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I recently learned that I have a gene for a blood-clotting
disorder. My OB GYN recommended I see a hematologist but he
did not have anyone he could refer me to. Can you please
share any recommendations you have?
I'm sorry to hear about your diagnosis. Depending on where
you live, I would recommend 2 excellent hematologists both
of whom trained at UCSF. For the Berkeley/Oakland area: Dr.
Dave Irwin with Alta Bates, (510) 204-1591, and for the
Castro Valley/San Leandro/Hayward area, Dr. Ostap Melnyk
with the Epic Care group,
http://www.epic-care.com/carepartners.html#melnyk (925) 244-1240
Can anyone recommend an excellent hematologist at Children's? Any names and details
would be greatly appreciated.
I cannot speak highly enough of Dr. Alison Matsunaga at Children's. My son
was born with a hereditary blood disorder, and the first year of his life
he required several blood transfusions and hospitalizations. Dr. Matsunaga
and the whole staff did a wonderful job of answering my questions and
helping me to feel less anxious during a very difficult time. We still see
her for checks at least once a year, and she has offered to speak with me
about my own struggle with the blood disorder, which was very generous.
My son, who has very frequent nosebleeds and has not responded to 4 years
of treatment, was just referred to hematologist Dr. Matsunaga at the big
medical complex just next to Children's main Hospital building. I asked
his primary pediatrician at Berk Peds, and she completely respects her and
says she is top of the field. We will be going in 2 weeks, so I can't
tell you myself, but I am hoping for some good outcomes!
Good luck. Frieda
Would like recommendations for a Hematologist in the East Bay of
SF area that is familiar with MTHFR, particularly in its relation
to infertility issues. I was recently diagnosed as being
homozygous and need to have my homocysteine levels checked, etc.
I have heard that some hematologists have no idea how this
affects fertility and so are not sympathetic, so I'm looking for
someone who has experience in this. Or at the very least, is a
hematologist that you like and respect. Thank you!
- Homozygously Yours
While I don't have a recommendation for a hematologist I too am homozygous with the
MFTHR defect. My obgyn Angelyn Thomas diagnosed me after a couple of miscarriages.
She successfully managed my treatment during pregnancy and I now have a very healthy
baby boy! She mentioned that she had a few patients with this disorder and seemed
very knowledgeable. Maybe you just need a new ob? Feel free to contact me if you
want - I was pretty spooked when I started doing more research on this disorder but
got some good answers from Dr Thomas and have a happy success story.
I would also consider seeing a perinatalogist, as they can directly advise you re
treatment for pregnancy.
I go to a Hematologist in Berkely whom I really like. My situation is different than
yours, but still a metabolic condition which if not detected and treated early enough
could cause liver cancer, heart disease and other serious illness.
Anyway, his name is Brad Lewis and he is located at 2001 Dwight Way in Berkeley, at
the Alta Bates Comprehensive Cancer Center. Brad is reknown as one of best
hematologist in the Bay area. His phone # is (510) 204-6753
I cannot speak for him if he is knowledgable about MTHFR with respect to infertility,
but I do highly receommend you try him out to see. Good luck!
I'd go see an RE (reprodictive endocrinologist). They will know how to treat the MTHFR
issues as the relate to your reproductive issues. Its pretty common, however, and
sometimes it is not the reason for fertility issues - an RE can help you figure that
out as well. good luck
My close friend, a 35 year-old-female, has chronic anemia, which
is neither inherited nor food-related. Her recent tests came out
really bad (4 mg/Dl), and she feels chronically fatigued. She is
looking for a good hematologist either in Berkeley or in San
Francisco who takes Blue Cross. Thank you very much!
I don't have anemia, but I see Dr. David Irwin at Alta Bates
Cancer Center (not only for cancer patients) on Dwight Way. I
have some clotting issues and he got me through two
pregnancies. He has great bedside manner and I feel that he's
one of the best doctors I've ever had. I don't know if he
takes Blue Cross (I'm Blue Shield). You can reach him at(510)
Dr. Brad Lewis is in Berkeley and is wonderful! He takes the
time to really make sure you understand what he is saying, he
listens to you, and his office has free valet parking!
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