Berkeley Parents Network
Google Custom Search
Home Members Post a Msg Reviews Advice Subscribe Help/FAQ What's New

Diabetes

Berkeley Parents Network > Reviews > Health & Medical > Diabetes



Seeking internist/GP to help me manage my diabetes

Nov 2006

Just moved to East Bay (Montclair section of Oakland). Looking for a physician specializing in internal medicine or endocrinology. Need someone to help me manage my diabetes and monitor the other meds I take. db


I've seen Grace Eng (endocrinologist) in Oakland several times now and she has been great. She's young, she listens, and is up on the latest diabetes treatments. She also doesn't overbook so I'm able to get in to see her when I'm scheduled to see her. She has helped me transition quite easily to using a pump. She is a block off Broadway at 350 30th St., 465-6700. Good Luck. anon
April 2004

I am diabetic, and have recently had difficulty managing my blood sugar levels. My primary care physician has not seemed particularly concerned -- to the point that I have found it pretty frustrating, as I would really like to be aggressive in treating this (I'm pretty young, with a toddler to care for, and would like to be part of his future!). Any recommendations for a primary care physician (Alta Bates Medical Group) who's good at working with diabetes?


I doubt you will find that there is a primary care physician who is a specialist in diabetes. As a type 1 diabetic, I too have found it increasingly frustrating that there are not more doctor's in the area that deal with this. But really what you need is a specialist, namely an endocrinologist that specializes in Diabetes Management, in addition to your PCP. The specialist is not one for taking care of your basic health needs, nor is the PCP meant to be the specialist, and actually I find it better that I have both to balance it out.

For ABMG, there are only two that I know of--the best one, my first doc, moved away five years ago, leaving most if not all of his patients to Randall Ammon, in Orinda, or Michael O'Conner in Pinole. Dr. O'conner is straitforward and his staff is ok. I think you have a bigger concern with your PCP--that he/she is not so concerned about your overall health enough to recommend you to someone--it's not his/her job to specialize in your diabetes management, but it is certainly his/her responsibility to recommend someone who can. I would be looking for both a new PCP and Endocrinologist if I were you. Please feel free to email me with any other questions/concerns you might have.


As the mother of a diabetic child, my sense is that you would be better served by getting a referral to see an endocrinologist. Our daughter has both a pediatrician and an endocrinologist. Diabetes is a very complicated disease, compounded by the fact that the patient has to be his or her own doctor 99% of the time making personal choices all day long about insulin dosage, food, exercise, etc. In order to do this well, you need the information, education, supervision, and encouragement that can best be provided by a diabetes educator and endocrinologist. I would be leery of seeing a primary care physician for diabetes care simply because a generalist cannot be as up to date as a specialist. There are new insulins on the market, insulin pumps with very sophisticated software systems, and various strategies that change all the time. In order to get the best care possible, you need to see someone who specializes in this disease. Many primary care doctors may tell you that they can treat diabetes, but their level of understanding may not good enough. The other thing I would suggest is that if you are not already doing so, be sure to get a hemoglobin A1C test on a quarterly basis. This is your best indicator of how well your blood sugars have been maintained for the past 2-3 months. Good Luck.

Diabetes and pregnancy services at Alta Bates

Dec 2005

Does anyone know about the diabetes and pregnancy services available at Alta Bates?

I'm new to the East Bay and wonder if I should keep using my OB/GYN in SF. I was very pleased with the Sweet Success program at CPMC (I gave birth there) and felt their service was great and taliored to me. I would love to switch to a doctor on this side, but wondered about how Alta Bates supports pregnant women with diabetes.

thanks for your thoughts... Diabetic Mom


My experience is only with type 1 diabetes--not sure what your diabetes profile is. I delivered my son at Alta Bates 2.5 years ago, but was a patient at East Bay Perinatal, so my only contact with the hospital itself was for the birth and the non-stress tests leading up to it. I'm currently pregnant with my second and am back with EBP. I was/am really happy with EBP and my doctor there, Janet Goldman. Dr. Goldman is extremely familar with diabetes in pregnancy and very no-nonsense about it. The practice also has a couple of dieticians on staff and I've seen them off-and-on throughout my pregnancy. The best thing about EBP, though, is that they have ''prescribed'' me the Matria service, which is a telephone nursing service that I check into daily to report my sugars. The nurses there are on call 24-7 to answer questions, and help me adjust my insulin as my needs change. (I'm on a pump, which I HIGHLY recommend during pregnancy if you have Type 1.) Whether or not you can qualify for this service depends on your health insurance, though.

