ADD/ADHD
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Jan 2007
I was in my salon the other day and spoke with someone who
has a daughter with the same type of problems as my
daughter. some were your typical, but some hit right on
the mark. She said her daughter was tested and was found
to have inattentive ADD disorder. She was givin meds and
went from a majority of D's on her report card to A'S.
Any input or Recommended physicians who specialize in this
hard to detect type of ADD.
Ray
Clearwater Counseling and Assessment Services, in Oakland,
offers comprehensive psychological ADD evaluations, which
include a school observation, for quite reasonable fees. Attention
Deficit Disorder is not a medical condition, and it is best assessed
by a psychologist rather than a medical doctor, although of course
an MD needs to prescribe any recommended medications. Often,
symptoms of ADD can be treated behaviorally, with medication
added only if there isn't satisfactory progress using behavioral
interventions alone. Visit Clearwater's website:
www.clearwaterclinic.com or call Dr. Sharon Witkin at 596-8137 for
more information.
Sally
ADD is a medical disorder that has a higher genetic basis than any of
the other psychiatric disorders (including schizophrenia) and is primarily
treated with medications. I am a psychiatrist who treats UC Berkeley students with attention
deficit disorder. ADD can be with hyperactivity and/or impulsivity but these are not
necessary for the diagnosis. The inability to focus must begin before age 7 and interfer with
two areas of functioning such as school, home life and social skills. For children the
treatment of choice is medications and this is provided by pediatricians and child
psychiatrists. Educating the family and teachers how to work with the child and tutoring as
needed to keep the child up to grade level are also important. For adolescents and adults
treatment choices include medications and cognitive behavior therapy.
Depression, anxiety, substance abuse, bipolar disorder and post
traumatic stress disorder are sometimes co-morbid with ADD so the treatment of
people with ADD is usually complex.
anon
In the work I do we have a different perspective on ADD.
ADD, whether inattentive or hyperactive, stands
for ''attention deficit disorder.'' It implies that there
is a lack of attention. What if there was actually plenty
of attention and it was just being paid to something other
than the outward task at hand? We all have priorities,
what we pay attention to first, and our neurological
system is no different. We will all make sure we are safe
and protected before we deal with anything else. If a
person's tactile system is particularly sensitive it might
be painful to sit in a chair to focus on the lesson in
class, therefore they might squirm to stop the pain in
order to pay attention to the lesson. Likewise, if
auditory or visual systems do not give clear information,
a person might ''space out'' in order to attempt to make
sense of what is going on.Meanwhile they miss pieces and
look like they are not paying attention. Ever have a
difficult time understanding a speaker and get stuck
trying to figure out what they said and by the time you do
the speaker has gone on and you are completely lost? You
weren't being inattentive - you weren't able to attend to
what they were saying until you could decipher that. It
would surely affect your functioning if this happened all
the time! Inefficient or disorganized neurological systems
work harder to give messages that make sense to the
brain. Perhaps a more accurate name for this situation
would be APD or ''attention priority disorder.'' Once the
neurological system is organized the priorities shift and
the person can more readily attend to the outer world.
If this perspective intrigues you, please contact me at
925-934-3500 and we can discuss it. You can also learn
more about this approach, called the HANDLE perspective at
www.learningandgrowth.com.
Best of luck as you look into this complex subject.
Sindy
I'm a Berkeley psychotherapist working mainly with teens who have
learning disorders of one kind or another. Many of my clients have
Attention-Deficit/Hyperactivity Disorder (ADHD). ADHD comes in two varieties.
There is ADHD, Predominantly Hyperactive/Impulsive Type, and there is ADHD,
Predominantly Inattentive Type. Most specialists now consider the
Inattentive Type of ADHD to be a different disorder altogether, not just a
sub-type. ADHDI (as it's often called) is hard to diagnose, because people with
ADHDI don't show outward signs of distractibility; that is, they don't jump
up and down, wiggle, tap pencils, interrupt people, talk ceaselessly, and so
forth. They may appear to be quite calm, composed, and focused; but inside,
their minds may be racing aimlessly from one thought to another. They are
highly distractible: so much so, that they often don't seem to hear what is
said to them or to be aware of what's happening around them. They find it
hard to get started on projects or complete them. They do things quite slowly;
overall they are characterized by what some experts call ''sluggish
cognitive tempo.'' In moments of stress they may slow down rather than speed
up; occasionally people with ADHDI may even fall asleep during important
final exams. Obviously this kind of ADHD can produce severe academic
problems, though it isn't as likely to produce disciplinary problems as the
other type.
