Chronic Fatigue Syndrome
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Chronic Fatigue Syndrome
Feb 2005
I am looking for a primary care physician, preferably female,
in or near the Berkeley area. If anyone knows of one who has
experience with Chronic Fatigue Syndrome, that would be even
better! I am on MediCal/Medicare. Thanks!
[no replies received]
Nov 2004
Does anyone know a specialist that deals with Cronic Fatigue
Sydrome? If you know someone near La Morinda that would be the
best. What type of doctor or specialist would you recommend?
sleepy mommy
There is a wonderful endocrinologist in Lafayette named Rachelle Halpern who has
an interesting approach to Chronic Fatigue (I believe she looks at mercury toxicity as
a possible cause) and I know she's had great success in treating this disorder. I
don't have her phone # here but I'll try to post again once I find it.
i can recommend jeffrey mandel in hayward. but if you do an online search for
immunesupport.com you can get their list of ''good docs''...READ all you can about
CFS/M.E.--Paul Cheney (in NC)!; Tetelbaum's book & web site, listing practitioners
who have taken his workshops. Read the Nightengale book edited by Brian Hyde,
Canada--a magnificent collection of research that really legitimises the disease--
Myalgic Encephalopathy. Read ''Running on Empty.'' Get off caffeine & sugar. Some
people get results from the Ultra-Clear detox protocol. Pay close attention to MD's
who want to give you antidepressants--read Dr Chaney's words on this, especially
long-term use. I'd also be wary of any of the ''speeds'' or meds for narcolepsy until
you've tried just about everything. Xyrem works for many, but finding a doc willing
to prescribe this is not easy. There is a new antidepressant, IXEL or MILNACIPRAM,
not available in this country, but can be obtained--designed especially for people
wth FM, particularly for pain-again, beware long-term. I've had CFS/M.E. since 86 &
my very best response has been from acupuncturist Jenny Crissman. Alternative
medicine & therapies work really well for many with CFS/ME/FM. Amsterdam has a
fabulous clinic. Read, be super informed, & don't let anyone convince you this is not
real. If an MD or any health care practitioner is not willing to be creative, then find
someone else immediately. Kaiser's care for people with CFS is HORRIBLE; I can tell
you horror stories of scary, could-have-killed-me-if-i'd-not- known a lot (last KP
care 2001.) Dr Goldstein, LA area, is well-known in the field...find a support group;
subscribe to the CFS newletter from national cfs care--they are extraordinarily
reliable & THE BEST SOURCE OF CARE & INFO!!!! http: // www.cfids.org/...if U R
newly diagnosed, be sure you are practicing ''aggressive rest therapy.'' it's a
complicated, complex, & frustrating process finding help & therapy...many
treatments seem to work for a while, then stop....be sure you are adequately tested
& treated for thyroid.....check out piracetam for cognitive function--it's helped me
and many others--you may have to get it compounded....be aware of Multiple
Chemical Sensitivities
oonagh
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