Diabetes
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Diabetes
Nov 2006
Just moved to East Bay (Montclair section of Oakland). Looking for a physician specializing
in internal medicine or endocrinology. Need someone to help me manage my diabetes and
monitor the other meds I take. db
I've seen Grace Eng (endocrinologist) in Oakland several times now and she has been
great. She's young, she listens, and is up on the latest diabetes treatments. She
also doesn't overbook so I'm able to get in to see her when I'm scheduled to see her.
She has helped me transition quite easily to using a pump. She is a block off
Broadway at 350 30th St., 465-6700. Good Luck. anon
April 2004
I am diabetic, and have recently had difficulty managing my blood sugar
levels. My primary care physician has not seemed particularly
concerned -- to the point that I have found it pretty frustrating, as I would
really like to be aggressive in treating this (I'm pretty young, with a
toddler to care for, and would like to be part of his future!). Any
recommendations for a primary care physician (Alta Bates Medical
Group) who's good at working with diabetes?
I doubt you will find that there is a primary care physician who
is a specialist in diabetes. As a type 1 diabetic, I too have
found it increasingly frustrating that there are not more
doctor's in the area that deal with this. But really what you
need is a specialist, namely an endocrinologist that specializes
in Diabetes Management, in addition to your PCP. The specialist
is not one for taking care of your basic health needs, nor is the
PCP meant to be the specialist, and actually I find it better
that I have both to balance it out.
For ABMG, there are only two that I know of--the best one, my
first doc, moved away five years ago, leaving most if not all of
his patients to Randall Ammon, in Orinda, or Michael O'Conner in
Pinole.
Dr. O'conner is straitforward and his staff is
ok. I think you have a bigger concern with your PCP--that he/she
is not so concerned about your overall health enough to recommend
you to someone--it's not his/her job to specialize in your
diabetes management, but it is certainly his/her responsibility
to recommend someone who can. I would be looking for both a new
PCP and Endocrinologist if I were you. Please feel free to email
me with any other questions/concerns you might have.
As the mother of a diabetic child, my sense is that you would be
better served by getting a referral to see an endocrinologist.
Our daughter has both a pediatrician and an endocrinologist.
Diabetes is a very complicated disease, compounded by the fact
that the patient has to be his or her own doctor 99% of the time
making personal choices all day long about insulin dosage, food,
exercise, etc. In order to do this well, you need the
information, education, supervision, and encouragement that can
best be provided by a diabetes educator and endocrinologist. I
would be leery of seeing a primary care physician for diabetes
care simply because a generalist cannot be as up to date as a
specialist. There are new insulins on the market, insulin pumps
with very sophisticated software systems, and various strategies
that change all the time. In order to get the best care possible,
you need to see someone who specializes in this disease. Many
primary care doctors may tell you that they can treat diabetes,
but their level of understanding may not good enough. The other
thing I would suggest is that if you are not already doing so, be
sure to get a hemoglobin A1C test on a quarterly basis. This is
your best indicator of how well your blood sugars have been
maintained for the past 2-3 months. Good Luck.
Dec 2005
Does anyone know about the diabetes and pregnancy services
available at Alta Bates?
I'm new to the East Bay and wonder if I should keep using my
OB/GYN in SF. I was very pleased with the Sweet Success
program at CPMC (I gave birth there) and felt their service was
great and taliored to me. I would love to switch to a doctor
on this side, but wondered about how Alta Bates supports
pregnant women with diabetes.
thanks for your thoughts...
Diabetic Mom
My experience is only with type 1 diabetes--not sure what your
diabetes profile is. I delivered my son at Alta Bates 2.5 years
ago, but was a patient at East Bay Perinatal, so my only contact
with the hospital itself was for the birth and the non-stress
tests leading up to it. I'm currently pregnant with my second and
am back with EBP. I was/am really happy with EBP and my doctor
there, Janet Goldman. Dr. Goldman is extremely familar with
diabetes in pregnancy and very no-nonsense about it. The practice
also has a couple of dieticians on staff and I've seen them
off-and-on throughout my pregnancy. The best thing about EBP,
though, is that they have ''prescribed'' me the Matria service,
which is a telephone nursing service that I check into daily to
report my sugars. The nurses there are on call 24-7 to answer
questions, and help me adjust my insulin as my needs change. (I'm
on a pump, which I HIGHLY recommend during pregnancy if you have
Type 1.) Whether or not you can qualify for this service depends
on your health insurance, though.