I hope you'll find this very basic information helpful. Please let me
know if you have questions.
Caroline
I expected to see tons of answers to this question, so I
held off, but so far the only replies have come from
therapists; nothing from parents! Yes, I have indeed
heard of inattentive ADHD -- we've been living with it for
a long time... ADHD comes in 3 flavors: primarily
hyperactive-impulsive, primarily inattentive, and
combined. Before you settle down with any particular
therapist or doctor with any particular approach, you may
just want to get some basic information. There are so
many good websites, but here are a few that I have found
helpful: CHADD.ORG - extensive information about all
aspects of ADHD; some very good basic information sheets.
MEDLINEPLUS.GOV - National Institutes of Health (I
think...); very authoritative and reputabile; just search
on ADHD SCHWABLEARNING.ORG - lots of very informative
articles on ADHD, as well as on other learning
difficulties. I hope this helps.
anonymous
Oct 2006
Regarding Honors student can't stay focused on homework, Woud you please help with these questions:
- How can I get son tested for ADHD? He also has difficulty
retaining the information that he learned/studied for,
especially in Math and Science.
- We live in Cupertino, CA, is there a similiar organization
as http://www.sos4students.com/ in our area?
Thank you for your help in advance
Anon
Your physician is the only one who can diagnose ADHD
because it is considered a medical condition. Your son
should also be tested for learning capabilities by your
school district. If you make a request to the district
testing office, they MUST (by law) test your child per
your instructions. Good Luck!
Jenny
Two routes. To privately evaluate your son there is Plus Four Solutions
in Los Altos with Dr. Steve Newton. Or, you could talk to your school
counselor about having your son evaluated by the school. (I believe the Cupertino
school district does this free of charge but talk to your son first about whether he's
comfortable being evaluated while at school.)
Mom of ADD kid
Nov 2005
Both of my kids, now 7 and 8 (20 months apart) have been little
handfuls since birth- very active, very verbal, very intense,
very creative and very bright. In fact, they were great babies,
and we gave ourselves all the credit for raising them ''right''.
Both of us parents were similar as kids and it was not thought
to be more than a strong personality. We used to joke about ADD,
but imposed as much structure as possible and learned to enjoy
the chaos...then they started school. Both have problems there,
primarily impulsiveness and emotional reactivity. One is gifted
based on testing and off-the-charts active, the other
distracted, dramatic and dreamy. After one too many discussions
with schools, we started family therapy directed at behavioral
modification (1-2-3 Magic, etc.) and have instituted every
nonpharmacologic approach to ADD on the books. I am a
researcher, but I have even done things that have no proven
benefits based on research, such as limiting sugar.
Nothing is working for school and whenever we go out to public
events (BD parties, etc get them overexcited) although their
behavior is markedly better at home. I have tried to think of
their ADD as a personality type that can be adaptive in many
ways. I work with alot of successful adults who were hyper kids.
I cannot seem them as ''diseased'' or having a brain disorder.
But we now are beginning to understand why people medicate their
children like ours- the reaction of teachers and other kids and
their parents to them causes us and the kids alot of anguish.
People are quick to assign blame. It's assumed we do not
discipline our kids (and yes, we don't hit them but there are
very clear consequences when they misbehave, but impulsive kids
still lose control of themselves at times) or spend enough time
with them (both parents work), etc. I am tired of yelling at
them and dampening their exhuberence, which I have been advised
I must do to get them to be able to behave at school and in
public. They never were allowed to run around screaming, but you
have to shout to keep them in line and impose consequences
daily. I am NOT setting expectations too high- as if!- I'm sure
half the parents we come in contact with assume I'm too lax. But
they also think it's unseemly that when one of the kids get
revved up, I have to speak firmly to them in public.
