ADD and School-Aged Kids
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ADD and School-Aged Kids
March 2009
Has anyone taken their child to UC Berkeley's School of Optometry for a
Binocular Vision Test recently? Planning to take my 6yr old
daughter there. Her school had a doctor from UC Berkeley who did the eye
exam and had mentioned about Binocular Vision. I've taken her to my
regular eye doctor, who said she was fine. She?s not doing academically
well in school, so trying to see if there's any relation in vision. I
took her to the doctor and was diagnosed with ADD, just by the
questionnaire completed by the parent and her 1st grade teacher. That?s
it? Just by a questionnaire? Does anyone know what other tests there to
test her? I?m not sure what direction I should start looking into. I've
written an email to her principal to see if the school psychologist can
give her a test. My daughter now freaks out when you tell her to do
homework and hates school. She use to love preschool & most of
Kindergarten.
Sylvia
My son was also referred to have the binocular vision testing done when
he was about 6. His teachers at school suggested he be evaluated
because he wasn't doing well academically. The binocular vision
testing was part of a larger diagnostic work up (he was ultimately
diagnosed with ADD).
The binocular vision testing is very thorough and somewhat exhaustive
at UCB, and they have a pleasant manner. The multiple tests look for
any problems with visual perception. My son tolerated the tests well,
as UCB works well with kids.
Good luck
I took my daughter to the UCB Binocular Vision Clinic two years ago. I
was very impressed with the process and the recommendation they made.
My daughter is a good student who's a terrible speller. They found her
to be perfectly normal with no vision or attention issues. I also took
her to the Linda Moode Belle center in Berkeley. It was probably
overkill but I felt like I had dotted the i's and crossed the t's when
I had both opinions.
Best of luck to you
My son, age 10, just finished testing at UC Binocular Vision. They
found all of the same issues his ed therapist had found. We are in the
process of getting testing done through the school district. Once we
have that report we'll go back to UC to begin therapy. The supervising
professor at UC encouraged us to wait so that we wouldn't have to pay
for them to do certain tests or initiate therapies that would be
done/included by the school. Unfortunately that clinic is incredibly
busy... we had to wait more than two months to get in initially, and
had basically no choice with regard to day or time. Also, this is the
second time we've gone through testing there. The first time was three
years ago and the results were ''normal'' however I got the impression
from the professor we worked with this time that the screening done on
the weekend (when we went) is less thorough than that done on the
weekdays. Perhaps some of his issues would have been caught sooner if
we'd done screening on a different day, but honestly I think he was too young then for
any of the screening to be effective. There is a huge range of what is
developmentally normal at 5,6 and 7. It's just really hard to tell if
there is a learning disability or if the problem is attention, or if
the kid just isn't ready yet, but will be in six months. My son was
within normal ranges for almost all of the tests he did, including
those with an audiologist and testing done by a private ed
psychologist... it wasn't until late in second grade that we were able
to get any real diagnosis from any testing.
As for ADD... it is not uncommon for children to be diagnosed using no
other measures than a survey. Sometimes if it is done by a school
psychologist the child is also observed in class. I've spoken to one
who recommends brain scans, though I haven't had a chance to persue how
one would get that done. We waited about two years to do anything about
our son's diagnosis... it seemed arbitrary at the time, borderline at
best. The psychologist who presented the results had no credibility
since she couldn't even read the graph to us correctly... So we decided
to wait and see. This year it became obvious that the other kids aren't
''just like him''. It was impacting him socially and acadmically and
really hurting his self esteem, and since we'd tried addressing evey
other issue we decided to start medication... it has made a world of
difference already and we aren't even through experimenting wiht dosage
to see what is best.
Still trying to figure it out
I took my son to the binocular vision clinic, where they found trouble
with his horizontal tracking. We worked with a piece of software, and
over a period of a few months, his tracking became much better, and his
reading improved quite a bit. Shortly thereafter, he began to enjoy to
read. I don't know how much of that was him developing, and how much
of that was the help with tracking -- but it certainly didn't hurt, and
it wasn't that expensive.
With regard to ADD, just a couple of questionnaires seems like an
incomplete diagnosis. That would work as a screening test -- saying
that your child needed further evaluation, but not as a complete
diagnostic tool. It seems like you might want to consult with a
developmental pediatrician, developmental psychologist, and/or the
school psychology team at your school (you can get an evaluation
through your public school by formally requesting it, and I believe it
must occur within 60 days of the request). They usually do a very
thorough testing of your child, including IQ tests, academic tests,
classroom observations, as well as questionnaires.
In terms of your child hating school, some of it may be a mismatch
between how she learns and the teacher. You might want to do some
talking to other parents who have spent time in the classroom to see if
there's been any friction between your child and this teacher. My
child had trouble with the teacher in one particular grade, and it was
a total nightmare, for him and me. Since then, however, he has done
very well, loved school and the teachers, and all has been well.
Karen
Jan 2008
My 7-year old son has always been ahead on the learning curve,
was an early reader, has great fine motor skills, and good
focus. Recently, however, he has been having trouble
comprehending instructions at school and at home, and can't
seem to focus on any school related tasks (he does fine when
playing). He is struggling in school and with homework, and
seems to be forgetting even the simple things he has known for
years. His teacher is concerned that he has ADD. However, he
can focus intensely for long periods when doing legos, drawing,
or doing other non-academic activities. I get frustrated
helping him, because it seems like no matter what I say to help
him he doesn’t grasp it (and being frustrated with him clearly
doesn't help him). Should I be concerned or is this just a 7
year old phase?
confused and concerned
I am a first grade teacher and see that many boys have ADD-like symptoms
in this
age group which disappear later. This observation comes from many years of
experience. In my first years of teaching I would overreact to things
because I had
not seen enough children over long periods of time to know any better. I
would
refer kids to testing and nothing would come of it but that they were in a
phase,
just as you suspected. How many years has your son's teacher been
teaching? Has
she administered any testing for him? Has he been referred to any
specialists? If she
is making off-the-cuff remarks to you during conferences or in passing w/o
back
up data, this is a BIG no no. You never should say anything like this to
parents if you
have not gone through the necessary steps schools have in place for
correctly
diagnosing learning disorders like ADD first, then the parents should be
involved in
every step of the process for testing , creating individual education
plans (iep) etc. If
you are concerned, you can go get him tested somewhere on your own.
Don't be too concerned....It is probably a phase
first grade teacher
I hate to ask this, but have you ruled out boredom at school. If he's far
advanced, I
imagine he can think circles around most of the kids and probably is his
teacher
too. School is often not a good fit for the genius and genius's often
fare as badly as
learning disabled in school. They just get too bored.
My husband's mother told him to watch his teacher and pretend that he was
listening. He said that helped.
I don't know if there are alternative programs for your son, or different
school
possiblities?
Good luck
ADD or is school just really boring? It's numbing to be told what to do
and when to
do it for 6 hours a day, constantly supervised, constantly corrected.
Perhaps it's
deadening his spark.
You did say that his attention is just fine when he's interested in the
task at hand.
I'd stick with that observation and ask the school to change, not him.
The only other question I'd ask is, ''Is he depressed about something?''
Best of luck,
Elisa
Is your son getting enough sleep? Maybe his sleep needs have
changed and he needs more. Our very bright son went through a
similar phase, we were puzzled but realized suddenly one day his
sleep had been getting disrupted on a regular basis. We made his
sleep a priority - in second grade he would go to bed at 7:30
p.m. and sleep til 7 a.m. - and things turned around literally in
a couple of days.
My boy needs his sleep
Sept 2007
I have a wonderful little boy who just turned 6. Since he was in
preschool teachers have been quick to mention they think he has
ADD. I've been reluctant to jump to this conclusion because of
his age. Boys tend to mature slower and be impulsive. I spent
some time volunteering in his Kindgergarten class and quickly
noticed that my son was not as ''engaged'' during reading time when
the teacher was talking or singing, had a hard time staying
focused on his work, and was doing very poorly at socializing. I
had some talks with his pediatrician over the symptoms and even
though they do not generally diagnose them until they are 8 he is
showing signs of ADHD.
Here is where I am stuck. He is 6. He is a boy. He is above
grade level in math and reading. So, there is not a learning
disability, but he is really struggling with his actions (he
tends to have poor impulse control), his transitions in the class
are very difficult for him, he keeps telling me that ''he was in
class and his mind made him think of (insert 50 random things
here)'' and that he struggles with concentrating. I was amazed
that he was able to communicate that with me. Although, it means
that it was on his mind too. I'm careful not to mention things
in front of him. I don't like labels, and I don't want him to
label himself either.
I want to know what I can do to help him, but not overhelp him.
I'm not sure if he needs a 504 plan. I'm afraid of him getting
labeled and having that carry over and the teachers
discriminating against him because of it. Or, him being singled
out in some way and not feeling like part of the class. I'm
really confused because, having not been through this before I
have no idea what to expect, what works, or what else to try.
