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ADD and School-Aged Kids

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Binocular Vision Test & ADD

March 2009

Has anyone taken their child to UC Berkeley's School of Optometry for a Binocular Vision Test recently? Planning to take my 6yr old daughter there. Her school had a doctor from UC Berkeley who did the eye exam and had mentioned about Binocular Vision. I've taken her to my regular eye doctor, who said she was fine. She?s not doing academically well in school, so trying to see if there's any relation in vision. I took her to the doctor and was diagnosed with ADD, just by the questionnaire completed by the parent and her 1st grade teacher. That?s it? Just by a questionnaire? Does anyone know what other tests there to test her? I?m not sure what direction I should start looking into. I've written an email to her principal to see if the school psychologist can give her a test. My daughter now freaks out when you tell her to do homework and hates school. She use to love preschool & most of Kindergarten. Sylvia


My son was also referred to have the binocular vision testing done when he was about 6. His teachers at school suggested he be evaluated because he wasn't doing well academically. The binocular vision testing was part of a larger diagnostic work up (he was ultimately diagnosed with ADD).

The binocular vision testing is very thorough and somewhat exhaustive at UCB, and they have a pleasant manner. The multiple tests look for any problems with visual perception. My son tolerated the tests well, as UCB works well with kids. Good luck


I took my daughter to the UCB Binocular Vision Clinic two years ago. I was very impressed with the process and the recommendation they made. My daughter is a good student who's a terrible speller. They found her to be perfectly normal with no vision or attention issues. I also took her to the Linda Moode Belle center in Berkeley. It was probably overkill but I felt like I had dotted the i's and crossed the t's when I had both opinions. Best of luck to you
My son, age 10, just finished testing at UC Binocular Vision. They found all of the same issues his ed therapist had found. We are in the process of getting testing done through the school district. Once we have that report we'll go back to UC to begin therapy. The supervising professor at UC encouraged us to wait so that we wouldn't have to pay for them to do certain tests or initiate therapies that would be done/included by the school. Unfortunately that clinic is incredibly busy... we had to wait more than two months to get in initially, and had basically no choice with regard to day or time. Also, this is the second time we've gone through testing there. The first time was three years ago and the results were ''normal'' however I got the impression from the professor we worked with this time that the screening done on the weekend (when we went) is less thorough than that done on the weekdays. Perhaps some of his issues would have been caught sooner if we'd done screening on a different day, but honestly I think he was too young then for any of the screening to be effective. There is a huge range of what is developmentally normal at 5,6 and 7. It's just really hard to tell if there is a learning disability or if the problem is attention, or if the kid just isn't ready yet, but will be in six months. My son was within normal ranges for almost all of the tests he did, including those with an audiologist and testing done by a private ed psychologist... it wasn't until late in second grade that we were able to get any real diagnosis from any testing.

As for ADD... it is not uncommon for children to be diagnosed using no other measures than a survey. Sometimes if it is done by a school psychologist the child is also observed in class. I've spoken to one who recommends brain scans, though I haven't had a chance to persue how one would get that done. We waited about two years to do anything about our son's diagnosis... it seemed arbitrary at the time, borderline at best. The psychologist who presented the results had no credibility since she couldn't even read the graph to us correctly... So we decided to wait and see. This year it became obvious that the other kids aren't ''just like him''. It was impacting him socially and acadmically and really hurting his self esteem, and since we'd tried addressing evey other issue we decided to start medication... it has made a world of difference already and we aren't even through experimenting wiht dosage to see what is best. Still trying to figure it out


I took my son to the binocular vision clinic, where they found trouble with his horizontal tracking. We worked with a piece of software, and over a period of a few months, his tracking became much better, and his reading improved quite a bit. Shortly thereafter, he began to enjoy to read. I don't know how much of that was him developing, and how much of that was the help with tracking -- but it certainly didn't hurt, and it wasn't that expensive.

With regard to ADD, just a couple of questionnaires seems like an incomplete diagnosis. That would work as a screening test -- saying that your child needed further evaluation, but not as a complete diagnostic tool. It seems like you might want to consult with a developmental pediatrician, developmental psychologist, and/or the school psychology team at your school (you can get an evaluation through your public school by formally requesting it, and I believe it must occur within 60 days of the request). They usually do a very thorough testing of your child, including IQ tests, academic tests, classroom observations, as well as questionnaires.

In terms of your child hating school, some of it may be a mismatch between how she learns and the teacher. You might want to do some talking to other parents who have spent time in the classroom to see if there's been any friction between your child and this teacher. My child had trouble with the teacher in one particular grade, and it was a total nightmare, for him and me. Since then, however, he has done very well, loved school and the teachers, and all has been well. Karen


ADD or just 7-year-old phase?

Jan 2008

My 7-year old son has always been ahead on the learning curve, was an early reader, has great fine motor skills, and good focus. Recently, however, he has been having trouble comprehending instructions at school and at home, and can't seem to focus on any school related tasks (he does fine when playing). He is struggling in school and with homework, and seems to be forgetting even the simple things he has known for years. His teacher is concerned that he has ADD. However, he can focus intensely for long periods when doing legos, drawing, or doing other non-academic activities. I get frustrated helping him, because it seems like no matter what I say to help him he doesn’t grasp it (and being frustrated with him clearly doesn't help him). Should I be concerned or is this just a 7 year old phase? confused and concerned


I am a first grade teacher and see that many boys have ADD-like symptoms in this age group which disappear later. This observation comes from many years of experience. In my first years of teaching I would overreact to things because I had not seen enough children over long periods of time to know any better. I would refer kids to testing and nothing would come of it but that they were in a phase, just as you suspected. How many years has your son's teacher been teaching? Has she administered any testing for him? Has he been referred to any specialists? If she is making off-the-cuff remarks to you during conferences or in passing w/o back up data, this is a BIG no no. You never should say anything like this to parents if you have not gone through the necessary steps schools have in place for correctly diagnosing learning disorders like ADD first, then the parents should be involved in every step of the process for testing , creating individual education plans (iep) etc. If you are concerned, you can go get him tested somewhere on your own. Don't be too concerned....It is probably a phase first grade teacher
I hate to ask this, but have you ruled out boredom at school. If he's far advanced, I imagine he can think circles around most of the kids and probably is his teacher too. School is often not a good fit for the genius and genius's often fare as badly as learning disabled in school. They just get too bored. My husband's mother told him to watch his teacher and pretend that he was listening. He said that helped. I don't know if there are alternative programs for your son, or different school possiblities? Good luck
ADD or is school just really boring? It's numbing to be told what to do and when to do it for 6 hours a day, constantly supervised, constantly corrected. Perhaps it's deadening his spark. You did say that his attention is just fine when he's interested in the task at hand. I'd stick with that observation and ask the school to change, not him. The only other question I'd ask is, ''Is he depressed about something?'' Best of luck, Elisa
Is your son getting enough sleep? Maybe his sleep needs have changed and he needs more. Our very bright son went through a similar phase, we were puzzled but realized suddenly one day his sleep had been getting disrupted on a regular basis. We made his sleep a priority - in second grade he would go to bed at 7:30 p.m. and sleep til 7 a.m. - and things turned around literally in a couple of days. My boy needs his sleep

6-year-old shows signs of ADD - how to help him?

Sept 2007

I have a wonderful little boy who just turned 6. Since he was in preschool teachers have been quick to mention they think he has ADD. I've been reluctant to jump to this conclusion because of his age. Boys tend to mature slower and be impulsive. I spent some time volunteering in his Kindgergarten class and quickly noticed that my son was not as ''engaged'' during reading time when the teacher was talking or singing, had a hard time staying focused on his work, and was doing very poorly at socializing. I had some talks with his pediatrician over the symptoms and even though they do not generally diagnose them until they are 8 he is showing signs of ADHD. Here is where I am stuck. He is 6. He is a boy. He is above grade level in math and reading. So, there is not a learning disability, but he is really struggling with his actions (he tends to have poor impulse control), his transitions in the class are very difficult for him, he keeps telling me that ''he was in class and his mind made him think of (insert 50 random things here)'' and that he struggles with concentrating. I was amazed that he was able to communicate that with me. Although, it means that it was on his mind too. I'm careful not to mention things in front of him. I don't like labels, and I don't want him to label himself either. I want to know what I can do to help him, but not overhelp him. I'm not sure if he needs a 504 plan. I'm afraid of him getting labeled and having that carry over and the teachers discriminating against him because of it. Or, him being singled out in some way and not feeling like part of the class. I'm really confused because, having not been through this before I have no idea what to expect, what works, or what else to try. This is where I plead for help. Any advice will be consumed and devoured. I want to be my child's advocate. I love him dearly and want him to succeed in life. It just takes one step at a time. eastbaymom


Hi there, I almost feel like this post is a flash forward for me! My boy sounds very similar to yours in terms of poor impulse control. Tack on trouble with transitions and its him to a tee. Anyway, mine is still in preschool, with another year to go before K, but we already see that his social/behavioral maturity level is a little delayed - not ADD or ADHD, just not what teachers want in school. Academically he's above average.