The result of all of this? A really super healthy baby boy first time around, and a perfectly normal pregnancy so far with #2. Best of luck! If you'd like to talk to me directly, please ask the moderator for my contact information. Type 1 mama


The care I received at the Alta Bates perinatal group (aka Sweet Success) during my pregnancy was extraordinary. I experienced the doctors and staff there as my committed partners in delivering a healthy baby despite my diabetes and other medical conditions. My doctor was Janet Goldman. I saw her for a pre- pregnancy consultation, then worked hard to get tight control of my ''numbers.'' During the pregnancy, she saw me almost weekly. She also had me followed closely by a nutritionist. There were many, many ultrasounds and other tests--it helped that I had a PPO and not an HMO. It might seem odd to say that I looked forward to my visits to Alta Bates perinatal, but I did. Everyone was really lovely, and the care was first rate. I always felt respected, fully supported, and like the doctors and staff were right on top of whatever was next. Of course, the proof of their skill in caring for me is my child, who came into this world healthier than the babies of most non-diabetic mothers. I just couldn't recommend Alta Bates perinatal more highly--they're terrific. One unfortunate thing is that they don't typically do the delivery--the staff doc at Alta Bates does, unless you have a c-section, in which case the parinatal people do it. --Diabetic Mom

Helping diabetic middle schooler to eat better

Jan 2006

We have a daughter in middle school with recently diagnosed, diet controlled, Type 2 diabetes. Eating a diet that is quite different from that of her peers- especially in terms of reduced sugar and carbohydrates- is essential to her health. Home is fairly easy, but school and outside activities are very difficult. One strategy we've found is to pack meals that she can eat and make them as tasty and varied as possible (but any cookbooks and/or recommendations would be welcome). We are also doing our best not to be the ''gatekeepers'' who are responsible for restricting her diet, but this is can be challenging too. We’re very interested in hearing how other parents of children with food restrictions- especially diabetics- help their kids resist eating foods that will harm them. Thanks much! Parent of a diabetic


The school may be helpful in supporting your child's dietary choices by having a classroom discussion about diabetes. Middle school is where a lot of health education should occur anyway. My son brought his lunch in kindergarten and when he was teased by the other kids (who brought lunchables and other skeletonized foods), the teacher had a class meeting to discuss how commentary on others' foods is impolite. Eventually, some kids ''warmed up'' to his thermos lunch, asking for tastes since it smelled so yummy!

As for helping your daughter come to terms with her illness and understanding how important dietary management is, education is critical. I had a 62 year old client with newly diagnosed diabetes (fasting glucose over 300). Within a year of his diagnosis and with a combination of exercise and a low carbohydrate diet (no refined foods), he told me he was no longer diabetic!

Once she has to take medication for her disease, the possibility of reversal diminishes substantially. Nori Hudson, NC


In addition to what I earlier wrote, here is an article that might be useful in educating your child. I just got it so it is timely:

The New York Times (www.nytimes.com) January 9, 2006 Bad Blood Diabetes and Its Awful Toll Quietly Emerge as a Crisis

By N. R. KLEINFIELD

It costs nothing to log in to read this article. Nori Hudson, NC


As I dietitian and a parent (I don't have a diabetic child) I felt compelled to respond to your post. You don't say if you or your daughter have received any kind of diabetes education. If so, I'm curious to hear what kind of info you've gotten. Have you heard about carbohydrate counting? If your daughter was capable and willing to do this with your help, she could include her favorite junk foods, albeit in smaller amounts than she might be used to, and still manage her diabetes and weight.