This is where I plead for help. Any advice will be consumed and
devoured. I want to be my child's advocate. I love him dearly
and want him to succeed in life. It just takes one step at a time.
eastbaymom
Hi there, I almost feel like this post is a flash forward for
me! My boy sounds very similar to yours in terms of poor
impulse control. Tack on trouble with transitions and its him
to a tee. Anyway, mine is still in preschool, with another year
to go before K, but we already see that his social/behavioral
maturity level is a little delayed - not ADD or ADHD, just not
what teachers want in school. Academically he's above average.
Anyway, so we took him to see a developmental pediatrician
whose advice to us was to hold him back from Kindergarten or
have him do it twice, so that he could catch up developmentally
to where he is intellectually before he hits 1st grade. We
don't want to hold him back or have him repeat K twice, so
we're exploring a middle ground - montessori. Montessori
schools don't have grade levels per se, and the curriculum is
child centered. This means that the teacher will assess my
child and provide him with curriula that challenges and
interests him. It also means that if he has to do an extra year
of school before Kindergarten, it won't be weird for him. He
won't be held back while the rest of his friends go off to the
next grade.
I wish you well and good job for trying to figure out
alternatives to having your child diagnosed with a learning
disability - especially since it's possible that he just needs
a little more time to catch up socially.
anon
So many of us have been right where you are and can relate. I will
get right to some quick advice. (I have a 12 year old ADHD boy and a
10 year old year with ADD).
By the age of six, you can certainly have him tested. This is
really the
first and most important step. A professional can sort through the
difference between ADHD and just a ''boy.'' In our case, it was very
clear
cut and almost off the charts. We retested at age 9 with a different
person and same results. In our case, medication was and is essential
for daily functioning. There is so much to read and so many options.
Medication isn't the only option, but it is often a part of an overall
solution. My son really didn't know a label until quite recently.
However,
we have worked with his teachers very successfully since 1st grade and
they have known of the diagnosis. Overall, better for them to know and
work with it than not (although I struggle with the same concern of
labeling).
If it turns out that he does have it, there is lots of help out
there for
both of you. They say one out of nine kids may have this. Maybe
environmental? In our case, both the dad and grandmother clearly have
it, so genetics is at play.
My main advice, get into the subject. Find out what he really has
and
then you can create your game plan. Good luck!
Anonymous
My daughter has almost the exact same symptoms, is a high scorer
in math and reading, etc. She is now 9. We've been dealing
with all of this since age 3. I am reluctant to put her on
medication but her distratability and inability to sit still is
affecting her school work.
This is what I did. I spoke to our naturopath and we decided to
do neurotransmitter testing on my daughter through
NeuroScience. It was just a urine test. It took 3 weeks to
process and we found out that she has some fairly serious
imbalances. She's on 3 different supplements and the difference
is amazing. It's not fixed yet, but we are closer. She can now
sit down and pay attention for much longer periods of time. Her
self esteem is coming up a lot as well. The other thing I did
was I found her an accelerated program at school. The whole
school is an accelerated program (I changed her schools). They
move much faster than a traditional school and she is doing SO
well. She's never bored in school (do you hear that?) and she
likes going to school. Those two changes have made all the
difference in the world!
Paula
I would start with an assessment. Once you have some more
specific information about what is (or isn't) going on with
your child, you can figure out what the best course is.
I've been through this with both of my kids -- it's expensive,
but well worth it. My son was also 6 when issues arose, we had
him evaluated, it was ADHD plus other things. My daughter was
also evaluated a couple of years later -- no syndromes, but we
got great input from the psychologist on how to parent this
particular child.
I would recommend Dr. Carina Grandison (sp?) at Children's
Hospital (she evaluated our daughter).
anon
Your son and your concerns sound a lot like mine. My son had
behaviorial and social difficulty at the same age. I struggled
to figure out what to do. And, I was concerned about having my
son pulled out of class and labeled.
After numerous discussions with our pediatrician, we took our son
to a developmental pediatrician for evaluation. Honestly, this
wasn't terribly helpful and cost a lot. We learned our son has
some of the qualities of ADHD and Aspergers kids, but did not
receive a firm diagnosis - he's borderline. The pediatrician
confirmed our concerns and observations about our son, but didn't
add much to our understanding of his behavior or approaches to
handling it. Although, she did make us aware that impulsivity is
an element of ADHD and can contribute to social difficulties.
We ended up having our son assessed by our public school speech
therapist (for language pragmatics/social skills) and
occupational therapist. Some of the assessment was observation
or in-class and some out of class. The speech therapist worked
to minimize the loss of class time. The kids in his class don't
seem to view visits with the speech therapist in a negative
light. The results of the assessment and IEP were not
surprising, but thorough and provided measurable goals. My child
was recommended for the gifted and talented program and other
services to address his social difficulties. We weren't
pressured to accept any services. I am finding that the
assessment and IEP are a good place for us to start conversations
with my son's teachers. They lend legitimacy to the idea that my
child needs support socially and behaviorally. I spoke with a
number of teachers about the possibility of stigmatizing my son
by putting him into the school evaluation system. They all felt
that he would not be harmed or stigmatized by the process and so
far, that has been our experience. Overall, I'm happy with the
public school process and found our speech therapist to be a good
advocate for our child.
We also are planning to have our son attend a private social
skills group this year. They do their own assessment of your
child. Although we haven't started the weekly classes, I have
been thinking that I wish we would have started with this
approach. They would have told us if he needs more, less, or
different help. And, we would have started working to build
social and behavioral skills immediately instead of doing so much
evaluation. Good luck.
Anonymous
The results of a large study was just described recently in the
New York Times. Kids who ingest artificial colors and
preservatives in foods demonstrated hyperactive activity like
ADHD afterwards. Try eliminating processed foods like this,
especially in his lunch. He sounds like a bright boy. It may
help control his moods and behavior. The article is here:
http://www.nytimes.com/2007/09/06/health/research/06hyper.html
Good luck!
I'm responding as both a psychotherapist and an adult with ADD.
While it is totally understandable that you don't want him
labeled, without help he will have unneeded difficulties. It's
important that your son receive the adjustments that will help
with his attention difficulties. A good book to start with is
''Delivered from Distraction.'' I also recommend MarRem
Remington, a psychotherapist in Oakland who has a background in
special ed and specializes in assessments and consultations as
needed with schools. Parents are fully involving in the process
and she has many helpful suggestions for home and school. Her #
is 510-835-4357.
Suggestions
Jan 2007
I was in my salon the other day and spoke with someone who
has a daughter with the same type of problems as my
daughter. some were your typical, but some hit right on
the mark. She said her daughter was tested and was found
to have inattentive ADD disorder. She was givin meds and
went from a majority of D's on her report card to A'S.
Any input or Recommended physicians who specialize in this
hard to detect type of ADD.
Ray
Clearwater Counseling and Assessment Services, in Oakland,
offers comprehensive psychological ADD evaluations, which
include a school observation, for quite reasonable fees. Attention
Deficit Disorder is not a medical condition, and it is best assessed
by a psychologist rather than a medical doctor, although of course
an MD needs to prescribe any recommended medications. Often,
symptoms of ADD can be treated behaviorally, with medication
added only if there isn't satisfactory progress using behavioral
interventions alone. Visit Clearwater's website:
www.clearwaterclinic.com or call Dr. Sharon Witkin at 596-8137 for
more information.
Sally
ADD is a medical disorder that has a higher genetic basis than any of
the other psychiatric disorders (including schizophrenia) and is primarily
treated with medications. I am a psychiatrist who treats UC Berkeley students with attention
deficit disorder. ADD can be with hyperactivity and/or impulsivity but these are not
necessary for the diagnosis. The inability to focus must begin before age 7 and interfer with
two areas of functioning such as school, home life and social skills. For children the
treatment of choice is medications and this is provided by pediatricians and child
psychiatrists. Educating the family and teachers how to work with the child and tutoring as
needed to keep the child up to grade level are also important. For adolescents and adults
treatment choices include medications and cognitive behavior therapy.
Depression, anxiety, substance abuse, bipolar disorder and post
traumatic stress disorder are sometimes co-morbid with ADD so the treatment of
people with ADD is usually complex.
anon
In the work I do we have a different perspective on ADD.
ADD, whether inattentive or hyperactive, stands
for ''attention deficit disorder.'' It implies that there
is a lack of attention. What if there was actually plenty
of attention and it was just being paid to something other
than the outward task at hand? We all have priorities,
what we pay attention to first, and our neurological
system is no different. We will all make sure we are safe
and protected before we deal with anything else. If a
person's tactile system is particularly sensitive it might
be painful to sit in a chair to focus on the lesson in
class, therefore they might squirm to stop the pain in
order to pay attention to the lesson. Likewise, if
auditory or visual systems do not give clear information,
a person might ''space out'' in order to attempt to make
sense of what is going on.Meanwhile they miss pieces and
look like they are not paying attention. Ever have a
difficult time understanding a speaker and get stuck
trying to figure out what they said and by the time you do
the speaker has gone on and you are completely lost? You
weren't being inattentive - you weren't able to attend to
what they were saying until you could decipher that. It
would surely affect your functioning if this happened all
the time! Inefficient or disorganized neurological systems
work harder to give messages that make sense to the
brain. Perhaps a more accurate name for this situation
would be APD or ''attention priority disorder.'' Once the
neurological system is organized the priorities shift and
the person can more readily attend to the outer world.