They have friends because they are creative and funny, but if a
kid wants to be mean, they choose one of mine. When my kids get
upset, they often cry or ''take a swing'' back- very rewarding to
tease with low risk of retribution. They both do well in school,
but are felt to be underperforming by teachers- one's messy
handwriting is said to be a sign of insufficient pride in work
product, the gifted one can't sit still for reading aloud. It's
one month into the school year and I have been to
2 ''conferences'' about my problem children. I am in tears and
stressed out daily- trying to hold the line on their behavior
and bear up under criticism, snide remarks and ''advice''.
Here's the dilemma- do we give them medication? We promised
ourselves we'd give the other path a full year to work and if
anything, things are worse as one year later. I just can't yell
anymore at kids who really are trying their best. I know they
will gain self-esteem if their schoolwork begins to show their
potential (I myself am less concerned about ''grades'' at this age
but they both are very invested in school despite daily
negativity there). Our medical advice is that it's time to give
it a try. One kids is getting too dispirited from all the
criticism and the bouncier one is starting to lose his temper
from the same. I know I will likely be judged negatively for
medicating the kids too, but I am concerned that they used to be
hyper and happy, and now they are hyper and anxious.
I am asking for support in general from parents of kids like
mine. If you gave your kids medication, what tipped you over
into that decision? Did the ''shame and blame'' from outside the
family play a role? Did it just wear you down to deal with
their behaviors constantly? Did the meds make them into zombies?
Some days, I really just want a quick fix, but my real concern
is their happiness and future well-being- and it's starting to
seem one or both might be happier on meds.
not quite super-mom
There are two things that made me feel better about trying
medication on my child:
1. There is nothing irreversible about the decision. If you do
not like it you can stop ANY TIME! This is not surgery or
switching schools or even making a big financial purchase. This
is trying a cheap drug with an extremely short half life that
will be out of my child's body in a few hours. It is called a
drug trial because you are trying it to see if it works.
2. If my child needed glasses or insulin or other medical care I
would provide them. Why is the cultural assumption that drugs
are so bad?
Use your skills as a researcher and do a lit. search--look at
what works, look at what people do in other countries, look at
the risks and side effects of ritalin.
Honestly from your letter I couldn't figure out a reason why you
wouln't want to try medication. Because people are going to
judge you?
Keep in mind if your kids are zombies from the meds. then it
isn't that they shouldn't be on them, it may be that they're
taking too much.
Get a good doctor who knows about this and then go for it. What
do you have to lose?
Also, your kids sound almost old enough and together enough to
have an opinion about it themselves. Ask them whether they like
it. Sometimes kids like it and feel so much better on
medication and ask for their medicine when it is stopped.
extremely thankful my child is on medication
You are most certainly not alone! Every parent of a kid with ADHD goes though all
this same agonizing. This is such a huge and difficult issue. And other parents can
be quite judgemental about your kids, their behavior and if you choose to go with
medication, about all that too. It's hard. Give yourself a lot of credit for
understanding your kids are trying their hardest already.
If you have not yet seen this site, visit:
http://millermom.proboards23.com/
It is a huge source of support on all these issues and includes a large section on
complementary & alternative treatments, which work well fro some kids. There is
also a large section on conventional medication.
We did a trial of medication when our daughter was your kids' age and the side
effects were just too tough to deal with, due to her metabolism, I guess. A few years
later we tried again, and it has been really, really good. The side effects have been
tolerable, and most importantly, she feels like it is really helpful. It helps her with
attention and also with impulsivity in her social interactions. I'm fairly certain that
without the meds, her life would be much more stressful and home life would be
much more bitter. She's not zombie-ish at all. It seems the key is a willingness to
work through the trial-and-error period to find the right medication and dosage--
and that can be trying.