The result of all of this? A really super healthy baby boy first
time around, and a perfectly normal pregnancy so far with #2.
Best of luck! If you'd like to talk to me directly, please ask
the moderator for my contact information.
Type 1 mama
The care I received at the Alta Bates perinatal group (aka Sweet Success) during my pregnancy was extraordinary. I experienced the doctors and staff there as my committed partners in delivering a healthy baby despite my diabetes and other medical conditions. My doctor was Janet Goldman. I saw her for a pre-
pregnancy consultation, then worked hard to get tight control of my ''numbers.'' During the pregnancy, she saw me almost weekly. She also had me followed closely by a nutritionist. There were many, many ultrasounds and other tests--it helped that I had a PPO and not an HMO. It might seem odd to say that I looked forward to my visits to Alta Bates perinatal, but I did. Everyone was really lovely, and the care was first rate. I always felt respected, fully supported, and like the doctors and staff were right on top of whatever was next. Of course, the proof of their skill in caring for me is my child, who came into this world healthier than the babies of most non-diabetic mothers. I just couldn't recommend Alta Bates perinatal more highly--they're terrific. One unfortunate thing is that they don't typically do the delivery--the staff doc at Alta Bates does, unless you have a c-section, in which case the parinatal people do it.
--Diabetic Mom
Jan 2006
We have a daughter in middle school with recently diagnosed, diet
controlled, Type 2 diabetes. Eating a diet that is quite
different from that of her peers- especially in terms of reduced
sugar and carbohydrates- is essential to her health. Home is
fairly easy, but school and outside activities are very
difficult. One strategy we've found is to pack meals that she
can eat and make them as tasty and varied as possible (but any
cookbooks and/or recommendations would be welcome). We are also
doing our best not to be the ''gatekeepers'' who are responsible
for restricting her diet, but this is can be challenging too.
We’re very interested in hearing how other parents of children
with food restrictions- especially diabetics- help their kids
resist eating foods that will harm them. Thanks much!
Parent of a diabetic
The school may be helpful in supporting your child's dietary choices by having a
classroom discussion about diabetes. Middle school is where a lot of health
education should occur anyway. My son brought his lunch in kindergarten and when
he was teased by the other kids (who brought lunchables and other skeletonized
foods), the teacher had a class meeting to discuss how commentary on others' foods
is impolite. Eventually, some kids ''warmed up'' to his thermos lunch, asking for
tastes since it smelled so yummy!
As for helping your daughter come to terms with her illness and understanding how
important dietary management is, education is critical. I had a 62 year old
client with newly diagnosed diabetes (fasting glucose over 300). Within a year of
his diagnosis and with a combination of exercise and a low carbohydrate diet (no
refined foods), he told me he was no longer diabetic!
Once she has to take medication for her disease, the possibility of reversal
diminishes substantially.
Nori Hudson, NC
In addition to what I earlier wrote, here is an article that might be useful in
educating your child. I just got it so it is timely:
The New York Times (www.nytimes.com)
January 9, 2006
Bad Blood
Diabetes and Its Awful Toll Quietly Emerge as a Crisis
By N. R. KLEINFIELD
It costs nothing to log in to read this article.
Nori Hudson, NC
As I dietitian and a parent (I don't have a diabetic child) I felt
compelled to respond to your post. You don't say if you or your daughter
have received any kind of diabetes education. If so, I'm curious to hear
what kind of info you've gotten. Have you heard about carbohydrate
counting? If your daughter was capable and willing to do this with your
help, she could include her favorite junk foods, albeit in smaller
amounts than she might be used to, and still manage her diabetes and
weight.
Avoiding an overly restrictive diet plan can keep feelings of
deprivation at bay and stave off binges. I like carbohydrate counting
because no food is off limits and this may be appealing to your teen. I
understand your concern about becoming a food cop and agree it's best to
help your daughter be as engaged as possible in her diabetes management.