If this perspective intrigues you, please contact me at
925-934-3500 and we can discuss it. You can also learn
more about this approach, called the HANDLE perspective at
www.learningandgrowth.com.
Best of luck as you look into this complex subject.
Sindy
I'm a Berkeley psychotherapist working mainly with teens who have
learning disorders of one kind or another. Many of my clients have
Attention-Deficit/Hyperactivity Disorder (ADHD). ADHD comes in two varieties.
There is ADHD, Predominantly Hyperactive/Impulsive Type, and there is ADHD,
Predominantly Inattentive Type. Most specialists now consider the
Inattentive Type of ADHD to be a different disorder altogether, not just a
sub-type. ADHDI (as it's often called) is hard to diagnose, because people with
ADHDI don't show outward signs of distractibility; that is, they don't jump
up and down, wiggle, tap pencils, interrupt people, talk ceaselessly, and so
forth. They may appear to be quite calm, composed, and focused; but inside,
their minds may be racing aimlessly from one thought to another. They are
highly distractible: so much so, that they often don't seem to hear what is
said to them or to be aware of what's happening around them. They find it
hard to get started on projects or complete them. They do things quite slowly;
overall they are characterized by what some experts call ''sluggish
cognitive tempo.'' In moments of stress they may slow down rather than speed
up; occasionally people with ADHDI may even fall asleep during important
final exams. Obviously this kind of ADHD can produce severe academic
problems, though it isn't as likely to produce disciplinary problems as the
other type.
I hope you'll find this very basic information helpful. Please let me
know if you have questions.
Caroline
I expected to see tons of answers to this question, so I
held off, but so far the only replies have come from
therapists; nothing from parents! Yes, I have indeed
heard of inattentive ADHD -- we've been living with it for
a long time... ADHD comes in 3 flavors: primarily
hyperactive-impulsive, primarily inattentive, and
combined. Before you settle down with any particular
therapist or doctor with any particular approach, you may
just want to get some basic information. There are so
many good websites, but here are a few that I have found
helpful: CHADD.ORG - extensive information about all
aspects of ADHD; some very good basic information sheets.
MEDLINEPLUS.GOV - National Institutes of Health (I
think...); very authoritative and reputabile; just search
on ADHD SCHWABLEARNING.ORG - lots of very informative
articles on ADHD, as well as on other learning
difficulties. I hope this helps.
anonymous
June 2006
I would like some advice on hermal remedies for a 9 year old
diagnosed with add. We have evaluated her, and a very
conservative doctor diagnosed her add and wants to medicate
her. I have battled with the thought and have finally come to
the conclusion we need to do something. We are tutoring and
helping at home all the time. I just can't bring myself to do
the drugs. When she was little she was harrassed by my husband
for not eating well(he's greek) and since we've had her tonsils
removed, she eats great now, but is now calling herself
stupid. The biggest side-effect to all the add drugs is loss
of appetite. Other than the fact that I don't like the idea of
my child on a narcotic, even if I could do that, I don't think
she or I can deal with her not eating again and the negative
effects on the household.
Hopefully, being from the Walnut Creek area, all you great
Berkeley-ites could recommend some herbal remedies?
At my whits end
As a special educator, I feel strongly that you should listen to the advice of the
''conservative doctor'' that diagnosed your daughter's ADD. Think of ADD as television
white noise always on in your head. Think of the meds as a tool to help your daughter focus
enough to learn what she is being taught, such as appropriate behaviors, academics, etc.,
because that is what the meds are supposed to do...
help clear her head of all the white noise so she can focus. I hope that your doctor
recommended a good behavioral therapist/specialist who can help your daughter learn
appropriate behavior and how to recognize and cope with the symptoms of ADD, etc. The meds
get a bad reputation because often people expect that the meds will cure the child as with a
physical ailment. With ADD it isn't true... it just helps focus the child's attention so
she can be taught. She still needs to work with an expert who can help her identify her
inappropriate behavior and help her with strategies to manage her ADD. As she gets older,
and even as an adult, she will still have ADD and she will need to be able to manage herself
in order to have a satisfying and productive school experience, adult life, etc. She won't
outgrow her ADD. ADD is the result of an inherant difference in the chemical make-up of the
brain. I have never heard of it being successfully managed by herbal remedies. And yes, the
meds have side effects, but they can be managed well with vigilance and the help and
supervision a good doctor with lots of experience with ADD. You owe it to your daughter to
carefully and thoughtfully consider this... her education and the rest of her life is at
stake.
anon
I know you asked about herbal remedies so you may need to disregard my note. I am a
clinical child psychologist with some expertise in the treatment of girls with ADHD. I
completely understand your hesitancy to treat your daughter's ADHD with traditional
medicine, especially given your concern about her appetite. However, let me just add that
there is a good chance that stimulant medication will be quite effective, will help her in
concentrate in school, will help her make and keep friends.
If she is concerned about being ''stupid'', stimulant medication is much more likely to help
her to change this self-perception than any herbal remedies are. And please remember that
herbal remedies have psychotropic effects too (which is why they would have any impact at
all), but they are generally untested in terms of their effectiveness and side effects.
Also, FYI, ADHD is never treated with narcotics. It is typically treated with a stimulant.
Stimulants are very short acting and are not addictive. That means within a matter of hours
you should see a positive effect on your daughter's behavior and there is little risk to a
short-term trial (e.g., a few days). If stimulants aren't effective or if the side effects
are intolerable, you'll find out very quickly and can discontinue medication. Good luck! I
know you have a difficult decision to make. Liz O.
I suggest that you consult several websites to get information about treatment - both
alternative and pharmaceutical. There is a growing body of scientific information about
AD/HD (or ADD) that would save you a lot of worry and help your daughter get more out of
school while the window of opportunity is wide open. I find that a lot of parents share your
concern about using stimulants and associate them with images of the seamy side of life.
There is an assumption that herbal or alternative remedies are somehow safer and don't
expose a tender child to moral turpitude. You can check out the results of well-designed
studies that measure treatment effects and choose one for your child that works reliably.
We know a lot more about what works for girls these days. The most important thing you can
do for your girl is to educate yourself about this disorder. Your husband may begin to
respect your authority on the subject and use fewer negative parenting techniques. There
are support groups and classes out there and you find out about them on these sites:
Schwablearning.org, chadd.org, help4adhd.org and adhdresources.org. There are more, but
these stick to the known facts, are open to considering the promising treatments (fish oil
for example), and are careful not to scare people! It's hard enough to know what to do
about AD/HD without confusing misinformation.
LL
I cannot answer your herbal question directly, but I do want to clarify one thing.
Stimulants such as Ritalin do decrease appetite, but you can counter that by feeding your
kid before their meds, and by avoiding the extended release types of medicines, the ones
that last 8+ hours. At one point my kid took 5mg of Adderall *after* breakfast, and although
her lunchtime appetite was suppressed, she would eat heartily by 2pm and during dinner when
the dose had completely worn off. Good luck.
anonymous
My daughter was diagnosed with ADD at 8. She was not a great eater and was of average
height but below the 10th percentile in weight. The developmental pediatrician, who had a
reputation for prescribing, would not prescribe meds for her because of her weight and we
were grateful for that at the time... although there were subsequent years when I would have
tried *anything.*
So I absolutely, positively know where you are coming from and you were totally right to try
behavioral modification first (and as well as anything else). BUT... your daughter is
coming up on the age when start falling off rapidly in school if the situation is not
corrected. I also have an adult friend with ADD who says, ''Even with their side effects,
finding a good drug -the right drug- was heaven and made my life so much easier.'' Since
you say your doctor is conservative --by which I hope you mean she doesn't prescribe at the
drop of a hat-- I really urge you to send your husband to the doctor with your daughter to
be educated on the issues... and then try the drugs. They are not forever, they are not all
the time, and if they don't help you can stop.
It always bothers me that folks are willing to try herbal remedies that have not been tested
and are often not administered by a licensed practitioner. We are, after all, talking about
a herb that will affect brain chemistry! Why should it necessarily be better or safer than
taking a known quantity in a pill?
As for my own daughter... she's in high school now and found her own solution in a strenuous
sport plus the maturity to stay on fixed, regular schedules. But it required a LOT of
parental committment and I still think we were awfully, awfully lucky that we were able to
keep her on the educational bandwagon until that happened.
ADD Mom
We have not medicated our 12 year old with ADD so far, but one thing that has helped a lot
is Omega 3 fish oil. We use Nordic Naturals Ultimate Omega capsules (cause they avoid the
fish taste cause they are in a lemon flavored capsule) and give him
2 in the morning and sometimes one after school. It has helped tons with his homework.