Avoiding an overly restrictive diet plan can keep feelings of deprivation at bay and stave off binges. I like carbohydrate counting because no food is off limits and this may be appealing to your teen. I understand your concern about becoming a food cop and agree it's best to help your daughter be as engaged as possible in her diabetes management.

Have you checked out www.diabetes.org (American Diabetes Association) or any other reputable websites? While there's a lot of great free info out there, you and your daughter should consider a consultation with a registered dietitian. You can get referrals from the American Dietetic Association (www.eatright.org).

I work at a Health Center, have been providing diabetes education for over 17 years, and while I don't have a private practice, I occasionally do private consultations. I didn't respond to your post to promote myself, but if you are interested in a consultation, feel free to email me. Good luck. Arinna


Helping my diabetic dad find sugar-free foods

March 2004

My dad was recently diagnosed diabetic, and I've been trying to find sugar-free foods for him (i.e. sugar free desserts)and it seems hit or miss. (The folks at most grocery stores don't even know if they carry sugar free items, which seems really strange to me.) I know there are other diabetics out there. Where do you find the good stuff? There was a recent discussion about Splenda, which doesn't seem to be on the archives. Where do you find that? Does anybody know more about the negatives about splenda? Thanks Janet


With a brother and Mom who are both diabetic, I've basically been on a diabetic's diet since I was a kid. Rule #1 - instead of looking for specific brands of food, look instead at the carbohydrate and sugar contents of what you are buying. Brands that cater to diabetics often charge more and sometimes have more sugars than regular brands. I have found that there are excellent sugar free ice creams made by Eddy's and Lucerne with very low sugar and carb contents. Also, with the new Atkins craze, there are also a ton of affordable and delicious pre- mixed baked products (brownies, muffins, cakes) with very low carb and sugar contents. I find many of these at Trader Joe's in Emeryville or you can even find them on line at Drugstore.com. Trader Joe's also has GREAT low-carb p! asta (imported from Italy). And, of course you can invent your own recipes, using soy flour to replace white flour and sugar substitutes to replace sugar or honey. Good luck and enjoy the excellent low sugar options that are out there for your dad
Hermann's Chocolate Lab on Main Street in Templeton, CA has a huge selection of really yummy sugar-free chocolates. You could probably mail-order some! I've given lots to diabetic relatives and they've all said they were delicious. anon
I'm a recently diagnosed diabetic myself, and have become somewhat of an expert on this. It's pretty complicated. Most grocery stores carry a very small selection of stuff specifically for diabetics -- and not much of it is what I would call ''good stuff.'' There are usually sugar-free candies, some reduced-sugar cookies, ca! ke mixes, and a few other things. In addition, many grocery stores now feature a ''low-carb'' diet section (Atkins has been helpful for us diabetics), with somewhat better stuff, including those ''meal replacement'' bars (in flavors like peanut butter chocoloate), which are OK. Also, most supermarkets have no-sugar ice cream. You can also find no-sugar stuff at places like Godiva candy stores. A couple of things to note: A lot of the Atkins stuff does contain aspartame, which there may be reasons to avoid. I can't eat either the no-sugar chocolate or ice cream, as it tends to be sweetened with sugar alcohols (listed as sorbitol, malitol, xylitol, etc.). If one eats a lot of this (and if I eat any), one can get stomach cramps and diarrhea.

There doesn't seem to be a lot of negative press on Splenda (yet); the very small amount of stuff I've seen has been vague, and not really based on solid research. So for now I'm letting myself use it. My best luck has come from making stuff myself. There's an additive called ''Stevia'', 300 times sweeter than sugar, natural, and it has been used in Japan for years and years (apparently with lots of safety studies etc.). It works pretty well, although a lot of it does tend to make things taste funny. There are some odd politics surrounding this, which have led to it not being able to be sold as a sweetener in the US; instead, it's sold as a ''dietary supplement'' in health food stores.