Have you checked out www.diabetes.org (American Diabetes Association) or
any other reputable websites? While there's a lot of great free info out
there, you and your daughter should consider a consultation with a
registered dietitian. You can get referrals from the American Dietetic
Association (www.eatright.org).
I work at a Health Center, have been providing diabetes education for
over 17 years, and while I don't have a private practice, I occasionally
do private consultations. I didn't respond to your post to promote
myself, but if you are interested in a consultation, feel free to email
me. Good luck.
Arinna
March 2004
My dad was recently diagnosed diabetic, and I've been trying to
find sugar-free foods for him (i.e. sugar free desserts)and it
seems hit or miss. (The folks at most grocery stores don't even
know if they carry sugar free items, which seems really strange
to me.) I know there are other diabetics out there. Where do you
find the good stuff? There was a recent discussion about
Splenda, which doesn't seem to be on the archives. Where do you
find that? Does anybody know more about the negatives about
splenda?
Thanks
Janet
With a brother and Mom who are both diabetic, I've basically
been on a diabetic's diet since I was a kid. Rule #1 - instead
of looking for specific brands of food, look instead at the
carbohydrate and sugar contents of what you are buying. Brands
that cater to diabetics often charge more and sometimes have
more sugars than regular brands. I have found that there are
excellent sugar free ice creams made by Eddy's and Lucerne with
very low sugar and carb contents. Also, with the new Atkins
craze, there are also a ton of affordable and delicious pre-
mixed baked products (brownies, muffins, cakes) with very low
carb and sugar contents. I find many of these at Trader Joe's
in Emeryville or you can even find them on line at
Drugstore.com. Trader Joe's also has GREAT low-carb p! asta
(imported from Italy). And, of course you can invent your own
recipes, using soy flour to replace white flour and sugar
substitutes to replace sugar or honey.
Good luck and enjoy the excellent low sugar options that are out there
for your dad
Hermann's Chocolate Lab on Main Street in Templeton, CA
has a huge selection of really yummy sugar-free chocolates.
You could probably mail-order some! I've given lots to
diabetic relatives and they've all said they were delicious.
anon
I'm a recently diagnosed diabetic myself, and have become somewhat
of an expert on this. It's pretty complicated.
Most grocery stores carry a very small selection of stuff specifically
for
diabetics -- and not much of it is what I would call ''good stuff.''
There are
usually sugar-free candies, some reduced-sugar cookies, ca! ke mixes,
and a few other things. In addition, many grocery stores now feature a
''low-carb'' diet section (Atkins has been helpful for us diabetics),
with
somewhat better stuff, including those ''meal replacement'' bars (in
flavors like peanut butter chocoloate), which are OK. Also, most
supermarkets have no-sugar ice cream.
You can also find no-sugar stuff at places like Godiva candy stores.
A couple of things to note: A lot of the Atkins stuff does contain
aspartame, which there may be reasons to avoid.
I can't eat either the no-sugar chocolate or ice cream, as it tends to
be
sweetened with sugar alcohols (listed as sorbitol, malitol, xylitol,
etc.). If
one eats a lot of this (and if I eat any), one can get stomach cramps
and
diarrhea.
There doesn't seem to be a lot of negative press on Splenda (yet); the
very small amount of stuff I've seen has been vague, and not really
based on solid research. So for now I'm letting myself use it.
My best luck has come from making stuff myself. There's an additive
called ''Stevia'', 300 times sweeter than sugar, natural, and it has
been
used in Japan for years and years (apparently with lots of safety
studies
etc.). It works pretty well, although a lot of it does tend to make
things
taste funny. There are some odd politics surrounding this, which have
led to it not being able to be sold as a sweetener in the US; instead,
it's
sold as a ''dietary supplement'' in health food stores.
One can also use sugars that are mostly or entirely fructose (you can
get
either plain fructose or some stuff called Agave syrup at Whole Foods,
in
addition to Stevia). While these are still sugar, they are apparently
absorbed by the body more slowly than table sugar, and so somewhat
better for you. Also, they are sweeter so you can use le! ss of them.