Anyway, so we took him to see a developmental pediatrician whose advice to us was to hold him back from Kindergarten or have him do it twice, so that he could catch up developmentally to where he is intellectually before he hits 1st grade. We don't want to hold him back or have him repeat K twice, so we're exploring a middle ground - montessori. Montessori schools don't have grade levels per se, and the curriculum is child centered. This means that the teacher will assess my child and provide him with curriula that challenges and interests him. It also means that if he has to do an extra year of school before Kindergarten, it won't be weird for him. He won't be held back while the rest of his friends go off to the next grade.

I wish you well and good job for trying to figure out alternatives to having your child diagnosed with a learning disability - especially since it's possible that he just needs a little more time to catch up socially. anon


So many of us have been right where you are and can relate. I will get right to some quick advice. (I have a 12 year old ADHD boy and a 10 year old year with ADD).

By the age of six, you can certainly have him tested. This is really the first and most important step. A professional can sort through the difference between ADHD and just a ''boy.'' In our case, it was very clear cut and almost off the charts. We retested at age 9 with a different person and same results. In our case, medication was and is essential for daily functioning. There is so much to read and so many options. Medication isn't the only option, but it is often a part of an overall solution. My son really didn't know a label until quite recently.

However, we have worked with his teachers very successfully since 1st grade and they have known of the diagnosis. Overall, better for them to know and work with it than not (although I struggle with the same concern of labeling).

If it turns out that he does have it, there is lots of help out there for both of you. They say one out of nine kids may have this. Maybe environmental? In our case, both the dad and grandmother clearly have it, so genetics is at play.

My main advice, get into the subject. Find out what he really has and then you can create your game plan. Good luck! Anonymous


My daughter has almost the exact same symptoms, is a high scorer in math and reading, etc. She is now 9. We've been dealing with all of this since age 3. I am reluctant to put her on medication but her distratability and inability to sit still is affecting her school work. This is what I did. I spoke to our naturopath and we decided to do neurotransmitter testing on my daughter through NeuroScience. It was just a urine test. It took 3 weeks to process and we found out that she has some fairly serious imbalances. She's on 3 different supplements and the difference is amazing. It's not fixed yet, but we are closer. She can now sit down and pay attention for much longer periods of time. Her self esteem is coming up a lot as well. The other thing I did was I found her an accelerated program at school. The whole school is an accelerated program (I changed her schools). They move much faster than a traditional school and she is doing SO well. She's never bored in school (do you hear that?) and she likes going to school. Those two changes have made all the difference in the world! Paula
I would start with an assessment. Once you have some more specific information about what is (or isn't) going on with your child, you can figure out what the best course is.

I've been through this with both of my kids -- it's expensive, but well worth it. My son was also 6 when issues arose, we had him evaluated, it was ADHD plus other things. My daughter was also evaluated a couple of years later -- no syndromes, but we got great input from the psychologist on how to parent this particular child.

I would recommend Dr. Carina Grandison (sp?) at Children's Hospital (she evaluated our daughter). anon


Your son and your concerns sound a lot like mine. My son had behaviorial and social difficulty at the same age. I struggled to figure out what to do. And, I was concerned about having my son pulled out of class and labeled.

After numerous discussions with our pediatrician, we took our son to a developmental pediatrician for evaluation. Honestly, this wasn't terribly helpful and cost a lot. We learned our son has some of the qualities of ADHD and Aspergers kids, but did not receive a firm diagnosis - he's borderline. The pediatrician confirmed our concerns and observations about our son, but didn't add much to our understanding of his behavior or approaches to handling it. Although, she did make us aware that impulsivity is an element of ADHD and can contribute to social difficulties.

We ended up having our son assessed by our public school speech therapist (for language pragmatics/social skills) and occupational therapist. Some of the assessment was observation or in-class and some out of class. The speech therapist worked to minimize the loss of class time. The kids in his class don't seem to view visits with the speech therapist in a negative light. The results of the assessment and IEP were not surprising, but thorough and provided measurable goals. My child was recommended for the gifted and talented program and other services to address his social difficulties. We weren't pressured to accept any services. I am finding that the assessment and IEP are a good place for us to start conversations with my son's teachers. They lend legitimacy to the idea that my child needs support socially and behaviorally. I spoke with a number of teachers about the possibility of stigmatizing my son by putting him into the school evaluation system. They all felt that he would not be harmed or stigmatized by the process and so far, that has been our experience. Overall, I'm happy with the public school process and found our speech therapist to be a good advocate for our child.

We also are planning to have our son attend a private social skills group this year. They do their own assessment of your child. Although we haven't started the weekly classes, I have been thinking that I wish we would have started with this approach. They would have told us if he needs more, less, or different help. And, we would have started working to build social and behavioral skills immediately instead of doing so much evaluation. Good luck. Anonymous


The results of a large study was just described recently in the New York Times. Kids who ingest artificial colors and preservatives in foods demonstrated hyperactive activity like ADHD afterwards. Try eliminating processed foods like this, especially in his lunch. He sounds like a bright boy. It may help control his moods and behavior. The article is here: http://www.nytimes.com/2007/09/06/health/research/06hyper.html Good luck!
I'm responding as both a psychotherapist and an adult with ADD. While it is totally understandable that you don't want him labeled, without help he will have unneeded difficulties. It's important that your son receive the adjustments that will help with his attention difficulties. A good book to start with is ''Delivered from Distraction.'' I also recommend MarRem Remington, a psychotherapist in Oakland who has a background in special ed and specializes in assessments and consultations as needed with schools. Parents are fully involving in the process and she has many helpful suggestions for home and school. Her # is 510-835-4357. Suggestions

Has anyone heard of inattentive ADD disorder?

Jan 2007

I was in my salon the other day and spoke with someone who has a daughter with the same type of problems as my daughter. some were your typical, but some hit right on the mark. She said her daughter was tested and was found to have inattentive ADD disorder. She was givin meds and went from a majority of D's on her report card to A'S. Any input or Recommended physicians who specialize in this hard to detect type of ADD. Ray