Another thing we have done is to give him a very healthy diet, without chemicals and
preservatives and we really limit the junk.
Good luck and I hope this helps
anon
I don't know about herbal remedies for ADD, but my daughter was diagnosed with ADD at the
beginning of 3rd grade when she was 8. We did opt to put her on Strattera--it is neither a
stimulant nor a narcotic. She is a picky eater, but her eating was really not affected by
this drug; she continued to grow well. She did well on the drug, and after taking the
summer off between 4th and 5th grade, she started back on Strattera for the first half of
5th grade to see if she needed to continue it. We stopped it during the winter break, and
she has been off it ever since and doing well.
rita
I was diagnosed with ADD at 15 and I'd like to share some of my experiences and suggestions.
Hope they're relevant!
I took ritalin and my grades improved, but I felt that it altered me quite profoundly.
Taking it was like being given crazy powers of concentration, but my ''spark'' was lost. Yet
the social and academic rewards for taking it were enormous, so I went along. In the end, I
learned to deal with my brain and attention span myself, which allowed me to stop the drug
(a relief!)
''Stupid.'' It is very easy to absorb the messages coming from doctors and schools that
there is Something Wrong with you. Your girl seems to have learned some of these lessons
already. Then comes that cycle where, the more you tell her she's not stupid, the worse it
gets. I don't think there is anything Wrong with your daughter. I feel it is key that you
create an atmosphere which lets your daughter be smart, and for that to happen, you and your
husband need to believe it first. So she learns differently from other kids. So what? I'm
sorry that it's hard for all of you right now, but ADD is not so bad. The real danger is
that she hears ''there's something wrong with you'' and ''take this pill, it will all be
better". I think that's a very dangerous lesson. Instead, what helped me was: ''of course
you're smart and capable. Now let's figure out a way so you can show everyone else.''
I think it is great that you recognize the need to help her, but I would try a lot of other
things before the drugs:
* More structure - having blocks of time assigned on a chart for different homework was
helpful.
* Move! Get up, jump, chew stuff, walk around the room, whatever; it really helped me focus.
My parents fixed it so that I was allowed to do this in class, too - great!
* Rewards for increased independence. My parents helped me a lot, but weaned me by letting
me know (gradually) that I was smart enough to work on my own. Then they just became the
homework checkers.
Maybe you could try to find some physical outlet for her, like a sensory gym where they
allow kids to race around and pillowfight, and such. Those are great.
Best of luck to you, and may you never lose patience with your bright, beautiful girl!
Fine Then, Better Now
If you doctor recommends ADD meds, I'd try them, before experimenting with herbal remedies.
If the meds work you will know what to expect of non-prescription alternatives. If they
don't work... she doesn't have ADD.
One dose of appropriately prescribed stimulant medication will do more to eradicate your
daughter's sense of being ''stupid'' than almost anything. My daughter's life was changed
with the first 15 mg dose of ADD meds... when she was 15. Within an hour she knew her ADD
was real, and could be harnessed --- and for the first time she really believed she wasn't
stupid... even though we'd been telling her for years that she was smart. She has taken meds
continuously since then, but not every day or all the time. As her study skill improve and
her impulsivity declines I predict she will not take them anymore...maybe 2 more years.
If we'd known about the ADD when she was 9, we would have done the
same thing then, instead of 6 years later...
For me meds for ADD are like eyeglasses for myopia -- I would be cautious about getting the
safest glasses I could and the ones with just the right prescription -- but wouldn't
deprive my child of glasses because they might have unwanted side effects.
I understand your concern, but weight loss or loss of appetite aren't always side effects,
and there are ways of dealing with either one if it happens.
ADD mom of a (smart!) ADD daughter
March 2006
My 7 yr old first grader has been given a definite diagnosis of ADD Inattentive. My
son is a highly compassionate, fun loving, creative ''space-cadet'' type, who gets
along with all his peers. All the adults he interacts with think he is a delightful
child,
including his teachers. I would not call him hyperactive, although in a classroom
setting he fidgets and seems unable to stay focused on classwork. The only
challenges we have encountered with him are in the classroom, where he seems
unable to stay on task.
The doctor who evaluated him did not observe any learning disabilities, and seemed
very convinced that a 5mg dose of Ritalin would greatly help him during those
morning hours in school. His learning would improve and we were not likely to
experience any negative side effects. We obviously want the best for our child, and
it
seems to us that if this is the case, if medication will give our child an immediate
benefit, that we should start treatment now.
I should note that the teachers and administrators at my child's school have been
very helpful and supportive, and they have already taken (and will continue taking)
all kinds of remedial measures to help our child in the classroom. However, there is
only so much that they can do, and they have expressed concern that in later
grades, when the learning is more challenging, and the workload is greater, our
child will become frustrated and his self-esteem is likely to suffer.
My question is to parents who have a child with similar characteristics diagnosed
with ADD: Did you try medication? Did it help? What were the negatives? I am
especially interested in hearing from parents who decided to wait a couple of years:
Do you see the benefits of having waited?
I know there are a lot of horror stories circulating about Ritalin, and I am not
interested in hearing about this, unless you have had direct experience with your
child. Also, please understand that we are not parents at the end of the rope who
are desperate to fix some behavior problems, this is not the case. We have been told
that the most effective treatment bar none for our child's problems is medication,
and we are wondering if there are any reasons why we should delay it.
Thank you!
Anon
I worked for quite some time with children with ADD and have a husband
who was diagnosed with adult ADD - though we now understand he has had
it his whole life. From my experience and from speaking with my
husband, I think this would depend on how your child views his life.
Does he feel ''different'' from other kids? does he feel like he
struggles when others are breezing through things? does he want to take
the medication? Medication does help, but it always works best with
behavioral interventions. There is some really well-written,
kid-centerd, literature out there as well as workbooks and games for
kids with ADD. Despite medication your son will need to learn coping
mechanisms to deal with inattentiveness and other symptoms that are not
helped by medication. It might serve your son to see if he succeeds with
behavioral interventions first then if he still struggles, try the
medication. With supportive parents (sound like you are) your child
will succeed!
anon
My child was diagnosed at age 6, but we knew something was up since he
was toddler. He is currently 11 and has been retested twice with severe
ADHD. To get to the point of medication, there is little risk to give
it a try. It goes in and out of
their system in the same day. Doctors like to start with ritalin. We
did and it didn't
work. My son became withdrawn and just wierd. So we tried Adderall and
we saw a wonderful difference. We have been using it ever since, upping
the dosage as need be. Every child is different and I don't recommend
medication for everyone. For us, it is the difference between night and
day, sanity and insanity - really!! I encourage you to give it a try
and see what happens. Personally, we couldn't and he couldn't survive
without it. P.S. We also do therapy and bevhavioral modification.
5 years experience
My daughter takes Ritalin and didn't know she was ADD (inattentive)
until 15. The only reason to wait before trying meds would be some
strange desire to witness more dramatic improvement... My daughter
actually thought she was stupid, and that everyone who told her
differently had missed something. We really didn't know what to think
just that things seemed harder for her than they should be. Some ADD
kids make it through to high school without treatment, but most suffer
a lot, needlessly, on the way.
At your son's age organizational or occupational therapy might be great
-- but I would not hesitate to give a 7 year-old the ability to be
''like everyone else,'' and that's what Ritalin has done for us.
I tell people that stimulant meds for ADD are like glasses for myopia...
some folks do fine without them...if they're only slightly out-of-focus
to begin, and can develop coping skills to deal with their challenges.
No questions here!
Our daughter was diagnosed with ADD inattentive type in fourth grade.
Although we were skeptical, we took the psychologist's advice and put
her on medication (Adderall extended release) primarily because of the
social consequences that were beginning to appear as a result of her
tuning out and then popping back into the interaction at the point she
left it only to find everyone else had moved on and thus being labeled
''slow''
or ''weird''. The effects of the medication were subtle, but still
obvious to us. She is now in high school, still on medication, and doing
pretty well academically and fine socially.
anon
We are two years further down the path -- our warm, affectionate,
creative and spacey son ''S'' is a nine year old in fourth grade. We
decided to put him on Ritalin last month.
Although his teachers have consistently remarked on his attention
issues, I resisted having him tested for ADD, in part because I was/am
dubious about pathologizing what seems to be a common and benign
characteristic -- i.e. dreaminess. Because S was basically mastering
all of the skills he needed to until this year, I hoped that he'd learn
to pay attention better as he grew up.
Fourth grade was a tough transition. As he is in public school, his
class went from 19 students to 27. Assignments, both in class and
homework, became more demanding, requiring more sustained effort. For
the first time, S became conscious and bothered that he was not
performing on some assignments as well as his friends. His self-esteem
was plummeting during the first semester, especially as his teacher was
big on timed arithmetic tests, which he found excruciating. He broke
down on several occasions, telling me that he was going to flunk 4th
grade.