One can also use sugars that are mostly or entirely fructose (you can get either plain fructose or some stuff called Agave syrup at Whole Foods, in addition to Stevia). While these are still sugar, they are apparently absorbed by the body more slowly than table sugar, and so somewhat better for you. Also, they are sweeter so you can use le! ss of them. If you'd like, I can send you some information provided by my nutritionist, as well as some simple recipes for sugar-free dessert items. Feel free to email me if you'd like this. kd


My son has type 1 diabetes, so I have had a very steep learning curve re: carbohydrates, glycemic index, and the body in general in the last couple years since his diagnosis. The first thing to note, and make sure your dad knows this, is that even most sugar free foods still have carbs. They will raise the blood glucose, although probably more slowly than their sugar loaded counterparts. You can find sugar free candy of all types, including popular brands like reeses, red vines, etc. in Longs near the pharmacy, and sometimes in grocery stores in the candy aisle. You can also ofte! n find sugar free juice and cookies in most grocery stores, and the packages will state that they are sugar free. Look at the carb info, though. Trader Joe's has a brand of sugar free candy in their candy section. They also have sugar free juice and obviously, diet sodas. I do reccommend splenda, because is tastes better than aspartame, and so far I haven't heard any negatives. I will look at the responses you get on it, because I'd also like to know if there are any cons to Splenda. You can buy it by the box in Andronico's, and probably Safeway, too. Sugar free jello is actually carb free. Type 2 diabetics have a different situation than those with type 1 because often they don't take insulin, but treat the disease with excercise and diet. My son can eat sweets when his bg is in range because we can just give him the necessary insulin through his pump. You dad proba! bly can't do that with as much success. I hope he can make the lifestyle changes needed to keep him relatively healthy and find a way to eat some of the things he wants to while keeping his bg in range. He's lucky to have your support! Good luck. Alicia Alicia
Get thee to a dietitian! Most diabetics are really to eat foods that all of us are eating. If you choose to use ''sugar-free'' items, they are not necessarily completely free. Some are still high in calories or fat, some may cause some gas/abdominal discomfort, some may have additional carbohydrate that will raise blood sugar. The American Diabetes Association has a website, a good place to learn more or find out books that will be helpful. The websites for the artificial sweeteners also are a source for recipes. good luck

Just diagnosed with Type 2 - need help with diet

May 2002

I was just diagnosed with Type 2 (Adult onset) Diabetes. I immediately started eating strictly by the ''Zone'' diet guidlines. I am having some major questions about the way I should be eating and how my sugar level is doing during different times of the day. HOWEVER, all the dieticians I have talked to (mostly at Kaiser) totally subscribe to the classic ''pyramid'' and way more carbs than my body can tolerate. Does anyone know of a good nutritionist/ diabetes educator who has alternative knowledge? Does anyone have a word of advise for a beginner like me? Thanks!


Are you attempting to manage your diabetes via diet only? If so, diet guidelines recommend a range of carbohydrate intake (45-55% of calories from carbohydrate). Dietitians are urged to individualize diet recommendations to accommodate personal preferences and lifestyle with the ultimate goal of achieving good diabetes control and maintaining healthy cholesterol levels. I am a registered dietitian and practice from this perspective. A new diabetes diagnosis can be overwhelming-learning about the disease, the diet guidelines, blood sugar testing,and the huge emotional impact of having to manage a chronic disease. I sincerely hope you find someone to work with that you feel comfortable with. Good luck. Arinna
My sister has type 2 diabetes and was horribly handled by nutritionists pushing carbs - making her worse and worse. It was a nightmare to watch her get such bad advice and see her blood sugar climb. Thank goodness we recently found the IDEAL help! There is an amazing nutritionist at the UCSF Mount Zion Med Center in SF - She is the head of the Diabetes Education program and she is diabetic herself. She has completely turned my sister around, helped her lose weight, lowered her blood sugar down into normal ranges and basically saved her life. Her name is Beverly Mack and her phone number is 415.885.7760. I don't know how your health insurance will handle this but I can tell you it is well worth the cost to see her on your own - a small investment in your long term health. My sister travels all the way from Napa Valley to see Beverly. This carb thing is real problem for those of us with type 2, and the classic pyramid is completley wrong for us. You are so smart to be looking for the right guidance! I am seeing Beverly for weight loss and to lower my blood sugar which is beginning to climb as I get older and have stayed overweight for too long. I do hope this helps you. Please feel free to contact me. Debby
To reply to the person just diagnosed with type 2 diabetes, I'd like to suggest subscribing to Diabetes Interview (www.diabetesinterview.com). This monthly publication deals with both type 1 and type 2 diabetes and frequently has very good articles on diet and nutrition. It also has a question/answer section where readers pose different queries, some relating to nutrition. My daughter has type 1 diabetes and her diet is something we struggle with constantly. There seem to be different schools of thought on this and seemingly no one diet works equally well for everyone. I don't know much about the zone diet--if it's the diet that is high in protein, you may want to research it further as a complication of diabetes is kidney disease and eating too much protein stresses the kidneys.