Clearwater Counseling and Assessment Services, in Oakland, offers comprehensive psychological ADD evaluations, which include a school observation, for quite reasonable fees. Attention Deficit Disorder is not a medical condition, and it is best assessed by a psychologist rather than a medical doctor, although of course an MD needs to prescribe any recommended medications. Often, symptoms of ADD can be treated behaviorally, with medication added only if there isn't satisfactory progress using behavioral interventions alone. Visit Clearwater's website: www.clearwaterclinic.com or call Dr. Sharon Witkin at 596-8137 for more information. Sally
ADD is a medical disorder that has a higher genetic basis than any of the other psychiatric disorders (including schizophrenia) and is primarily treated with medications. I am a psychiatrist who treats UC Berkeley students with attention deficit disorder. ADD can be with hyperactivity and/or impulsivity but these are not necessary for the diagnosis. The inability to focus must begin before age 7 and interfer with two areas of functioning such as school, home life and social skills. For children the treatment of choice is medications and this is provided by pediatricians and child psychiatrists. Educating the family and teachers how to work with the child and tutoring as needed to keep the child up to grade level are also important. For adolescents and adults treatment choices include medications and cognitive behavior therapy. Depression, anxiety, substance abuse, bipolar disorder and post traumatic stress disorder are sometimes co-morbid with ADD so the treatment of people with ADD is usually complex. anon
In the work I do we have a different perspective on ADD. ADD, whether inattentive or hyperactive, stands for ''attention deficit disorder.'' It implies that there is a lack of attention. What if there was actually plenty of attention and it was just being paid to something other than the outward task at hand? We all have priorities, what we pay attention to first, and our neurological system is no different. We will all make sure we are safe and protected before we deal with anything else. If a person's tactile system is particularly sensitive it might be painful to sit in a chair to focus on the lesson in class, therefore they might squirm to stop the pain in order to pay attention to the lesson. Likewise, if auditory or visual systems do not give clear information, a person might ''space out'' in order to attempt to make sense of what is going on.Meanwhile they miss pieces and look like they are not paying attention. Ever have a difficult time understanding a speaker and get stuck trying to figure out what they said and by the time you do the speaker has gone on and you are completely lost? You weren't being inattentive - you weren't able to attend to what they were saying until you could decipher that. It would surely affect your functioning if this happened all the time! Inefficient or disorganized neurological systems work harder to give messages that make sense to the brain. Perhaps a more accurate name for this situation would be APD or ''attention priority disorder.'' Once the neurological system is organized the priorities shift and the person can more readily attend to the outer world. If this perspective intrigues you, please contact me at 925-934-3500 and we can discuss it. You can also learn more about this approach, called the HANDLE perspective at www.learningandgrowth.com. Best of luck as you look into this complex subject. Sindy
I'm a Berkeley psychotherapist working mainly with teens who have learning disorders of one kind or another. Many of my clients have Attention-Deficit/Hyperactivity Disorder (ADHD). ADHD comes in two varieties. There is ADHD, Predominantly Hyperactive/Impulsive Type, and there is ADHD, Predominantly Inattentive Type. Most specialists now consider the Inattentive Type of ADHD to be a different disorder altogether, not just a sub-type. ADHDI (as it's often called) is hard to diagnose, because people with ADHDI don't show outward signs of distractibility; that is, they don't jump up and down, wiggle, tap pencils, interrupt people, talk ceaselessly, and so forth. They may appear to be quite calm, composed, and focused; but inside, their minds may be racing aimlessly from one thought to another. They are highly distractible: so much so, that they often don't seem to hear what is said to them or to be aware of what's happening around them. They find it hard to get started on projects or complete them. They do things quite slowly; overall they are characterized by what some experts call ''sluggish cognitive tempo.'' In moments of stress they may slow down rather than speed up; occasionally people with ADHDI may even fall asleep during important final exams. Obviously this kind of ADHD can produce severe academic problems, though it isn't as likely to produce disciplinary problems as the other type. I hope you'll find this very basic information helpful. Please let me know if you have questions. Caroline
I expected to see tons of answers to this question, so I held off, but so far the only replies have come from therapists; nothing from parents! Yes, I have indeed heard of inattentive ADHD -- we've been living with it for a long time... ADHD comes in 3 flavors: primarily hyperactive-impulsive, primarily inattentive, and combined. Before you settle down with any particular therapist or doctor with any particular approach, you may just want to get some basic information. There are so many good websites, but here are a few that I have found helpful: CHADD.ORG - extensive information about all aspects of ADHD; some very good basic information sheets. MEDLINEPLUS.GOV - National Institutes of Health (I think...); very authoritative and reputabile; just search on ADHD SCHWABLEARNING.ORG - lots of very informative articles on ADHD, as well as on other learning difficulties. I hope this helps. anonymous

Non-medical remedies for 9-year-old's ADD?

June 2006

I would like some advice on hermal remedies for a 9 year old diagnosed with add. We have evaluated her, and a very conservative doctor diagnosed her add and wants to medicate her. I have battled with the thought and have finally come to the conclusion we need to do something. We are tutoring and helping at home all the time. I just can't bring myself to do the drugs. When she was little she was harrassed by my husband for not eating well(he's greek) and since we've had her tonsils removed, she eats great now, but is now calling herself stupid. The biggest side-effect to all the add drugs is loss of appetite. Other than the fact that I don't like the idea of my child on a narcotic, even if I could do that, I don't think she or I can deal with her not eating again and the negative effects on the household. Hopefully, being from the Walnut Creek area, all you great Berkeley-ites could recommend some herbal remedies? At my whits end


As a special educator, I feel strongly that you should listen to the advice of the ''conservative doctor'' that diagnosed your daughter's ADD. Think of ADD as television white noise always on in your head. Think of the meds as a tool to help your daughter focus enough to learn what she is being taught, such as appropriate behaviors, academics, etc., because that is what the meds are supposed to do... help clear her head of all the white noise so she can focus. I hope that your doctor recommended a good behavioral therapist/specialist who can help your daughter learn appropriate behavior and how to recognize and cope with the symptoms of ADD, etc. The meds get a bad reputation because often people expect that the meds will cure the child as with a physical ailment. With ADD it isn't true... it just helps focus the child's attention so she can be taught. She still needs to work with an expert who can help her identify her inappropriate behavior and help her with strategies to manage her ADD. As she gets older, and even as an adult, she will still have ADD and she will need to be able to manage herself in order to have a satisfying and productive school experience, adult life, etc. She won't outgrow her ADD. ADD is the result of an inherant difference in the chemical make-up of the brain. I have never heard of it being successfully managed by herbal remedies. And yes, the meds have side effects, but they can be managed well with vigilance and the help and supervision a good doctor with lots of experience with ADD. You owe it to your daughter to carefully and thoughtfully consider this... her education and the rest of her life is at stake. anon
I know you asked about herbal remedies so you may need to disregard my note. I am a clinical child psychologist with some expertise in the treatment of girls with ADHD. I completely understand your hesitancy to treat your daughter's ADHD with traditional medicine, especially given your concern about her appetite. However, let me just add that there is a good chance that stimulant medication will be quite effective, will help her in concentrate in school, will help her make and keep friends.

If she is concerned about being ''stupid'', stimulant medication is much more likely to help her to change this self-perception than any herbal remedies are. And please remember that herbal remedies have psychotropic effects too (which is why they would have any impact at all), but they are generally untested in terms of their effectiveness and side effects. Also, FYI, ADHD is never treated with narcotics. It is typically treated with a stimulant. Stimulants are very short acting and are not addictive. That means within a matter of hours you should see a positive effect on your daughter's behavior and there is little risk to a short-term trial (e.g., a few days). If stimulants aren't effective or if the side effects are intolerable, you'll find out very quickly and can discontinue medication. Good luck! I know you have a difficult decision to make. Liz O.


I suggest that you consult several websites to get information about treatment - both alternative and pharmaceutical. There is a growing body of scientific information about AD/HD (or ADD) that would save you a lot of worry and help your daughter get more out of school while the window of opportunity is wide open. I find that a lot of parents share your concern about using stimulants and associate them with images of the seamy side of life. There is an assumption that herbal or alternative remedies are somehow safer and don't expose a tender child to moral turpitude. You can check out the results of well-designed studies that measure treatment effects and choose one for your child that works reliably. We know a lot more about what works for girls these days. The most important thing you can do for your girl is to educate yourself about this disorder. Your husband may begin to respect your authority on the subject and use fewer negative parenting techniques. There are support groups and classes out there and you find out about them on these sites: Schwablearning.org, chadd.org, help4adhd.org and adhdresources.org. There are more, but these stick to the known facts, are open to considering the promising treatments (fish oil for example), and are careful not to scare people! It's hard enough to know what to do about AD/HD without confusing misinformation. LL
I cannot answer your herbal question directly, but I do want to clarify one thing. Stimulants such as Ritalin do decrease appetite, but you can counter that by feeding your kid before their meds, and by avoiding the extended release types of medicines, the ones that last 8+ hours. At one point my kid took 5mg of Adderall *after* breakfast, and although her lunchtime appetite was suppressed, she would eat heartily by 2pm and during dinner when the dose had completely worn off. Good luck. anonymous
My daughter was diagnosed with ADD at 8. She was not a great eater and was of average height but below the 10th percentile in weight. The developmental pediatrician, who had a reputation for prescribing, would not prescribe meds for her because of her weight and we were grateful for that at the time... although there were subsequent years when I would have tried *anything.*

So I absolutely, positively know where you are coming from and you were totally right to try behavioral modification first (and as well as anything else). BUT... your daughter is coming up on the age when start falling off rapidly in school if the situation is not corrected. I also have an adult friend with ADD who says, ''Even with their side effects, finding a good drug -the right drug- was heaven and made my life so much easier.'' Since you say your doctor is conservative --by which I hope you mean she doesn't prescribe at the drop of a hat-- I really urge you to send your husband to the doctor with your daughter to be educated on the issues... and then try the drugs. They are not forever, they are not all the time, and if they don't help you can stop.

It always bothers me that folks are willing to try herbal remedies that have not been tested and are often not administered by a licensed practitioner. We are, after all, talking about a herb that will affect brain chemistry! Why should it necessarily be better or safer than taking a known quantity in a pill?