So, we had him tested and diagnosed in November. His teacher made a
bunch of accommodations, which have helped, but she says that he's shown
marked improvements on math and writing since we began the Ritalin in
February (confirmed by my own ''blind''
test - a series of math quizzes on and off the meds).
I'm not crazy about my kid being on a stimulant, and I am comfortable
that we waited until the attention issue became a self-esteem issue for
him. If we could afford to send him to an arts-oriented school with
very small classes geared towards dealing w/ kids w/ ADD, I'd probably
do it. Reality being what it is, I've accept him being on the meds
because his attitude about school has improved dramatically, and he is
now keeping up or excelling in each subject. (BTW, he started on 10 mg,
which did nothing. He is now taking 15, which works fine.) Another mom
of a space cadet
When my daughter was seven, she also was diagnosed as having ADD. She
was unable to concentrate in school. She seemed to be in a fog, while at
the same time, hyper. Doctors suggested medication also. I decided to
eliminate some simple causes first. I had her tested for foods.
Although, the test showed she was not sensitive to any foods, I did
remove gluten grains from her diet and she did stop having ear
infections. The real turning point came when a friend of mine suggested
that I
read: ''The Yeast Connection''. I thought yeast was an adult female
problem. Come to find out Candida can be passed on to our babies during
birth. Well, it took some time before I could get a doctor to do a
Candida Albican antigen blood test, but when a test was finally done, my
daughter had highter levels of candida than I had. It has to do with
antibiotics and all the simple sugars our children get at a very young
age. The doctor didn't know exactly how to treat it, but we tried
several months of the diet (mentioned in the book) and some Nystatin.
What a change!!! The ADD symptoms dissapeared almost immediately. My
daughter is much older now and she tells me when she over-does the
sweets she gets a yeast infection and feels spacy. It's worth looking
into.
ADD and Candida connection
Concerta helps my child. Whether the medication works, how much you need
and what type will vary by the child so you just have to TRY it and play
around with it. The research is clear that this is an effective
treatment for ADHD.
Just remember it is called a drug TRIAL. You TRY the dosage and drug on
your child to OBSERVE if it makes a difference. You get your child's
teachers to fill out an ADHD questionnaire (like the SNAP) before
medication has begun and then at the end of the
1-2 week drug trial so you have an objective measure (although it may be
obvious that it helps or does not help). Your son sounds pretty
insightful so you can also ask him how it makes him feel. Ritalin is a
short acting drug that will leave your child's body FOREVER after about
8 hours. Giving your child a few pills is NOT like deciding to do some
type of irreversible surgery. If you do not like the drugs, you will
have the power to STOP or try a different dosage/type. If you decide to
stay on the medication then every year or so you will see what happens
if you stop the drugs and in order to decide if your child still needs
them.
I am sorry if I seem impatient, but I have seen this question so many
times and I really do not understand why people are so hesitant to just
TRY something. I do not see what the costs are in terms of trying this
drug--it is completely reversible. I think that there is so much angst
about medication for mental conditions and some hidden fears of
addiction that people do not realize this is NOT really a big decision.
You are not getting married to Ritalin, you are meeting briefly for
coffee!!! Then if things work out you will date a bit while constantly
re- evaluating your relationship!
My one caveat is that you do need a doctor who knows what they're doing
and is going to be systematic, knowledgeable and objective about what is
really a PROCESS. The MD shouldn't just throw the prescription at you
and run. They've got to check in with you and follow up and keep tabs
on your kid's growth.
best wishes
Having recently seen a therapist who owns a business specializing in
ADD/ADHD I must say that I warn you to procede cautiously when sending a
child to therapy, ie to meet with the therapist yourself first, and
gather your own opinion, before sending a child in. I am still going
thru self-esteem issues that arose DUE to his approach, not being helped
by his approach.
The therapist, himself having a disorder, which was I thought the best
part about him, that he admitted his own condition upfront, was often
late for the appointments and worst, very negative in his beliefs about
ADD/ADHD once you get to the point of ''diagnosis.''Upon ''diagosis''
which consisted solely of appointments with him and costly forms, he
then recommended that I continue on with their other ''services''-- such
as
coaching-- which of course, they so happen to offer. It seemed more of
a snag-you-in type of business than working with ones needs.
anon
Educating yourselves is essential, so read, read, read and visit
reputable websites. I suggest SchwabFoundation.org, helpforadd.com,
CHADD.org and ldonline.org for a few to start with. Watch out for
emotionally based information. There's lots of good science focused on
ADHD and you might as well benefit from it. You can be more of a help
to your child if you feel authoritative because you have excellent
information. Some big thinkers in this area (and they don't all agree)
are Russell Barkley, Peter Jensen, Ned Hallowell, Mel Levine and John
Ratey (the last two are my personal favorites). You could drown in the
amount of information, but you have to start somewhere. An ADHD
diagnosis provides useful information that can avert difficulty for your
child. It doesn't have to be sad, although it is a challenge for sure!
Best of luck.
LL
I have ADD/ADHD.
1. Local resources: local CHADD chapters, support groups etc etc can be
found at http://www.chaddnorcal.org. It's a great starting point and you
will be welcomed at our meetings!
2. Information: there's a lot of misleading information and scare
stories out there. I'm an engineer and like to understand how things
really work under the hood. The best book I have read which has real,
hard research-based information is by Paul Wender
ADHD: Attention-Deficit Hyperactivity Disorder in Children and Adults.
Oxford University Press, 2002. It goes into the neuro-chemistry,
clinical case-studies etc.
3. Meds.
* I take meds every day and they're helpful.
* Delaying meds will not *harm* your son.
* Ritalin may or may not be the *right* medication - it did not work
*for me*. If it makes a positive difference, great. I had BAD sides
effects with Strattera which, anecdotally, are experienced by many males
although denied by the pharma company.
The only times I ever got driving tickets was when I was prescribed
amphetamines.
* Meds ''the most effective treatment bar none''? This underestimates
the significance of complementing with non-medical support. In my and my
friends' experience, meds alone are NOT enough, and you may need to
experiment with various organizing strategies and techniques. If you can
get him into various habitual daily rituals (making lists and checking
them) it will make a huge difference, especially when you and supportive
adults are not around.
4. In my experience, many non-specialist educators and medical staff
talk very knowledgeably about ADHD although (a) their knowledge comes
from third-hand sources and (b) is several years out of date, typically
gained through CE credit courses.
5. ADHD is a gift as well as a frustration. Find ways to exploit,
develop and enjoy the positive and creative and fun sides of ADHD as
well as 'fixing' the disadvantageous side-effects. This will help your
son It is important to understand that your child does not have a
problem, but a condition.
Steve
Nov 2005
Both of my kids, now 7 and 8 (20 months apart) have been little
handfuls since birth- very active, very verbal, very intense,
very creative and very bright. In fact, they were great babies,
and we gave ourselves all the credit for raising them ''right''.
Both of us parents were similar as kids and it was not thought
to be more than a strong personality. We used to joke about ADD,
but imposed as much structure as possible and learned to enjoy
the chaos...then they started school. Both have problems there,
primarily impulsiveness and emotional reactivity. One is gifted
based on testing and off-the-charts active, the other
distracted, dramatic and dreamy. After one too many discussions
with schools, we started family therapy directed at behavioral
modification (1-2-3 Magic, etc.) and have instituted every
nonpharmacologic approach to ADD on the books. I am a
researcher, but I have even done things that have no proven
benefits based on research, such as limiting sugar.
Nothing is working for school and whenever we go out to public
events (BD parties, etc get them overexcited) although their
behavior is markedly better at home. I have tried to think of
their ADD as a personality type that can be adaptive in many
ways. I work with alot of successful adults who were hyper kids.
I cannot seem them as ''diseased'' or having a brain disorder.
But we now are beginning to understand why people medicate their
children like ours- the reaction of teachers and other kids and
their parents to them causes us and the kids alot of anguish.
People are quick to assign blame. It's assumed we do not
discipline our kids (and yes, we don't hit them but there are
very clear consequences when they misbehave, but impulsive kids
still lose control of themselves at times) or spend enough time
with them (both parents work), etc. I am tired of yelling at
them and dampening their exhuberence, which I have been advised
I must do to get them to be able to behave at school and in
public. They never were allowed to run around screaming, but you
have to shout to keep them in line and impose consequences
daily. I am NOT setting expectations too high- as if!- I'm sure
half the parents we come in contact with assume I'm too lax. But
they also think it's unseemly that when one of the kids get
revved up, I have to speak firmly to them in public.
They have friends because they are creative and funny, but if a
kid wants to be mean, they choose one of mine. When my kids get
upset, they often cry or ''take a swing'' back- very rewarding to
tease with low risk of retribution. They both do well in school,
but are felt to be underperforming by teachers- one's messy
handwriting is said to be a sign of insufficient pride in work
product, the gifted one can't sit still for reading aloud. It's
one month into the school year and I have been to
2 ''conferences'' about my problem children. I am in tears and
stressed out daily- trying to hold the line on their behavior
and bear up under criticism, snide remarks and ''advice''.