Diabetes seems to be a disease that has many idosyncratic features that vary from person to person. You will find that certain foods will raise your blood sugar very high, very quickly. For instance, my daughter should not eat bagels or grapenuts, because it's too hard to keep her blood sugar value in an acceptable range. On the nutrition front, our sense is that the best diet for diabetics is also a very healthy diet for everyone in general--the basic food pyramid. We have found, though, we get better control if our daughter eats meals that have a blend of fat and protein with the carbohydrate. Whenever she eats meals with minimal amounts of fat/protein (e.g., pasta with veggies, bread, fruit) her numbers spike. The fat and protein slow the absorption of the carbohydrates.

I applaud your efforts to find a good nutritionist. I also encourage you to read as much as you can. They don't call diabetes the ''thinking person's disease'' for nothing. It's quite a challenge, and I wish you the best of luck. anonymous


I have had good success with a newly-diagnosed Type II diabetic using diet, digestive support, supplements, herbs, and life style modification. RK Bernstein's book THE DIABETES SOLUTION suggests a 22-15-63 (proteins-carbs-fats) ratio to stablize blood sugar, based upon the author's own experience both as a Type I diabetic patient and doctor. Results have been decreased insulin, reduced fatigue, neuropathy, vision disturbances, and urine output. Nori
I was diagnosed with diabetes ten years ago; I had symptoms for ten years before that but didn't realize what the symptoms meant. Now I've been in control of my diabetes for about six years.

FWIW, I agree with you that the food pyramid does not work for everyone and it has way too many carbs for this diabetic. My experience, though, is that the Zone diet is similar to a diabetes diet in some ways but problematic for many diabetics in other ways.

Also, the hardest things about diabetes are not the blood tests or the shots. The hard parts are getting past denial, finding resources that actually help, and living in a world that neither understands nor accommodates living with diabetes.

Usually, some doc tells you that you have diabetes, hands you a pamphlet, and sends you off to flounder about on your own. I went to three doctors and two nutritionists before I found someone who seemed to be paying attention and sending me to resources that worked.

Everything I learned about successfully managing diabetes I learned while I was pregnant, when I was constantly under the watchful eye of skilled specialists including a diabetes dietician who monitored my diet weekly. During that time, with their constant attention and customized treatment plans, I learned a tremendous amount about diabetes in general and my diabetes in particular.

It turns out that everyone's body is different, and everyone's diabetes is different. But my experience is that most medical people are trained to offer only ''cookie cutter'' treatment plans. They also often seem jaded, because, I suppose, it gets discouraging when most diabetics don't fully address managing their health. So, typically, all you hear is vague, generalized advice to get more exercise, lose ''even a few pounds,'' and ''count carbs'' (a concept that wasn't totally clear to me until I met weekly with that one wonderful dietician).

By keeping a daily journal to track my blood sugar, meals, and exercise, then going over my journal each week with committed specialists, I learned a lot about how diet, exercise, and medication worked together in my specific body to control my diabetes.

Unfortunately, that kind of personalized care is usually unavailable to non-pregnant diabetics. To get good advice, you have to work at ferreting out resources and people who will be straight with you and see your case with fresh eyes.

One great resource: The Diabetes Center in Berkeley has a terrific *free* drop-in support group. (Stop by or call them to get the schedule.) There, you'll find other diabetics who can tell you who's who and what's what in the bay area.