As for my own daughter... she's in high school now and found her own solution in a strenuous sport plus the maturity to stay on fixed, regular schedules. But it required a LOT of parental committment and I still think we were awfully, awfully lucky that we were able to keep her on the educational bandwagon until that happened. ADD Mom


We have not medicated our 12 year old with ADD so far, but one thing that has helped a lot is Omega 3 fish oil. We use Nordic Naturals Ultimate Omega capsules (cause they avoid the fish taste cause they are in a lemon flavored capsule) and give him 2 in the morning and sometimes one after school. It has helped tons with his homework. Another thing we have done is to give him a very healthy diet, without chemicals and preservatives and we really limit the junk. Good luck and I hope this helps anon
I don't know about herbal remedies for ADD, but my daughter was diagnosed with ADD at the beginning of 3rd grade when she was 8. We did opt to put her on Strattera--it is neither a stimulant nor a narcotic. She is a picky eater, but her eating was really not affected by this drug; she continued to grow well. She did well on the drug, and after taking the summer off between 4th and 5th grade, she started back on Strattera for the first half of 5th grade to see if she needed to continue it. We stopped it during the winter break, and she has been off it ever since and doing well. rita
I was diagnosed with ADD at 15 and I'd like to share some of my experiences and suggestions. Hope they're relevant! I took ritalin and my grades improved, but I felt that it altered me quite profoundly. Taking it was like being given crazy powers of concentration, but my ''spark'' was lost. Yet the social and academic rewards for taking it were enormous, so I went along. In the end, I learned to deal with my brain and attention span myself, which allowed me to stop the drug (a relief!)

''Stupid.'' It is very easy to absorb the messages coming from doctors and schools that there is Something Wrong with you. Your girl seems to have learned some of these lessons already. Then comes that cycle where, the more you tell her she's not stupid, the worse it gets. I don't think there is anything Wrong with your daughter. I feel it is key that you create an atmosphere which lets your daughter be smart, and for that to happen, you and your husband need to believe it first. So she learns differently from other kids. So what? I'm sorry that it's hard for all of you right now, but ADD is not so bad. The real danger is that she hears ''there's something wrong with you'' and ''take this pill, it will all be better". I think that's a very dangerous lesson. Instead, what helped me was: ''of course you're smart and capable. Now let's figure out a way so you can show everyone else.''

I think it is great that you recognize the need to help her, but I would try a lot of other things before the drugs:

* More structure - having blocks of time assigned on a chart for different homework was helpful.

* Move! Get up, jump, chew stuff, walk around the room, whatever; it really helped me focus. My parents fixed it so that I was allowed to do this in class, too - great!

* Rewards for increased independence. My parents helped me a lot, but weaned me by letting me know (gradually) that I was smart enough to work on my own. Then they just became the homework checkers.

Maybe you could try to find some physical outlet for her, like a sensory gym where they allow kids to race around and pillowfight, and such. Those are great.

Best of luck to you, and may you never lose patience with your bright, beautiful girl! Fine Then, Better Now


If you doctor recommends ADD meds, I'd try them, before experimenting with herbal remedies. If the meds work you will know what to expect of non-prescription alternatives. If they don't work... she doesn't have ADD.

One dose of appropriately prescribed stimulant medication will do more to eradicate your daughter's sense of being ''stupid'' than almost anything. My daughter's life was changed with the first 15 mg dose of ADD meds... when she was 15. Within an hour she knew her ADD was real, and could be harnessed --- and for the first time she really believed she wasn't stupid... even though we'd been telling her for years that she was smart. She has taken meds continuously since then, but not every day or all the time. As her study skill improve and her impulsivity declines I predict she will not take them anymore...maybe 2 more years.

If we'd known about the ADD when she was 9, we would have done the same thing then, instead of 6 years later...

For me meds for ADD are like eyeglasses for myopia -- I would be cautious about getting the safest glasses I could and the ones with just the right prescription -- but wouldn't deprive my child of glasses because they might have unwanted side effects.

I understand your concern, but weight loss or loss of appetite aren't always side effects, and there are ways of dealing with either one if it happens. ADD mom of a (smart!) ADD daughter


7-year-old's ADD diagnosis and what to do about it

March 2006

My 7 yr old first grader has been given a definite diagnosis of ADD Inattentive. My son is a highly compassionate, fun loving, creative ''space-cadet'' type, who gets along with all his peers. All the adults he interacts with think he is a delightful child, including his teachers. I would not call him hyperactive, although in a classroom setting he fidgets and seems unable to stay focused on classwork. The only challenges we have encountered with him are in the classroom, where he seems unable to stay on task.

The doctor who evaluated him did not observe any learning disabilities, and seemed very convinced that a 5mg dose of Ritalin would greatly help him during those morning hours in school. His learning would improve and we were not likely to experience any negative side effects. We obviously want the best for our child, and it seems to us that if this is the case, if medication will give our child an immediate benefit, that we should start treatment now.

I should note that the teachers and administrators at my child's school have been very helpful and supportive, and they have already taken (and will continue taking) all kinds of remedial measures to help our child in the classroom. However, there is only so much that they can do, and they have expressed concern that in later grades, when the learning is more challenging, and the workload is greater, our child will become frustrated and his self-esteem is likely to suffer.

My question is to parents who have a child with similar characteristics diagnosed with ADD: Did you try medication? Did it help? What were the negatives? I am especially interested in hearing from parents who decided to wait a couple of years: Do you see the benefits of having waited?

I know there are a lot of horror stories circulating about Ritalin, and I am not interested in hearing about this, unless you have had direct experience with your child. Also, please understand that we are not parents at the end of the rope who are desperate to fix some behavior problems, this is not the case. We have been told that the most effective treatment bar none for our child's problems is medication, and we are wondering if there are any reasons why we should delay it.

Thank you! Anon


I worked for quite some time with children with ADD and have a husband who was diagnosed with adult ADD - though we now understand he has had it his whole life. From my experience and from speaking with my husband, I think this would depend on how your child views his life. Does he feel ''different'' from other kids? does he feel like he struggles when others are breezing through things? does he want to take the medication? Medication does help, but it always works best with behavioral interventions. There is some really well-written, kid-centerd, literature out there as well as workbooks and games for kids with ADD. Despite medication your son will need to learn coping mechanisms to deal with inattentiveness and other symptoms that are not helped by medication. It might serve your son to see if he succeeds with behavioral interventions first then if he still struggles, try the medication. With supportive parents (sound like you are) your child will succeed! anon
My child was diagnosed at age 6, but we knew something was up since he was toddler. He is currently 11 and has been retested twice with severe ADHD. To get to the point of medication, there is little risk to give it a try. It goes in and out of their system in the same day. Doctors like to start with ritalin. We did and it didn't work. My son became withdrawn and just wierd. So we tried Adderall and we saw a wonderful difference. We have been using it ever since, upping the dosage as need be. Every child is different and I don't recommend medication for everyone. For us, it is the difference between night and day, sanity and insanity - really!! I encourage you to give it a try and see what happens. Personally, we couldn't and he couldn't survive without it. P.S. We also do therapy and bevhavioral modification. 5 years experience
My daughter takes Ritalin and didn't know she was ADD (inattentive) until 15. The only reason to wait before trying meds would be some strange desire to witness more dramatic improvement... My daughter actually thought she was stupid, and that everyone who told her differently had missed something. We really didn't know what to think just that things seemed harder for her than they should be. Some ADD kids make it through to high school without treatment, but most suffer a lot, needlessly, on the way.

At your son's age organizational or occupational therapy might be great -- but I would not hesitate to give a 7 year-old the ability to be ''like everyone else,'' and that's what Ritalin has done for us.

I tell people that stimulant meds for ADD are like glasses for myopia... some folks do fine without them...if they're only slightly out-of-focus to begin, and can develop coping skills to deal with their challenges. No questions here!


Our daughter was diagnosed with ADD inattentive type in fourth grade. Although we were skeptical, we took the psychologist's advice and put her on medication (Adderall extended release) primarily because of the social consequences that were beginning to appear as a result of her tuning out and then popping back into the interaction at the point she left it only to find everyone else had moved on and thus being labeled ''slow'' or ''weird''. The effects of the medication were subtle, but still obvious to us. She is now in high school, still on medication, and doing pretty well academically and fine socially. anon
We are two years further down the path -- our warm, affectionate, creative and spacey son ''S'' is a nine year old in fourth grade. We decided to put him on Ritalin last month.

Although his teachers have consistently remarked on his attention issues, I resisted having him tested for ADD, in part because I was/am dubious about pathologizing what seems to be a common and benign characteristic -- i.e. dreaminess. Because S was basically mastering all of the skills he needed to until this year, I hoped that he'd learn to pay attention better as he grew up.

Fourth grade was a tough transition. As he is in public school, his class went from 19 students to 27. Assignments, both in class and homework, became more demanding, requiring more sustained effort. For the first time, S became conscious and bothered that he was not performing on some assignments as well as his friends. His self-esteem was plummeting during the first semester, especially as his teacher was big on timed arithmetic tests, which he found excruciating. He broke down on several occasions, telling me that he was going to flunk 4th grade.