If you'd like, I can send you some information provided by my
nutritionist,
as well as some simple recipes for sugar-free dessert items. Feel free
to
email me if you'd like this.
kd
My son has type 1 diabetes, so I have had a very steep learning
curve re: carbohydrates, glycemic index, and the body in general
in the last couple years since his diagnosis. The first thing
to note, and make sure your dad knows this, is that even most
sugar free foods still have carbs. They will raise the blood
glucose, although probably more slowly than their sugar loaded
counterparts. You can find sugar free candy of all types,
including popular brands like reeses, red vines, etc. in Longs
near the pharmacy, and sometimes in grocery stores in the candy
aisle. You can also ofte! n find sugar free juice and cookies in
most grocery stores, and the packages will state that they are
sugar free. Look at the carb info, though. Trader Joe's has a
brand of sugar free candy in their candy section. They also
have sugar free juice and obviously, diet sodas. I do
reccommend splenda, because is tastes better than aspartame, and
so far I haven't heard any negatives. I will look at the
responses you get on it, because I'd also like to know if there
are any cons to Splenda. You can buy it by the box in
Andronico's, and probably Safeway, too. Sugar free jello is
actually carb free. Type 2 diabetics have a different situation
than those with type 1 because often they don't take insulin,
but treat the disease with excercise and diet. My son can eat
sweets when his bg is in range because we can just give him the
necessary insulin through his pump. You dad proba! bly can't do
that with as much success. I hope he can make the lifestyle
changes needed to keep him relatively healthy and find a way to
eat some of the things he wants to while keeping his bg in
range. He's lucky to have your support! Good luck. Alicia
Alicia
Get thee to a dietitian! Most diabetics are really to eat foods
that all of us are eating. If you choose to use ''sugar-free''
items, they are not necessarily completely free. Some are still
high in calories or fat, some may cause some gas/abdominal
discomfort, some may have additional carbohydrate that will
raise blood sugar. The American Diabetes Association has a
website, a good place to learn more or find out books that will
be helpful. The websites for the artificial sweeteners also are
a source for recipes.
good luck
May 2002
I was just diagnosed with Type 2 (Adult onset) Diabetes. I
immediately started eating strictly by the ''Zone'' diet
guidlines. I am having some major questions about the
way I should be eating and how my sugar level is doing
during different times of the day. HOWEVER, all the
dieticians I have talked to (mostly at Kaiser) totally subscribe
to the classic ''pyramid'' and way more carbs than my body
can tolerate. Does anyone know of a good nutritionist/
diabetes educator who has alternative knowledge? Does
anyone have a word of advise for a beginner like me?
Thanks!
Are you attempting to manage your diabetes via diet only? If so,
diet guidelines recommend a range of carbohydrate intake (45-55%
of calories from carbohydrate). Dietitians are urged to
individualize diet recommendations to accommodate personal
preferences and lifestyle with the ultimate goal of achieving
good diabetes control and maintaining healthy cholesterol levels.
I am a registered dietitian and practice from this perspective.
A new diabetes diagnosis can be overwhelming-learning about the
disease, the diet guidelines, blood sugar testing,and the huge
emotional impact of having to manage a chronic disease.
I sincerely hope you find someone to work with
that you feel comfortable with. Good luck.
Arinna
My sister has type 2 diabetes and was horribly handled by
nutritionists pushing carbs - making her worse and worse. It was
a nightmare to watch her get such bad advice and see her blood
sugar climb. Thank goodness we recently found the IDEAL help!
There is an amazing nutritionist at the UCSF Mount Zion Med
Center in SF - She is the head of the Diabetes Education program
and she is diabetic herself. She has completely turned my sister
around, helped her lose weight, lowered her blood sugar down
into normal ranges and basically saved her life. Her name is
Beverly Mack and her phone number is 415.885.7760. I don't know
how your health insurance will handle this but I can tell you it
is well worth the cost to see her on your own - a small
investment in your long term health. My sister travels all the
way from Napa Valley to see Beverly. This carb thing is real
problem for those of us with type 2, and the classic pyramid is
completley wrong for us. You are so smart to be looking for the
right guidance! I am seeing Beverly for weight loss and to
lower my blood sugar which is beginning to climb as I get older
and have stayed overweight for too long. I do hope this helps
you. Please feel free to contact me.