Here's the dilemma- do we give them medication? We promised
ourselves we'd give the other path a full year to work and if
anything, things are worse as one year later. I just can't yell
anymore at kids who really are trying their best. I know they
will gain self-esteem if their schoolwork begins to show their
potential (I myself am less concerned about ''grades'' at this age
but they both are very invested in school despite daily
negativity there). Our medical advice is that it's time to give
it a try. One kids is getting too dispirited from all the
criticism and the bouncier one is starting to lose his temper
from the same. I know I will likely be judged negatively for
medicating the kids too, but I am concerned that they used to be
hyper and happy, and now they are hyper and anxious.
I am asking for support in general from parents of kids like
mine. If you gave your kids medication, what tipped you over
into that decision? Did the ''shame and blame'' from outside the
family play a role? Did it just wear you down to deal with
their behaviors constantly? Did the meds make them into zombies?
Some days, I really just want a quick fix, but my real concern
is their happiness and future well-being- and it's starting to
seem one or both might be happier on meds.
not quite super-mom
There are two things that made me feel better about trying
medication on my child:
1. There is nothing irreversible about the decision. If you do
not like it you can stop ANY TIME! This is not surgery or
switching schools or even making a big financial purchase. This
is trying a cheap drug with an extremely short half life that
will be out of my child's body in a few hours. It is called a
drug trial because you are trying it to see if it works.
2. If my child needed glasses or insulin or other medical care I
would provide them. Why is the cultural assumption that drugs
are so bad?
Use your skills as a researcher and do a lit. search--look at
what works, look at what people do in other countries, look at
the risks and side effects of ritalin.
Honestly from your letter I couldn't figure out a reason why you
wouln't want to try medication. Because people are going to
judge you?
Keep in mind if your kids are zombies from the meds. then it
isn't that they shouldn't be on them, it may be that they're
taking too much.
Get a good doctor who knows about this and then go for it. What
do you have to lose?
Also, your kids sound almost old enough and together enough to
have an opinion about it themselves. Ask them whether they like
it. Sometimes kids like it and feel so much better on
medication and ask for their medicine when it is stopped.
extremely thankful my child is on medication
You are most certainly not alone! Every parent of a kid with ADHD goes though all
this same agonizing. This is such a huge and difficult issue. And other parents can
be quite judgemental about your kids, their behavior and if you choose to go with
medication, about all that too. It's hard. Give yourself a lot of credit for
understanding your kids are trying their hardest already.
If you have not yet seen this site, visit:
http://millermom.proboards23.com/
It is a huge source of support on all these issues and includes a large section on
complementary & alternative treatments, which work well fro some kids. There is
also a large section on conventional medication.
We did a trial of medication when our daughter was your kids' age and the side
effects were just too tough to deal with, due to her metabolism, I guess. A few years
later we tried again, and it has been really, really good. The side effects have been
tolerable, and most importantly, she feels like it is really helpful. It helps her with
attention and also with impulsivity in her social interactions. I'm fairly certain that
without the meds, her life would be much more stressful and home life would be
much more bitter. She's not zombie-ish at all. It seems the key is a willingness to
work through the trial-and-error period to find the right medication and dosage--
and that can be trying.
Best of luck on this journey,
Sympathetic Parent
You may wish to read Mary Ann Block's book on what you can do for your children
through non-pharmaceutical means. Also, know that many modalities have been
able to help gifted children (read THE EDISON GENE by Thom Hartmann) which may
include: HANDLE (www.handle.org), sensory assessment and integration (http://
www.toolsforlearning.com/), Jin Shin Jyutsu (www.jinshinjyutsu.com), and
neurotransmitter assessment with targeted amino acid therapy
(www.neuroscience.com). Since ADD drugs work on neurotransmitters (such as
serotonin, norepinephrine, and/or dopamine) amino acids (building blocks for all
proteins in our bodies) can address the underlying imbalances, after first measuring
what the body is making (via urine). You might call the company to locate a
practitioner using this methodology.
Nori
Hi there, I am a former special Education teacher and am now the
Assistant Director of a learning center (www.learningrx.com) in
Pleasanton. Have you read ''Driven to Distraction'' by Ned
Hallowell? I just heard him speak and he is an adult with ADHD
and a very different perspective on things. Try reading his book
(s). i was very impressed. Also, you may want to look into
cognitive training, such as at LearningRx, or other treatments
that involve brain science. Keep your great attitude!
Cynthia
You seem to be very thoughtful, ''on top of it'' parents who have done all of the right
things to deal with your childrens' difficult behaviors but obviously the treatments
and strategies you have tried have not been optimally effective. I would DEFINITELY
give medication a try. I don't have children with ADHD children myself, but I am a
child psychologist who knows the ADHD treatment literature very well. In the
majority of cases children with ADHD respond positively to medication and their
lives (as well as the lives of those around them) improve, sometimes dramatically.
Of course there can be side effects and the effects of long-term medication use are
not well understood. However, if I had a child with ADHD I would definitely give
medication a try. If your kids are prescribed a stimulant medication (which is most
likely), you will know very quickly whether the meds are having a positive effect. If
they aren't or if you are concerned about side effects you can simply stop the meds.
It is worth a try.
Liz O.
I have a child who somewhat fits the same description as yours.
We held off on medication for 10 years, determined to work with
our child. We tried EVERYTHING. The differences in raising a
child who has ''issues'' really became apparent to us when we had
other children and began realizing that ''normal'' children do
not behave/react the way our oldest child does. This may seem
obvious but if you don't have anything to compare it to it is
not. We finally relented with the medication for many reasons,
all of which you touched on in your email. Primarily though was
finally getting to a point where I felt my child was enduring
failure after failure no matter how hard he tried and that it was
starting to shape his character and who he believed he was. As a
parent I also had had enough of being judged and my child being
judged. Because we had other children who were absolutely
delightful we had a bit more faith that there was nothing wrong
with our parenting but rather a roll of the genetic dice. But
anyone who thinks that having a difficult child doesn't wreck
havoc on your family, personal life, marriage, self-esteem etc.
is fooling themselves. Likewise, I've come to the conclusion that
to plod along in the hopes that things will improve for your
child is naive at best and can be extremely damaging to the child
who is experiencing all the frustration that impulsiveness and
other strong behavior creates.
Medication is not a miracle although we saw a difference in our
child within the first few weeks of starting. What it has done
for our child is help him focus and control his behavior just
enough that he can engage and learn in his school environment and
start experiencing some of the success that is rightfully due to
him because he is smart and bright and can be a pleasant guy. We
use the lowest dosage that we are comfortable with and that
appears to make a difference. We use his more balanced
personality as teaching opportunities to empower him to take
responsibility for himself. Now, I'm convinced we did the right
thing and could kick myself that we waited 10 years before
getting help for our child. Because he has had some real success,
I hope that as he grows older and his maturity and physiological
system catches up OR he learns about better behavior and can more
control his actions he may be able to eventually be med free. But
I would also support him staying on the med as long as he
benefitted from it. We'll just have to see what the future holds.
Happy to have a happy kid
You sound like a great mom! It's very difficult, I know, and I
give you a lot of credit for trying so hard and thinking this
through so thoroughly. My son, who is now 11 and in 6th grade,
was diagnosed with ADD at the beginning of 5th grade. Trust me,
I was very opposed to the idea of meds, but I was also really
tired from years of dealing with various behaviors that you
described very well. More importantly, I was concerned about his
growing frustration and discouragement as he got older and more
self-aware and as the expectations at school increased. The
thing that helped me most was that I have a tremendous amount of
trust in his doctor, Brad Berman. I trusted the diagnosis,
because it was certainly not something that Brad rushed into.
Nevertheless, I felt very sad about it because I felt terrible
that my son was going to have to deal with all this (meaning the
ADD label, taking meds, etc). When Brad pointed out that my son
was already dealing with it (meaning ADD itself), I realized that
perhaps my resistance to meds was not helping my son. I was also
terrified that my kid would be dramatically different and somehow
not-himself if he took medication.
I wanted to write to tell you that trying meds was the best thing
we could have done. My kid is still his same wonderful smart
weird energetic (and occasionally very trying) self, but it is
just much easier for him to focus and control his impulsivity.
He handled what could have been a very difficult transition to
middle school this fall beautifully. He likes school and is doing
very well there, both academically and in terms of behavior. He
would tell you himself that it helps him to take the medication.
One initial issue was getting the right drug. He started on
Concerta, which kept him up all night, but after switching to
Ritalin, that was much better. The other, ongoing, issue is that
he doesn't have much appetite in the middle of the day - we've
had to be pretty vigilant about making sure he eats.
I would encourage you to get a second medical opinion if that
would help, and then just to give it a trial of a month or two.