So, we had him tested and diagnosed in November. His teacher made a bunch of accommodations, which have helped, but she says that he's shown marked improvements on math and writing since we began the Ritalin in February (confirmed by my own ''blind'' test - a series of math quizzes on and off the meds).

I'm not crazy about my kid being on a stimulant, and I am comfortable that we waited until the attention issue became a self-esteem issue for him. If we could afford to send him to an arts-oriented school with very small classes geared towards dealing w/ kids w/ ADD, I'd probably do it. Reality being what it is, I've accept him being on the meds because his attitude about school has improved dramatically, and he is now keeping up or excelling in each subject. (BTW, he started on 10 mg, which did nothing. He is now taking 15, which works fine.) Another mom of a space cadet


When my daughter was seven, she also was diagnosed as having ADD. She was unable to concentrate in school. She seemed to be in a fog, while at the same time, hyper. Doctors suggested medication also. I decided to eliminate some simple causes first. I had her tested for foods. Although, the test showed she was not sensitive to any foods, I did remove gluten grains from her diet and she did stop having ear infections. The real turning point came when a friend of mine suggested that I read: ''The Yeast Connection''. I thought yeast was an adult female problem. Come to find out Candida can be passed on to our babies during birth. Well, it took some time before I could get a doctor to do a Candida Albican antigen blood test, but when a test was finally done, my daughter had highter levels of candida than I had. It has to do with antibiotics and all the simple sugars our children get at a very young age. The doctor didn't know exactly how to treat it, but we tried several months of the diet (mentioned in the book) and some Nystatin. What a change!!! The ADD symptoms dissapeared almost immediately. My daughter is much older now and she tells me when she over-does the sweets she gets a yeast infection and feels spacy. It's worth looking into. ADD and Candida connection
Concerta helps my child. Whether the medication works, how much you need and what type will vary by the child so you just have to TRY it and play around with it. The research is clear that this is an effective treatment for ADHD.

Just remember it is called a drug TRIAL. You TRY the dosage and drug on your child to OBSERVE if it makes a difference. You get your child's teachers to fill out an ADHD questionnaire (like the SNAP) before medication has begun and then at the end of the 1-2 week drug trial so you have an objective measure (although it may be obvious that it helps or does not help). Your son sounds pretty insightful so you can also ask him how it makes him feel. Ritalin is a short acting drug that will leave your child's body FOREVER after about 8 hours. Giving your child a few pills is NOT like deciding to do some type of irreversible surgery. If you do not like the drugs, you will have the power to STOP or try a different dosage/type. If you decide to stay on the medication then every year or so you will see what happens if you stop the drugs and in order to decide if your child still needs them.

I am sorry if I seem impatient, but I have seen this question so many times and I really do not understand why people are so hesitant to just TRY something. I do not see what the costs are in terms of trying this drug--it is completely reversible. I think that there is so much angst about medication for mental conditions and some hidden fears of addiction that people do not realize this is NOT really a big decision. You are not getting married to Ritalin, you are meeting briefly for coffee!!! Then if things work out you will date a bit while constantly re- evaluating your relationship!

My one caveat is that you do need a doctor who knows what they're doing and is going to be systematic, knowledgeable and objective about what is really a PROCESS. The MD shouldn't just throw the prescription at you and run. They've got to check in with you and follow up and keep tabs on your kid's growth. best wishes


Having recently seen a therapist who owns a business specializing in ADD/ADHD I must say that I warn you to procede cautiously when sending a child to therapy, ie to meet with the therapist yourself first, and gather your own opinion, before sending a child in. I am still going thru self-esteem issues that arose DUE to his approach, not being helped by his approach. The therapist, himself having a disorder, which was I thought the best part about him, that he admitted his own condition upfront, was often late for the appointments and worst, very negative in his beliefs about ADD/ADHD once you get to the point of ''diagnosis.''Upon ''diagosis'' which consisted solely of appointments with him and costly forms, he then recommended that I continue on with their other ''services''-- such as coaching-- which of course, they so happen to offer. It seemed more of a snag-you-in type of business than working with ones needs. anon
Educating yourselves is essential, so read, read, read and visit reputable websites. I suggest SchwabFoundation.org, helpforadd.com, CHADD.org and ldonline.org for a few to start with. Watch out for emotionally based information. There's lots of good science focused on ADHD and you might as well benefit from it. You can be more of a help to your child if you feel authoritative because you have excellent information. Some big thinkers in this area (and they don't all agree) are Russell Barkley, Peter Jensen, Ned Hallowell, Mel Levine and John Ratey (the last two are my personal favorites). You could drown in the amount of information, but you have to start somewhere. An ADHD diagnosis provides useful information that can avert difficulty for your child. It doesn't have to be sad, although it is a challenge for sure! Best of luck. LL
I have ADD/ADHD.

1. Local resources: local CHADD chapters, support groups etc etc can be found at http://www.chaddnorcal.org. It's a great starting point and you will be welcomed at our meetings!

2. Information: there's a lot of misleading information and scare stories out there. I'm an engineer and like to understand how things really work under the hood. The best book I have read which has real, hard research-based information is by Paul Wender ADHD: Attention-Deficit Hyperactivity Disorder in Children and Adults. Oxford University Press, 2002. It goes into the neuro-chemistry, clinical case-studies etc.

3. Meds.

* I take meds every day and they're helpful.

* Delaying meds will not *harm* your son.

* Ritalin may or may not be the *right* medication - it did not work *for me*. If it makes a positive difference, great. I had BAD sides effects with Strattera which, anecdotally, are experienced by many males although denied by the pharma company. The only times I ever got driving tickets was when I was prescribed amphetamines.

* Meds ''the most effective treatment bar none''? This underestimates the significance of complementing with non-medical support. In my and my friends' experience, meds alone are NOT enough, and you may need to experiment with various organizing strategies and techniques. If you can get him into various habitual daily rituals (making lists and checking them) it will make a huge difference, especially when you and supportive adults are not around.

4. In my experience, many non-specialist educators and medical staff talk very knowledgeably about ADHD although (a) their knowledge comes from third-hand sources and (b) is several years out of date, typically gained through CE credit courses.

5. ADHD is a gift as well as a frustration. Find ways to exploit, develop and enjoy the positive and creative and fun sides of ADHD as well as 'fixing' the disadvantageous side-effects. This will help your son It is important to understand that your child does not have a problem, but a condition. Steve


Two kids with ADD/ ADHD - need meds?

Nov 2005

Both of my kids, now 7 and 8 (20 months apart) have been little handfuls since birth- very active, very verbal, very intense, very creative and very bright. In fact, they were great babies, and we gave ourselves all the credit for raising them ''right''. Both of us parents were similar as kids and it was not thought to be more than a strong personality. We used to joke about ADD, but imposed as much structure as possible and learned to enjoy the chaos...then they started school. Both have problems there, primarily impulsiveness and emotional reactivity. One is gifted based on testing and off-the-charts active, the other distracted, dramatic and dreamy. After one too many discussions with schools, we started family therapy directed at behavioral modification (1-2-3 Magic, etc.) and have instituted every nonpharmacologic approach to ADD on the books. I am a researcher, but I have even done things that have no proven benefits based on research, such as limiting sugar.

Nothing is working for school and whenever we go out to public events (BD parties, etc get them overexcited) although their behavior is markedly better at home. I have tried to think of their ADD as a personality type that can be adaptive in many ways. I work with alot of successful adults who were hyper kids. I cannot seem them as ''diseased'' or having a brain disorder.

But we now are beginning to understand why people medicate their children like ours- the reaction of teachers and other kids and their parents to them causes us and the kids alot of anguish. People are quick to assign blame. It's assumed we do not discipline our kids (and yes, we don't hit them but there are very clear consequences when they misbehave, but impulsive kids still lose control of themselves at times) or spend enough time with them (both parents work), etc. I am tired of yelling at them and dampening their exhuberence, which I have been advised I must do to get them to be able to behave at school and in public. They never were allowed to run around screaming, but you have to shout to keep them in line and impose consequences daily. I am NOT setting expectations too high- as if!- I'm sure half the parents we come in contact with assume I'm too lax. But they also think it's unseemly that when one of the kids get revved up, I have to speak firmly to them in public.