Debby
To reply to the person just diagnosed with type 2 diabetes, I'd
like to suggest subscribing to Diabetes Interview
(www.diabetesinterview.com). This monthly publication deals with
both type 1 and type 2 diabetes and frequently has very good
articles on diet and nutrition. It also has a question/answer
section where readers pose different queries, some relating to
nutrition. My daughter has type 1 diabetes and her diet is
something we struggle with constantly. There seem to be different
schools of thought on this and seemingly no one diet works
equally well for everyone. I don't know much about the zone
diet--if it's the diet that is high in protein, you may want to
research it further as a complication of diabetes is kidney
disease and eating too much protein stresses the kidneys.
Diabetes seems to be a disease that has many idosyncratic
features that vary from person to person. You will find that
certain foods will raise your blood sugar very high, very
quickly. For instance, my daughter should not eat bagels or
grapenuts, because it's too hard to keep her blood sugar value in
an acceptable range. On the nutrition front, our sense is that
the best diet for diabetics is also a very healthy diet for
everyone in general--the basic food pyramid. We have found,
though, we get better control if our daughter eats meals that
have a blend of fat and protein with the carbohydrate. Whenever
she eats meals with minimal amounts of fat/protein (e.g., pasta
with veggies, bread, fruit) her numbers spike. The fat and
protein slow the absorption of the carbohydrates.
I applaud your efforts to find a good nutritionist. I also
encourage you to read as much as you can. They don't call
diabetes the ''thinking person's disease'' for nothing. It's quite
a challenge, and I wish you the best of luck.
anonymous
I have had good success with a newly-diagnosed Type II diabetic using diet,
digestive support, supplements, herbs, and life style
modification. RK Bernstein's book THE DIABETES SOLUTION suggests a
22-15-63 (proteins-carbs-fats) ratio to stablize
blood sugar, based upon the author's own experience both as a Type I
diabetic patient and doctor. Results have been decreased
insulin,
reduced fatigue, neuropathy, vision disturbances, and urine output.
Nori
I was diagnosed with diabetes ten years ago; I had symptoms for
ten years before that but didn't realize what the symptoms
meant. Now I've been in control of my diabetes for about six
years.
FWIW, I agree with you that the food pyramid does not work for
everyone and it has way too many carbs for this diabetic. My
experience, though, is that the Zone diet is similar to a
diabetes diet in some ways but problematic for many diabetics in
other ways.
Also, the hardest things about diabetes are not the blood tests
or the shots. The hard parts are getting past denial, finding
resources that actually help, and living in a world that neither
understands nor accommodates living with diabetes.
Usually, some doc tells you that you have diabetes, hands you a
pamphlet, and sends you off to flounder about on your own. I
went to three doctors and two nutritionists before I found
someone who seemed to be paying attention and sending me to
resources that worked.
Everything I learned about successfully managing diabetes I
learned while I was pregnant, when I was constantly under the
watchful eye of skilled specialists including a diabetes
dietician who monitored my diet weekly. During that time, with
their constant attention and customized treatment plans, I
learned a tremendous amount about diabetes in general and my
diabetes in particular.
It turns out that everyone's body is different, and everyone's
diabetes is different. But my experience is that most medical
people are trained to offer only ''cookie cutter'' treatment
plans. They also often seem jaded, because, I suppose, it gets
discouraging when most diabetics don't fully address managing
their health. So, typically, all you hear is vague, generalized
advice to get more exercise, lose ''even a few pounds,''
and ''count carbs'' (a concept that wasn't totally clear to me
until I met weekly with that one wonderful dietician).
By keeping a daily journal to track my blood sugar, meals, and
exercise, then going over my journal each week with committed
specialists, I learned a lot about how diet, exercise, and
medication worked together in my specific body to control my
diabetes.
Unfortunately, that kind of personalized care is usually
unavailable to non-pregnant diabetics. To get good advice, you
have to work at ferreting out resources and people who will be
straight with you and see your case with fresh eyes.