You can always take them off medication if you feel the harm
outweighs the benefits. I still cannot necessarily say I'm
thrilled at the idea of medication, and I just have to tune out
those who want to be judgmental about it, but our experience has
been very positive.
Good luck with your choice.
Been there, doing that
This is a very hard issue -- I know just what you are going
through because we have faced this situation and are still
grappling with it. Our son is now 12 and still struggling with
ADHD/ADD symptoms, as well as some other symptoms that
unfortunately also have left him without friends. We started
trying medications because of very intense pressure from his
school. We resisted for a very long time and also tried many
different kinds of alternative therapies, none of which had
much impact. We finally gave in because of the pressure as
well as our feeling that we needed to do something to allow him
to have as much of a ''normal'' childhood as possible -- which he
clearly was not having. So we tried many different kinds of
medicines, most of which had very little impact and some of
which had horrendous side effects. About a year ago, we
started him on Adderal time-release, which has had some
impact. He still has problems when he gets frustrated and
anxious, but in general has a much easier time focusing in
school and maintaining a least a little more even temperment in
school. However, night-time, when the medication wears off, is
more difficult at home.
It is all a very painful process -- for both your children and
for you. It never ceases to amaze me how other people make
such negative assumptions about your parenting skills when your
children ''act out.'' In our case, we had to battle not only
other parents, but the school, where the principal was very
unsupportive and, despite a public pronouncement
of ''community,'' took a hands-off approach to creating a
community for our son. We, like you, have clear rules and
clear consequences and discipline at home, but suffer others'
assumptions and implicit criticism when our child acts in a way
that is contrary to their expectations.
Good luck in your decision.
anonymous
I don't have advice, mostly because I'm right about the same
place you are. But I sure do sympathize. I have a bright,
extremely active, emotional, and impulsive 6-year old first grade
daughter. During her troubled K year we sent her to a
psychologist for play therapy and it seemed to help somewhat with
the outbursts and periodic non-cooperation at school. This year
started poorly and we are now getting a behavioral pediatrician
to evaluate her. Maybe you've done something like that? It's a
dozen sessions total with the doc plus he does numerous phone
interviews with the people she interacts with. We will see what's
on the other side of that, and although I will exhaust all
avenues before medication, the downside of her behavior is so
damaging to her sense of self I cannot let it go on indefinitely.
Our options are 1)find a less structured school, or move to the
outback and homeschool 2) commit to long term therapy to see if
the psychological support helps 3) meds. Obviously keeping a
solid routine at home -- guarding their sleep and eating habits
-- helps quite a bit, but it sounds like you have that covered.
My kid does no extra-curricular stuff outside of school since
she's exhausted and fragile at the end of the day, and much more
apt to lose control.
Are your kids at public or private school?
And did you find the Magic 1-2-3 program helpful at all? I'm not
familiar with it.
signed,
sarah, a sympathetic mom
I wish I could give you a hug! I too have been down the road of
the judgement of others youre too permissive, but you
shouldnt yell, your child is too loud, too active, calls out
the answers, reacts bigger to teasing and such.
Do you know that your kids have ADD/ADHD? Have they been
diagnosed? If they havent, you need to do that. If they have
you need a really supportive doctor. I use Brad Berman who is
WONDERFUL. He really likes my kid! He really cares. Hes told
my son to call him anytime. They have one-to-one talks. Brad
tells my son how terrific he is and is frank about the issues
hes dealing with. My son too is gifted, cares about school,
has friends. But the ability to control himself is not all
there yet. We decided to put him on meds when he expressed his
concern about how things were at school. He is very clear that
having meds helps him focus on school and on his homework. It
has helped with his cooperation as well. He was already a very
self aware person not that he sat down and talked a lot about
it, but at times he certainly does. It has made life much easier
for everyone and school is much better. We also decided in
middle school to put him in a private school with whole-child
approach - that is they care about his mental and emotional
state as well as his academic performance.
By the way, I got the recommendation for Dr. Berman a few years
ago from this list. His office is in Walnut Creek and his phone
number is 925-279-3480. There was a waiting list for new
patients when we signed up. But I left a very frank message
about how hard things were and they got me in earlier.
Good luck! Don't be afraid of meds.
a mom who has been there
Phew! You have your hands full. A household full of ADHD is an exciting and
demanding place to be a parent. I have three perspectives to offer you. I got a
diagnosis of ADD Inattentive for my 7th grade daughter many years ago and
followed the suggestion of the doctor to give ritalin. I was really shocked when she
commented, ''Now I can follow the conversation at the dinner table mom!'' She was
not really the shy, uninterested in people, more interested in TV kid that I thought I
knew. She had a great, dry sense of humor and enjoyed eighth grade more than she
had ever enjoyed school because she discovered that her ''exposed'' personality
made her POPULAR. The key to getting this is to see that she was always there, but
her distractibility (among other things I won't get into here) made it so hard for her
to keep up with the action that she just gave up. She later went off meds in high
school, the sense of humor and popularity stayed, the things she had learned while
available on meds continued to help her stay organized and recognize when her
ADD was getting in the way. The story is longer, and not everything is so lovely, so
in other words, she is really a normal kid. That's my personal, indirect, experience.
I am also a volunteer facilitator for an adult support group and a certified parent
trainer for CHADD. I hear a lot there from people who have experienced AD/HD
from both sides, medicated and non-medicated. chadd.org has a national
clearinghouse and it is a place to get information about medication and support
groups for parents. Schwab Foundation has a parent message board.
In my private educational therapy practice I see people who have had both good and
poor results with medication. It's not for everyone and it's a very personal choice.
Medication works best with education - of kids, teachers, parents, family, friends.
The practical considerations you mention are the reality of life with ADHD in this
time and place. It's not easy, but it doesn't have to be awful! Good luck to you.
linda lawton
Two words about your situation: Brad Berman. He is fabulous,
thoughtful, and knows his stuff. Other postings have mentioned
him as well. Our child is 100% better all the way around after
starting on meds. Why have your child(ren) struggle and fail
academically and socially if they can't help themselves because
their brain chemistry is off? If your kid was diabetic and
needed meds, you'd use them. It's the same deal with ADHD. If
your child doesn't improve with meds, you can always stop them
with no adverse affects. And forgive people who judge you and
your children: they are clueless, thoughtless, and obviously
need all the help they can get in order to be kinder and
gentler in the world.
It can get better
Another perspective on meds for ADHD: I'm always wary of comparisons of ADHD
with medical conditions such as Diabetes (as in advice like ''If your child had
diabetes you wouldn't withhold insulin, would you?''), which are illnesses that involve
the body failing to produce a needed chemical/hormone/whatever that it naturally
produces--like insulin, or thyroid hormone for people with thyroid conditions or
even seratonin for depressed people. Ritalin and many ADHD medications do not
replace missing chemicals in the body--they introduce new ones, often stimulants,
and the long-term results of medicating children like this are still being studied.
The jury is by no means in, as far as I understand it, on those effects. For instance, I
gather it is now proven that prolonged use of ADHD medication can permanently
stunt a child's growth. Also, anecdotally, I know more than one child who has tried
the spectrum of medications offered for ADHD and who may be doing better with
attention, but whose appetite has not returned despite prolonged use and the
promise that it will, and whose sleep patterns seem to be permanently disruptive. By
no means do I think that medication should NEVER be tried, but I DO think that the
argument that medication is THE answer to ADHD needs to be greeted with some
sceptcism, especially when advocated by an organization (CHADD) that, while
appearing to have sprung up from a grass-roots parent support group, is actually
deeply funded by Ciba Geigy, the very drug company that makes Ritalin. (see this
PBS report for more detail: http://www.pbs.org/merrow/tv/add/chadd.html). I say,
don't rule out medication, but try everything short of it first!
Susan
Sept 2004
Is an IEP appropriate for a 7 year old child just diagnoised with AD/HD? Should I
request an IEP from the school? We have not yet tried drugs, but I want to get more
information before we try them. I wonder if the school/teacher would give him
more attention if he has an IEP in place, or if this would lable him. ANy help is really
appreciated. Thanks.
Mom
As a parent of a teenager who also was told in Kindergarden
that he needed an IEP, I would say to hold off as long as
possible. Schools often try to insist on an IEP to put your
child in Special Educ. classes, which he probably doesn't need,
and where, unless he is extremely slow, he won't learn much.