They have friends because they are creative and funny, but if a kid wants to be mean, they choose one of mine. When my kids get upset, they often cry or ''take a swing'' back- very rewarding to tease with low risk of retribution. They both do well in school, but are felt to be underperforming by teachers- one's messy handwriting is said to be a sign of insufficient pride in work product, the gifted one can't sit still for reading aloud. It's one month into the school year and I have been to 2 ''conferences'' about my problem children. I am in tears and stressed out daily- trying to hold the line on their behavior and bear up under criticism, snide remarks and ''advice''.

Here's the dilemma- do we give them medication? We promised ourselves we'd give the other path a full year to work and if anything, things are worse as one year later. I just can't yell anymore at kids who really are trying their best. I know they will gain self-esteem if their schoolwork begins to show their potential (I myself am less concerned about ''grades'' at this age but they both are very invested in school despite daily negativity there). Our medical advice is that it's time to give it a try. One kids is getting too dispirited from all the criticism and the bouncier one is starting to lose his temper from the same. I know I will likely be judged negatively for medicating the kids too, but I am concerned that they used to be hyper and happy, and now they are hyper and anxious.

I am asking for support in general from parents of kids like mine. If you gave your kids medication, what tipped you over into that decision? Did the ''shame and blame'' from outside the family play a role? Did it just wear you down to deal with their behaviors constantly? Did the meds make them into zombies? Some days, I really just want a quick fix, but my real concern is their happiness and future well-being- and it's starting to seem one or both might be happier on meds. not quite super-mom


There are two things that made me feel better about trying medication on my child: 1. There is nothing irreversible about the decision. If you do not like it you can stop ANY TIME! This is not surgery or switching schools or even making a big financial purchase. This is trying a cheap drug with an extremely short half life that will be out of my child's body in a few hours. It is called a drug trial because you are trying it to see if it works. 2. If my child needed glasses or insulin or other medical care I would provide them. Why is the cultural assumption that drugs are so bad?

Use your skills as a researcher and do a lit. search--look at what works, look at what people do in other countries, look at the risks and side effects of ritalin.

Honestly from your letter I couldn't figure out a reason why you wouln't want to try medication. Because people are going to judge you?

Keep in mind if your kids are zombies from the meds. then it isn't that they shouldn't be on them, it may be that they're taking too much.

Get a good doctor who knows about this and then go for it. What do you have to lose?

Also, your kids sound almost old enough and together enough to have an opinion about it themselves. Ask them whether they like it. Sometimes kids like it and feel so much better on medication and ask for their medicine when it is stopped. extremely thankful my child is on medication


You are most certainly not alone! Every parent of a kid with ADHD goes though all this same agonizing. This is such a huge and difficult issue. And other parents can be quite judgemental about your kids, their behavior and if you choose to go with medication, about all that too. It's hard. Give yourself a lot of credit for understanding your kids are trying their hardest already.

If you have not yet seen this site, visit: http://millermom.proboards23.com/

It is a huge source of support on all these issues and includes a large section on complementary & alternative treatments, which work well fro some kids. There is also a large section on conventional medication.

We did a trial of medication when our daughter was your kids' age and the side effects were just too tough to deal with, due to her metabolism, I guess. A few years later we tried again, and it has been really, really good. The side effects have been tolerable, and most importantly, she feels like it is really helpful. It helps her with attention and also with impulsivity in her social interactions. I'm fairly certain that without the meds, her life would be much more stressful and home life would be much more bitter. She's not zombie-ish at all. It seems the key is a willingness to work through the trial-and-error period to find the right medication and dosage-- and that can be trying.

Best of luck on this journey, Sympathetic Parent


You may wish to read Mary Ann Block's book on what you can do for your children through non-pharmaceutical means. Also, know that many modalities have been able to help gifted children (read THE EDISON GENE by Thom Hartmann) which may include: HANDLE (www.handle.org), sensory assessment and integration (http:// www.toolsforlearning.com/), Jin Shin Jyutsu (www.jinshinjyutsu.com), and neurotransmitter assessment with targeted amino acid therapy (www.neuroscience.com). Since ADD drugs work on neurotransmitters (such as serotonin, norepinephrine, and/or dopamine) amino acids (building blocks for all proteins in our bodies) can address the underlying imbalances, after first measuring what the body is making (via urine). You might call the company to locate a practitioner using this methodology. Nori
Hi there, I am a former special Education teacher and am now the Assistant Director of a learning center (www.learningrx.com) in Pleasanton. Have you read ''Driven to Distraction'' by Ned Hallowell? I just heard him speak and he is an adult with ADHD and a very different perspective on things. Try reading his book (s). i was very impressed. Also, you may want to look into cognitive training, such as at LearningRx, or other treatments that involve brain science. Keep your great attitude! Cynthia
You seem to be very thoughtful, ''on top of it'' parents who have done all of the right things to deal with your childrens' difficult behaviors but obviously the treatments and strategies you have tried have not been optimally effective. I would DEFINITELY give medication a try. I don't have children with ADHD children myself, but I am a child psychologist who knows the ADHD treatment literature very well. In the majority of cases children with ADHD respond positively to medication and their lives (as well as the lives of those around them) improve, sometimes dramatically. Of course there can be side effects and the effects of long-term medication use are not well understood. However, if I had a child with ADHD I would definitely give medication a try. If your kids are prescribed a stimulant medication (which is most likely), you will know very quickly whether the meds are having a positive effect. If they aren't or if you are concerned about side effects you can simply stop the meds. It is worth a try. Liz O.
I have a child who somewhat fits the same description as yours. We held off on medication for 10 years, determined to work with our child. We tried EVERYTHING. The differences in raising a child who has ''issues'' really became apparent to us when we had other children and began realizing that ''normal'' children do not behave/react the way our oldest child does. This may seem obvious but if you don't have anything to compare it to it is not. We finally relented with the medication for many reasons, all of which you touched on in your email. Primarily though was finally getting to a point where I felt my child was enduring failure after failure no matter how hard he tried and that it was starting to shape his character and who he believed he was. As a parent I also had had enough of being judged and my child being judged. Because we had other children who were absolutely delightful we had a bit more faith that there was nothing wrong with our parenting but rather a roll of the genetic dice. But anyone who thinks that having a difficult child doesn't wreck havoc on your family, personal life, marriage, self-esteem etc. is fooling themselves. Likewise, I've come to the conclusion that to plod along in the hopes that things will improve for your child is naive at best and can be extremely damaging to the child who is experiencing all the frustration that impulsiveness and other strong behavior creates.

Medication is not a miracle although we saw a difference in our child within the first few weeks of starting. What it has done for our child is help him focus and control his behavior just enough that he can engage and learn in his school environment and start experiencing some of the success that is rightfully due to him because he is smart and bright and can be a pleasant guy. We use the lowest dosage that we are comfortable with and that appears to make a difference. We use his more balanced personality as teaching opportunities to empower him to take responsibility for himself. Now, I'm convinced we did the right thing and could kick myself that we waited 10 years before getting help for our child. Because he has had some real success, I hope that as he grows older and his maturity and physiological system catches up OR he learns about better behavior and can more control his actions he may be able to eventually be med free. But I would also support him staying on the med as long as he benefitted from it. We'll just have to see what the future holds. Happy to have a happy kid


You sound like a great mom! It's very difficult, I know, and I give you a lot of credit for trying so hard and thinking this through so thoroughly. My son, who is now 11 and in 6th grade, was diagnosed with ADD at the beginning of 5th grade. Trust me, I was very opposed to the idea of meds, but I was also really tired from years of dealing with various behaviors that you described very well. More importantly, I was concerned about his growing frustration and discouragement as he got older and more self-aware and as the expectations at school increased. The thing that helped me most was that I have a tremendous amount of trust in his doctor, Brad Berman. I trusted the diagnosis, because it was certainly not something that Brad rushed into. Nevertheless, I felt very sad about it because I felt terrible that my son was going to have to deal with all this (meaning the ADD label, taking meds, etc). When Brad pointed out that my son was already dealing with it (meaning ADD itself), I realized that perhaps my resistance to meds was not helping my son. I was also terrified that my kid would be dramatically different and somehow not-himself if he took medication.

I wanted to write to tell you that trying meds was the best thing we could have done. My kid is still his same wonderful smart weird energetic (and occasionally very trying) self, but it is just much easier for him to focus and control his impulsivity. He handled what could have been a very difficult transition to middle school this fall beautifully. He likes school and is doing very well there, both academically and in terms of behavior. He would tell you himself that it helps him to take the medication. One initial issue was getting the right drug. He started on Concerta, which kept him up all night, but after switching to Ritalin, that was much better. The other, ongoing, issue is that he doesn't have much appetite in the middle of the day - we've had to be pretty vigilant about making sure he eats.