One great resource: The Diabetes Center in Berkeley has a
terrific *free* drop-in support group. (Stop by or call them to
get the schedule.) There, you'll find other diabetics who can
tell you who's who and what's what in the bay area.
The Diabetes Center also has some good people -- the support
group facilitator (Mary Kelly) and the diabetes educator (Lori
Lorenzo) are both very smart and very clear.
The dietician there (Sue, I think) is more the jaded, cookie-
cutter-solutions type. I felt that had I listened to her advice
it would have been five steps backward for me.
As mentioned, the support group is free to anyone with diabetes;
you don't need a referal, just drop in. I don't know if Kaiser
offers referrals to the Diabetes Center, but maybe they have a
similar facility and maybe you'll decide to spring for a
consultation there.
Also, the book ''Diabetes for Dummies'' is really the best
comprehensive primer I've seen anywhere. Skim through it and
you'll be well on your way to understanding how to face your new
challenges.
Good luck, and remember that your health is yours, not your
doctor's. By owning your diabetes and taking care of yourself,
you can minimize the effects and build habits into your life
that will become as ordinary as brushing your teeth and combing
your hair.
Anonymous
I only have experience with diets for diabetics when I was
pregnant. I remembered they do make us eat too much carb, the
reason was then because I was pregnant and I need more calories
than usual.
I went to 3 different endocronologist (with a nutritionist on
staff) and they gave me different suggestions which some was
very misleading. I finally went to California Pacific (in San
Francisco) diabetics center, I register as a patient of Dr.
Elliot Main. They are very helpful and the nutritionist are
specialist in dealing with gestational diabetics, I can tell
they have a big staff and can get a little unorganized with the
appointments. But I think I wouldn't know how to deal with the
diet without them.
At the end, you are the one who will figure how much carb you
need a day. As long as, you balance them with enough protein.
That's what I learned from the expert anyway, to create my own
menus. You have to be proactive on what you want to have in your
diet otherwise they gave you standard diet which might not work
for you. I tend to eat lots of fruit and I don't like cheese, so
that was a little difficult to work into. But I found a good
balance diet that I like and it work out. Good luck!
purna
Hi --
There are many different approaches to treating diabetes
naturally. One diet that seems to work VERY well for many is
called the Bernstein diet -- basically low carb, high protein.
Dr. Richard Bernstein has written a book called Dr Bernstein's
Diabetes Solution which is pretty widely available. He also has
a website. Besides diet, there are many nutrients and herbs that
help people manage their diabetes successfully without
pharmaceuticals. You may be well served by visiting a
naturopathic doctor in the area who has worked with people with
diabetes. Check out www.canp.org to find someone near you. Good
luck!
Tara
That's weird! I'm a type 2 diabetic, and I've always been on high
protien diets. I don't have a good regular nutritionist, but the
one I had whileI was pregnant could probably refer you. Her name
is Prenatal Diagnosis Center (415) 600-6400, I was seeing Trudi,
she's awesome and I'm sure that she can hook you up!
Rachel
Jan 1998
My 4.5 year old was recently diagnosed with diabetes. We are doing fairly
well with our current preschool situation with respect to monitoring her
blood sugar levels (at lunchtime) and making sure she eats the right foods
at the right time in the right amounts. Our big concern is what to
expect/request when she starts kindergarten in the fall. If anyone is a
parent of a young diabetic child, I'd love to hear from you. Any advice or
suggestions regarding school, afterschool programs, sports, principals,
teachers, etc., would be greatly appreciated. I currently work fulltime and
don't know whether I should prepare to cut back my hours in order to make
sure I'm more available in case the need arises. Thanks.
A friend's daughter was diagnosed with diabetes at 6 yrs of age. They
recently attended a 4-day workshop at UCSF geared toward pediatric
patients to help them and their families cope with living with diabetes.
They were very impressed with the quality of support available through
the University of California San Francisco Diabetes Center (415)
353-7789. They worked with and really liked Steve Gitelman (he's a
pediatric endocrinologist) and Maureen McGrath (a diabetes educator who is
Type I herself). The center has a tremendous number of resources.
Leslie
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