The reason they do this is because they get much additional
funding for everyone they put into Special Educ. Putting my
son, at the teacher's recommendation, into a special educ.
class, even though it was only for a semester, was the worst
thing I ever did to him, and put him behind. He is now a h.s.
sophomore and doing fine with the regular curriculum because I
worked with him at home every evening (he has ADD & is
dyslexic, etc.) and kept him out of special educ. They are
still requesting an IEP for him, but at this point, I think it
would do more harm than good. Don't do it!
a former teacher
How is your child doing in school? Is the ADHD adversly affecting his
academics, behavior, or social emotional well being? Ask the teacher
how he is doing. Ask her/him if you can have a Student Study Team
regarding this current diagnosis. A Student Study Team (SST) is
(hopefully) made up of a school psychologist, the principal, the
Resource Specialist, the classroom teacher, the parents, and possibly
others. Here is where you talk about the childs strengths, get/give some
information, discuss the concerns, what are some modifications/
accommodations, and make a plan. It may come up that he is showing
some significant learning issues that may warrent further testing for an
IEP. If not, and you still think you want something more that lists
accommodations given in the classroom you can then request a 504
Plan.This is an Accommodation Plan for all students having (usually)
health issues that are interfering with their learning. It is not special
education but under the Office of Civil Rights. Let me know if you have
any problems or more questions.
Liz
ADHD itself is not a sufficient reason for an IEP. It is
generally not considered to be a qualifier for special
education unless it is impacting your child's learning
significantly. Generally this is defined as being at least two
years below grade level in one or more subject areas. Also,
there has to be a discrepancy between ability and performance
i.e. if the child is demonstrating an average or above average
IQ and has standardized test scores significantly lower than
what they should be then he or she might qualify for special
education. You can request testing for an IEP but be aware
that you are requesting testing for your child to be placed in
special education and that you may not want to do that unless
your child really has a learning disability. However, if you
feel that your child does have a learning disability along with
the ADHD and is not getting the necessary help in class then
looking into testing would be the thing to do. Many schools
will hesitate to test a child who is in first grade or below,
but if the parent requests testing they have to comply.
However, you can't request that your child have an IEP- only
that he be tested for the school to determine whether or not he
will qualify for one. Hope this helps and good luck!
A diagnosis of ADHD does not make your child eligible for an
IEP. Only students with one (or more) of the 13 disabilities
recognized by the Individuals with Disabilities Education Act
may receive special education services. So, unless your child
has another disability (such as a learning disability, which
often occurs concomitantly with ADHD), an IEP is out of the
question.
He is, however, eligible for services under section 504 of the
Rehabilitation Act (which is a Civil Rights act that deals with
access). Called a 504 Plan, this plan is a program of
instructional services to assists students with special needs
(who donÂ’t qualify for special education) in the regular
education classroom. The plan should detail strategies for
helping you child be more successful in his classroom setting.
It may include things like: quiet room for testing, seating
close to the teacher or away from distractions, assignment
modification, etc. Since anyone can begin the referral process
for a 504 Plan, I suggest you make a request in writing to the
school district/school asking for a 504 Plan referral. In your
request, mention the ADHD diagnosis and include a written
record from the physician, neurologist, psychologist or other
expert who made the diagnosis. Hopefully, the school will
comply and ask you to be a part of the process. At the 504 Plan
meting, you would offer your suggestions for what would help
your child be more successful. HereÂ’s a link with some more
information about 504 Plans.
http://www.schwablearning.org/articles.asp?r=777
Medication should ALWAYS be a last resort – something you try
when youÂ’ve tried everything else and your child is still not
meeting with success. Many teachers and administrators will
suggest medication because itÂ’s easier than trying to implement
behavior plans and educational plans and doesnÂ’t cost the
school district anything. As a special educator, I know how
important and therapeutic meds are for some kids. But itÂ’s
important to explore all other options.
Finally, I understand your concern about labels. Our culture is
very quick to identify someone with a label. Some labels are
good, though. Your reaction to your childÂ’s ADHD will have the
most impact on how it is perceived. It is important to get your
child the help he needs so that he can be a success – that’s
the label you want for him. Be honest, open and loving about
his ADHD and help him understand how it makes him unique. Begin
to teach him now how to advocate for himself. And by all means,
donÂ’t let a thing like a label prevent you from getting him
what he needs. YouÂ’re his voice until heÂ’s able to have one
himself.
Good luck!
shari
I would like to comment on previous responses to this request for advice. They all
had useful information and good advice, but there were also things that werenÂ’t
quite right or partly right. IÂ’m not disputing anyoneÂ’s personal experience, but
adding clarification about the law.
''Schools often try to insist on an IEP to put your
child in Special Educ. classes, which he probably doesn't need,
and where, unless he is extremely slow, he won't learn much.
The reason they do this is because they get much additional
funding for everyone they put into Special Educ.''
It is true that districts receive money for each special education student, however,
the grants for special education donÂ’t begin to approach the costs; districts and
general ed parents complain that special education ''encroaches'' (the word makes
me cringe) on the general fund.
The Individuals with Disabilities Education Act [IDEA] requires that students be
educated in the ''least restrictive environment,'' which is the general ed classroom
for the large majority. The school is not likely to place a student in a ''special day
class'' unless he or she really belongs there. A kid of average intelligence with
ADHD, with or without learning disabilities, would not be placed in SDC without
some severe behavioral problems, for example.
''Only students with one (or more) of the 13 disabilities
recognized by the Individuals with Disabilities Education Act
may receive special education services. So, unless your child
has another disability (such as a learning disability, which
often occurs concomitantly with ADHD), an IEP is out of the
question.''
ADHD is expressly considered a qualifying condition, usually as Other Health
Impaired without other problems. It was added to IDEA in 1999 because a lot of IEP
teams didn't realize that it could fit the definition of OHI without being named. A
couple of people noted that ADHD has to adversely affect the studentÂ’s educational
performance (which is more than grades) to be a qualifying condition for special
education, and that is exactly true. All the other eligibility categories require the
same criterion, that to benefit from school, the condition has to adversely affect the
childÂ’s performance *and* the child needs special education to address the problem.
OHI students do not have to demonstrate a discrepancy, though students with
learning disabilities must, but California does not require a student be two years
behind, as someone suggested. Absent needing special education remediation and
support, 504 accommodations may cover what the student needs, and either family
or school may request evaluation for special ed or 504.
Regarding medication, one person wrote that
“Medication should ALWAYS be a last resort - something you try
when you've tried everything else and your child is still not
meeting with success.”
ThatÂ’s one opinion. I have seen many, many families grapple with the difficult issue
of medication. Another view might say that parents may not want their child to have
met failure in everything theyÂ’ve tried before trying medication, which after all, is
not an irrevocable decision. ThatÂ’s between the doctor and the family. The school
can never demand that a child be medicated, though in my opinion itÂ’s not out of
line for a caring teacher to say something like, “Have you thought of consulting your
doctor about medication? Other people might say that a teacher should never
mention medication because they aren't professionally qualified to diagnose and
treat, and that theyÂ’d be seen to be doing it for their own ends, in order to have a
compliant student.
Sorry this was so long, and I hope it made some things clearer.
Dana Lear, DrPH
Negotiating the Maze
Special Education Advocacy, Research, Support
www.negotiatingthemaze.org
Sept 2004
My son is far behind others in reading, spelling and
comprehension as he enters second grade (good oakland public
school). We have had various tests done, and while he is quite
bright, he displays some processing disabilities and mild adhd
behaviors. We are wading through all issues, including IEP,
behavior counseling, Ann Martin tutoring, Lindamood Bell,
further more specific tests on learning. Can anyone offer
advice based on their experience? I am looking for experienced
professionals who can help us with behavior training (us and
him!) and tutoring at our home. We feel by starting early we
can get a handle on this, but we would really benefit from some
expert advice.
Concerned mom
I would be happy to discuss this with you. I'm an Oakland parent
with an almost 9-year old who has been receiving services from
the district for 5 years. He initially presented with a language
delay - still the crux of his problem - but he currently has the
most trouble with learning behaviors if in a standard classroom.
We tried having him in his local school, but after only 2 months
it became a nightmare for him. He's now in a non-public
placement with a very small class size and a functional behavior
based model, and he's doing incredibly well - testing right at
grade level, actually finished 2nd grade in less than a school
year. But put him in a class with 20 kids and he dissolves.
I think the list of ideas for you to try would be too long to
burden this email list. If you want to email me we can discuss
offline.
Regards
Nancy
Feb 2002
Have any of you ever heard the idea that too much T.V. can be linked
to development of AD/HD?
I'm particularly wondering if any of you have read anything by T.
Berry Brazelton or Matthew Dumont that supports this idea.
Also, does anyone know, have any independent, verifiable,
double-blind (i.e. scientific method) studies shown any link between
AD/HD and T.V.?
Colleen
I am a research psychologist at UC Berkeley specializing in the study of
behavior disorders in children and I've worked extensively on 2 studies of
ADHD in children. I know of no evidence linking TV viewing to ADHD. There
is no theoretical reason to believe there would be a link, and certainly no
conclusive evidence that this is the case. ''Proving'' that ADHD is
caused by TV viewing would require randomly assigning children to either
watch TV or to not watch TV for long periods of time. No one could
implement a study like this, and no parent I can think of would agree to
have their kids watch TV to see if ADHD develops. I am certainly not
advocating a lot of TV watching, but there is no reason I know of to believe
it causes or is even linked to ADHD. Note however, that there is ample
evidence linking the viewing of violent content on TV or in films to
aggressive behavior.
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