensuring objectivity? (If you asked my surgeon, he'd say my surgery was perfect. But he didn't much listen.) What about the hospital? Nurses can catch (or make) life-and-death mistakes. So can observant friends and family. Please don't use my experience as reason to worry overmuch. My spine was a mess from multiple injuries and hard to operate on. To the extent I was injured, I've gotten much better over time. And while I'm still ticked off about the whole thing, I also recognize that I did need the surgery, and would be much worse off without it.
|Home | Post a Message | Subscribe | Help | Search | Contact Us|