I would encourage you to get a second medical opinion if that would help, and then just to give it a trial of a month or two. You can always take them off medication if you feel the harm outweighs the benefits. I still cannot necessarily say I'm thrilled at the idea of medication, and I just have to tune out those who want to be judgmental about it, but our experience has been very positive. Good luck with your choice. Been there, doing that


This is a very hard issue -- I know just what you are going through because we have faced this situation and are still grappling with it. Our son is now 12 and still struggling with ADHD/ADD symptoms, as well as some other symptoms that unfortunately also have left him without friends. We started trying medications because of very intense pressure from his school. We resisted for a very long time and also tried many different kinds of alternative therapies, none of which had much impact. We finally gave in because of the pressure as well as our feeling that we needed to do something to allow him to have as much of a ''normal'' childhood as possible -- which he clearly was not having. So we tried many different kinds of medicines, most of which had very little impact and some of which had horrendous side effects. About a year ago, we started him on Adderal time-release, which has had some impact. He still has problems when he gets frustrated and anxious, but in general has a much easier time focusing in school and maintaining a least a little more even temperment in school. However, night-time, when the medication wears off, is more difficult at home.

It is all a very painful process -- for both your children and for you. It never ceases to amaze me how other people make such negative assumptions about your parenting skills when your children ''act out.'' In our case, we had to battle not only other parents, but the school, where the principal was very unsupportive and, despite a public pronouncement of ''community,'' took a hands-off approach to creating a community for our son. We, like you, have clear rules and clear consequences and discipline at home, but suffer others' assumptions and implicit criticism when our child acts in a way that is contrary to their expectations.

Good luck in your decision. anonymous


I don't have advice, mostly because I'm right about the same place you are. But I sure do sympathize. I have a bright, extremely active, emotional, and impulsive 6-year old first grade daughter. During her troubled K year we sent her to a psychologist for play therapy and it seemed to help somewhat with the outbursts and periodic non-cooperation at school. This year started poorly and we are now getting a behavioral pediatrician to evaluate her. Maybe you've done something like that? It's a dozen sessions total with the doc plus he does numerous phone interviews with the people she interacts with. We will see what's on the other side of that, and although I will exhaust all avenues before medication, the downside of her behavior is so damaging to her sense of self I cannot let it go on indefinitely. Our options are 1)find a less structured school, or move to the outback and homeschool 2) commit to long term therapy to see if the psychological support helps 3) meds. Obviously keeping a solid routine at home -- guarding their sleep and eating habits -- helps quite a bit, but it sounds like you have that covered. My kid does no extra-curricular stuff outside of school since she's exhausted and fragile at the end of the day, and much more apt to lose control. Are your kids at public or private school? And did you find the Magic 1-2-3 program helpful at all? I'm not familiar with it. signed, sarah, a sympathetic mom
I wish I could give you a hug! I too have been down the road of the judgement of others youre too permissive, but you shouldnt yell, your child is too loud, too active, calls out the answers, reacts bigger to teasing and such.

Do you know that your kids have ADD/ADHD? Have they been diagnosed? If they havent, you need to do that. If they have you need a really supportive doctor. I use Brad Berman who is WONDERFUL. He really likes my kid! He really cares. Hes told my son to call him anytime. They have one-to-one talks. Brad tells my son how terrific he is and is frank about the issues hes dealing with. My son too is gifted, cares about school, has friends. But the ability to control himself is not all there yet. We decided to put him on meds when he expressed his concern about how things were at school. He is very clear that having meds helps him focus on school and on his homework. It has helped with his cooperation as well. He was already a very self aware person not that he sat down and talked a lot about it, but at times he certainly does. It has made life much easier for everyone and school is much better. We also decided in middle school to put him in a private school with whole-child approach - that is they care about his mental and emotional state as well as his academic performance.

By the way, I got the recommendation for Dr. Berman a few years ago from this list. His office is in Walnut Creek and his phone number is 925-279-3480. There was a waiting list for new patients when we signed up. But I left a very frank message about how hard things were and they got me in earlier.

Good luck! Don't be afraid of meds.
a mom who has been there


Phew! You have your hands full. A household full of ADHD is an exciting and demanding place to be a parent. I have three perspectives to offer you. I got a diagnosis of ADD Inattentive for my 7th grade daughter many years ago and followed the suggestion of the doctor to give ritalin. I was really shocked when she commented, ''Now I can follow the conversation at the dinner table mom!'' She was not really the shy, uninterested in people, more interested in TV kid that I thought I knew. She had a great, dry sense of humor and enjoyed eighth grade more than she had ever enjoyed school because she discovered that her ''exposed'' personality made her POPULAR. The key to getting this is to see that she was always there, but her distractibility (among other things I won't get into here) made it so hard for her to keep up with the action that she just gave up. She later went off meds in high school, the sense of humor and popularity stayed, the things she had learned while available on meds continued to help her stay organized and recognize when her ADD was getting in the way. The story is longer, and not everything is so lovely, so in other words, she is really a normal kid. That's my personal, indirect, experience.

I am also a volunteer facilitator for an adult support group and a certified parent trainer for CHADD. I hear a lot there from people who have experienced AD/HD from both sides, medicated and non-medicated. chadd.org has a national clearinghouse and it is a place to get information about medication and support groups for parents. Schwab Foundation has a parent message board.

In my private educational therapy practice I see people who have had both good and poor results with medication. It's not for everyone and it's a very personal choice. Medication works best with education - of kids, teachers, parents, family, friends.

The practical considerations you mention are the reality of life with ADHD in this time and place. It's not easy, but it doesn't have to be awful! Good luck to you. linda lawton


Two words about your situation: Brad Berman. He is fabulous, thoughtful, and knows his stuff. Other postings have mentioned him as well. Our child is 100% better all the way around after starting on meds. Why have your child(ren) struggle and fail academically and socially if they can't help themselves because their brain chemistry is off? If your kid was diabetic and needed meds, you'd use them. It's the same deal with ADHD. If your child doesn't improve with meds, you can always stop them with no adverse affects. And forgive people who judge you and your children: they are clueless, thoughtless, and obviously need all the help they can get in order to be kinder and gentler in the world. It can get better
Another perspective on meds for ADHD: I'm always wary of comparisons of ADHD with medical conditions such as Diabetes (as in advice like ''If your child had diabetes you wouldn't withhold insulin, would you?''), which are illnesses that involve the body failing to produce a needed chemical/hormone/whatever that it naturally produces--like insulin, or thyroid hormone for people with thyroid conditions or even seratonin for depressed people. Ritalin and many ADHD medications do not replace missing chemicals in the body--they introduce new ones, often stimulants, and the long-term results of medicating children like this are still being studied. The jury is by no means in, as far as I understand it, on those effects. For instance, I gather it is now proven that prolonged use of ADHD medication can permanently stunt a child's growth. Also, anecdotally, I know more than one child who has tried the spectrum of medications offered for ADHD and who may be doing better with attention, but whose appetite has not returned despite prolonged use and the promise that it will, and whose sleep patterns seem to be permanently disruptive. By no means do I think that medication should NEVER be tried, but I DO think that the argument that medication is THE answer to ADHD needs to be greeted with some sceptcism, especially when advocated by an organization (CHADD) that, while appearing to have sprung up from a grass-roots parent support group, is actually deeply funded by Ciba Geigy, the very drug company that makes Ritalin. (see this PBS report for more detail: http://www.pbs.org/merrow/tv/add/chadd.html). I say, don't rule out medication, but try everything short of it first! Susan

ADHD and IEP?