The Diabetes Center also has some good people -- the support group facilitator (Mary Kelly) and the diabetes educator (Lori Lorenzo) are both very smart and very clear.

The dietician there (Sue, I think) is more the jaded, cookie- cutter-solutions type. I felt that had I listened to her advice it would have been five steps backward for me.

As mentioned, the support group is free to anyone with diabetes; you don't need a referal, just drop in. I don't know if Kaiser offers referrals to the Diabetes Center, but maybe they have a similar facility and maybe you'll decide to spring for a consultation there.

Also, the book ''Diabetes for Dummies'' is really the best comprehensive primer I've seen anywhere. Skim through it and you'll be well on your way to understanding how to face your new challenges.

Good luck, and remember that your health is yours, not your doctor's. By owning your diabetes and taking care of yourself, you can minimize the effects and build habits into your life that will become as ordinary as brushing your teeth and combing your hair. Anonymous


I only have experience with diets for diabetics when I was pregnant. I remembered they do make us eat too much carb, the reason was then because I was pregnant and I need more calories than usual.

I went to 3 different endocronologist (with a nutritionist on staff) and they gave me different suggestions which some was very misleading. I finally went to California Pacific (in San Francisco) diabetics center, I register as a patient of Dr. Elliot Main. They are very helpful and the nutritionist are specialist in dealing with gestational diabetics, I can tell they have a big staff and can get a little unorganized with the appointments. But I think I wouldn't know how to deal with the diet without them.

At the end, you are the one who will figure how much carb you need a day. As long as, you balance them with enough protein. That's what I learned from the expert anyway, to create my own menus. You have to be proactive on what you want to have in your diet otherwise they gave you standard diet which might not work for you. I tend to eat lots of fruit and I don't like cheese, so that was a little difficult to work into. But I found a good balance diet that I like and it work out. Good luck! purna


Hi -- There are many different approaches to treating diabetes naturally. One diet that seems to work VERY well for many is called the Bernstein diet -- basically low carb, high protein. Dr. Richard Bernstein has written a book called Dr Bernstein's Diabetes Solution which is pretty widely available. He also has a website. Besides diet, there are many nutrients and herbs that help people manage their diabetes successfully without pharmaceuticals. You may be well served by visiting a naturopathic doctor in the area who has worked with people with diabetes. Check out www.canp.org to find someone near you. Good luck! Tara
That's weird! I'm a type 2 diabetic, and I've always been on high protien diets. I don't have a good regular nutritionist, but the one I had whileI was pregnant could probably refer you. Her name is Prenatal Diagnosis Center (415) 600-6400, I was seeing Trudi, she's awesome and I'm sure that she can hook you up! Rachel

Diabetic child starting school

Jan 1998

My 4.5 year old was recently diagnosed with diabetes. We are doing fairly well with our current preschool situation with respect to monitoring her blood sugar levels (at lunchtime) and making sure she eats the right foods at the right time in the right amounts. Our big concern is what to expect/request when she starts kindergarten in the fall. If anyone is a parent of a young diabetic child, I'd love to hear from you. Any advice or suggestions regarding school, afterschool programs, sports, principals, teachers, etc., would be greatly appreciated. I currently work fulltime and don't know whether I should prepare to cut back my hours in order to make sure I'm more available in case the need arises. Thanks.


A friend's daughter was diagnosed with diabetes at 6 yrs of age. They recently attended a 4-day workshop at UCSF geared toward pediatric patients to help them and their families cope with living with diabetes. They were very impressed with the quality of support available through the University of California San Francisco Diabetes Center (415) 353-7789. They worked with and really liked Steve Gitelman (he's a pediatric endocrinologist) and Maureen McGrath (a diabetes educator who is Type I herself). The center has a tremendous number of resources. Leslie
Home   |   Reviews   |   Advice   |   Members   |   Post a Message
Join BPN   |   Help   |   What's New   |   Search   |   Contact Us

Last updated: Sep 13, 2008
Copyright © 1996-2009 Berkeley Parents Network


The opinions and statements expressed on this website are those of parents who subscribe to the Berkeley Parents Network.
Please see Disclaimer & Usage for information about using content on this website.