Sept 2004

Is an IEP appropriate for a 7 year old child just diagnoised with AD/HD? Should I request an IEP from the school? We have not yet tried drugs, but I want to get more information before we try them. I wonder if the school/teacher would give him more attention if he has an IEP in place, or if this would lable him. ANy help is really appreciated. Thanks. Mom


As a parent of a teenager who also was told in Kindergarden that he needed an IEP, I would say to hold off as long as possible. Schools often try to insist on an IEP to put your child in Special Educ. classes, which he probably doesn't need, and where, unless he is extremely slow, he won't learn much. The reason they do this is because they get much additional funding for everyone they put into Special Educ. Putting my son, at the teacher's recommendation, into a special educ. class, even though it was only for a semester, was the worst thing I ever did to him, and put him behind. He is now a h.s. sophomore and doing fine with the regular curriculum because I worked with him at home every evening (he has ADD & is dyslexic, etc.) and kept him out of special educ. They are still requesting an IEP for him, but at this point, I think it would do more harm than good. Don't do it! a former teacher
How is your child doing in school? Is the ADHD adversly affecting his academics, behavior, or social emotional well being? Ask the teacher how he is doing. Ask her/him if you can have a Student Study Team regarding this current diagnosis. A Student Study Team (SST) is (hopefully) made up of a school psychologist, the principal, the Resource Specialist, the classroom teacher, the parents, and possibly others. Here is where you talk about the childs strengths, get/give some information, discuss the concerns, what are some modifications/ accommodations, and make a plan. It may come up that he is showing some significant learning issues that may warrent further testing for an IEP. If not, and you still think you want something more that lists accommodations given in the classroom you can then request a 504 Plan.This is an Accommodation Plan for all students having (usually) health issues that are interfering with their learning. It is not special education but under the Office of Civil Rights. Let me know if you have any problems or more questions. Liz
ADHD itself is not a sufficient reason for an IEP. It is generally not considered to be a qualifier for special education unless it is impacting your child's learning significantly. Generally this is defined as being at least two years below grade level in one or more subject areas. Also, there has to be a discrepancy between ability and performance i.e. if the child is demonstrating an average or above average IQ and has standardized test scores significantly lower than what they should be then he or she might qualify for special education.  You can request testing for an IEP but be aware that you are requesting testing for your child to be placed in special education and that you may not want to do that unless your child really has a learning disability. However, if you feel that your child does have a learning disability along with the ADHD and is not getting the necessary help in class then looking into testing would be the thing to do. Many schools will hesitate to test a child who is in first grade or below, but if the parent requests testing they have to comply. However, you can't request that your child have an IEP- only that he be tested for the school to determine whether or not he will qualify for one. Hope this helps and good luck!
A diagnosis of ADHD does not make your child eligible for an IEP. Only students with one (or more) of the 13 disabilities recognized by the Individuals with Disabilities Education Act may receive special education services. So, unless your child has another disability (such as a learning disability, which often occurs concomitantly with ADHD), an IEP is out of the question.

He is, however, eligible for services under section 504 of the Rehabilitation Act (which is a Civil Rights act that deals with access). Called a 504 Plan, this plan is a program of instructional services to assists students with special needs (who donÂ’t qualify for special education) in the regular education classroom. The plan should detail strategies for helping you child be more successful in his classroom setting. It may include things like: quiet room for testing, seating close to the teacher or away from distractions, assignment modification, etc. Since anyone can begin the referral process for a 504 Plan, I suggest you make a request in writing to the school district/school asking for a 504 Plan referral. In your request, mention the ADHD diagnosis and include a written record from the physician, neurologist, psychologist or other expert who made the diagnosis. Hopefully, the school will comply and ask you to be a part of the process. At the 504 Plan meting, you would offer your suggestions for what would help your child be more successful. HereÂ’s a link with some more information about 504 Plans. http://www.schwablearning.org/articles.asp?r=777

Medication should ALWAYS be a last resort – something you try when you’ve tried everything else and your child is still not meeting with success. Many teachers and administrators will suggest medication because it’s easier than trying to implement behavior plans and educational plans and doesn’t cost the school district anything. As a special educator, I know how important and therapeutic meds are for some kids. But it’s important to explore all other options.

Finally, I understand your concern about labels. Our culture is very quick to identify someone with a label. Some labels are good, though. Your reaction to your child’s ADHD will have the most impact on how it is perceived. It is important to get your child the help he needs so that he can be a success – that’s the label you want for him. Be honest, open and loving about his ADHD and help him understand how it makes him unique. Begin to teach him now how to advocate for himself. And by all means, don’t let a thing like a label prevent you from getting him what he needs. You’re his voice until he’s able to have one himself. Good luck! shari


I would like to comment on previous responses to this request for advice. They all had useful information and good advice, but there were also things that werenÂ’t quite right or partly right. IÂ’m not disputing anyoneÂ’s personal experience, but adding clarification about the law.

''Schools often try to insist on an IEP to put your child in Special Educ. classes, which he probably doesn't need, and where, unless he is extremely slow, he won't learn much. The reason they do this is because they get much additional funding for everyone they put into Special Educ.''

It is true that districts receive money for each special education student, however, the grants for special education donÂ’t begin to approach the costs; districts and general ed parents complain that special education ''encroaches'' (the word makes me cringe) on the general fund.

The Individuals with Disabilities Education Act [IDEA] requires that students be educated in the ''least restrictive environment,'' which is the general ed classroom for the large majority. The school is not likely to place a student in a ''special day class'' unless he or she really belongs there. A kid of average intelligence with ADHD, with or without learning disabilities, would not be placed in SDC without some severe behavioral problems, for example.

''Only students with one (or more) of the 13 disabilities recognized by the Individuals with Disabilities Education Act may receive special education services. So, unless your child has another disability (such as a learning disability, which often occurs concomitantly with ADHD), an IEP is out of the question.''

ADHD is expressly considered a qualifying condition, usually as Other Health Impaired without other problems. It was added to IDEA in 1999 because a lot of IEP teams didn't realize that it could fit the definition of OHI without being named. A couple of people noted that ADHD has to adversely affect the studentÂ’s educational performance (which is more than grades) to be a qualifying condition for special education, and that is exactly true. All the other eligibility categories require the same criterion, that to benefit from school, the condition has to adversely affect the childÂ’s performance *and* the child needs special education to address the problem. OHI students do not have to demonstrate a discrepancy, though students with learning disabilities must, but California does not require a student be two years behind, as someone suggested. Absent needing special education remediation and support, 504 accommodations may cover what the student needs, and either family or school may request evaluation for special ed or 504.

Regarding medication, one person wrote that “Medication should ALWAYS be a last resort - something you try when you've tried everything else and your child is still not meeting with success.”

That’s one opinion. I have seen many, many families grapple with the difficult issue of medication. Another view might say that parents may not want their child to have met failure in everything they’ve tried before trying medication, which after all, is not an irrevocable decision. That’s between the doctor and the family. The school can never demand that a child be medicated, though in my opinion it’s not out of line for a caring teacher to say something like, “Have you thought of consulting your doctor about medication? Other people might say that a teacher should never mention medication because they aren't professionally qualified to diagnose and treat, and that they’d be seen to be doing it for their own ends, in order to have a compliant student.

Sorry this was so long, and I hope it made some things clearer. Dana Lear, DrPH Negotiating the Maze Special Education Advocacy, Research, Support www.negotiatingthemaze.org


7 yo with ADHD & learning disbilities

Sept 2004

My son is far behind others in reading, spelling and comprehension as he enters second grade (good oakland public school). We have had various tests done, and while he is quite bright, he displays some processing disabilities and mild adhd behaviors. We are wading through all issues, including IEP, behavior counseling, Ann Martin tutoring, Lindamood Bell, further more specific tests on learning. Can anyone offer advice based on their experience? I am looking for experienced professionals who can help us with behavior training (us and him!) and tutoring at our home. We feel by starting early we can get a handle on this, but we would really benefit from some expert advice. Concerned mom


I would be happy to discuss this with you. I'm an Oakland parent with an almost 9-year old who has been receiving services from the district for 5 years. He initially presented with a language delay - still the crux of his problem - but he currently has the most trouble with learning behaviors if in a standard classroom. We tried having him in his local school, but after only 2 months it became a nightmare for him. He's now in a non-public placement with a very small class size and a functional behavior based model, and he's doing incredibly well - testing right at grade level, actually finished 2nd grade in less than a school year. But put him in a class with 20 kids and he dissolves. I think the list of ideas for you to try would be too long to burden this email list. If you want to email me we can discuss offline. Regards Nancy

ADHD and T.V.?

Feb 2002

Have any of you ever heard the idea that too much T.V. can be linked to development of AD/HD? I'm particularly wondering if any of you have read anything by T. Berry Brazelton or Matthew Dumont that supports this idea. Also, does anyone know, have any independent, verifiable, double-blind (i.e. scientific method) studies shown any link between AD/HD and T.V.? Colleen


I am a research psychologist at UC Berkeley specializing in the study of behavior disorders in children and I've worked extensively on 2 studies of ADHD in children. I know of no evidence linking TV viewing to ADHD. There is no theoretical reason to believe there would be a link, and certainly no conclusive evidence that this is the case. ''Proving'' that ADHD is caused by TV viewing would require randomly assigning children to either watch TV or to not watch TV for long periods of time. No one could implement a study like this, and no parent I can think of would agree to have their kids watch TV to see if ADHD develops. I am certainly not advocating a lot of TV watching, but there is no reason I know of to believe it causes or is even linked to ADHD. Note however, that there is ample evidence linking the viewing of violent content on TV or in films to aggressive behavior.
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