Best of luck on this journey,
Sympathetic Parent
You may wish to read Mary Ann Block's book on what you can do for your children
through non-pharmaceutical means. Also, know that many modalities have been
able to help gifted children (read THE EDISON GENE by Thom Hartmann) which may
include: HANDLE (www.handle.org), sensory assessment and integration (http://
www.toolsforlearning.com/), Jin Shin Jyutsu (www.jinshinjyutsu.com), and
neurotransmitter assessment with targeted amino acid therapy
(www.neuroscience.com). Since ADD drugs work on neurotransmitters (such as
serotonin, norepinephrine, and/or dopamine) amino acids (building blocks for all
proteins in our bodies) can address the underlying imbalances, after first measuring
what the body is making (via urine). You might call the company to locate a
practitioner using this methodology.
Nori
Hi there, I am a former special Education teacher and am now the
Assistant Director of a learning center (www.learningrx.com) in
Pleasanton. Have you read ''Driven to Distraction'' by Ned
Hallowell? I just heard him speak and he is an adult with ADHD
and a very different perspective on things. Try reading his book
(s). i was very impressed. Also, you may want to look into
cognitive training, such as at LearningRx, or other treatments
that involve brain science. Keep your great attitude!
Cynthia
You seem to be very thoughtful, ''on top of it'' parents who have done all of the right
things to deal with your childrens' difficult behaviors but obviously the treatments
and strategies you have tried have not been optimally effective. I would DEFINITELY
give medication a try. I don't have children with ADHD children myself, but I am a
child psychologist who knows the ADHD treatment literature very well. In the
majority of cases children with ADHD respond positively to medication and their
lives (as well as the lives of those around them) improve, sometimes dramatically.
Of course there can be side effects and the effects of long-term medication use are
not well understood. However, if I had a child with ADHD I would definitely give
medication a try. If your kids are prescribed a stimulant medication (which is most
likely), you will know very quickly whether the meds are having a positive effect. If
they aren't or if you are concerned about side effects you can simply stop the meds.
It is worth a try.
Liz O.
I have a child who somewhat fits the same description as yours.
We held off on medication for 10 years, determined to work with
our child. We tried EVERYTHING. The differences in raising a
child who has ''issues'' really became apparent to us when we had
other children and began realizing that ''normal'' children do
not behave/react the way our oldest child does. This may seem
obvious but if you don't have anything to compare it to it is
not. We finally relented with the medication for many reasons,
all of which you touched on in your email. Primarily though was
finally getting to a point where I felt my child was enduring
failure after failure no matter how hard he tried and that it was
starting to shape his character and who he believed he was. As a
parent I also had had enough of being judged and my child being
judged. Because we had other children who were absolutely
delightful we had a bit more faith that there was nothing wrong
with our parenting but rather a roll of the genetic dice. But
anyone who thinks that having a difficult child doesn't wreck
havoc on your family, personal life, marriage, self-esteem etc.
is fooling themselves. Likewise, I've come to the conclusion that
to plod along in the hopes that things will improve for your
child is naive at best and can be extremely damaging to the child
who is experiencing all the frustration that impulsiveness and
other strong behavior creates.
Medication is not a miracle although we saw a difference in our
child within the first few weeks of starting. What it has done
for our child is help him focus and control his behavior just
enough that he can engage and learn in his school environment and
start experiencing some of the success that is rightfully due to
him because he is smart and bright and can be a pleasant guy. We
use the lowest dosage that we are comfortable with and that
appears to make a difference. We use his more balanced
personality as teaching opportunities to empower him to take
responsibility for himself. Now, I'm convinced we did the right
thing and could kick myself that we waited 10 years before
getting help for our child. Because he has had some real success,
I hope that as he grows older and his maturity and physiological
system catches up OR he learns about better behavior and can more
control his actions he may be able to eventually be med free. But
I would also support him staying on the med as long as he
benefitted from it. We'll just have to see what the future holds.
Happy to have a happy kid
You sound like a great mom! It's very difficult, I know, and I
give you a lot of credit for trying so hard and thinking this
through so thoroughly. My son, who is now 11 and in 6th grade,
was diagnosed with ADD at the beginning of 5th grade. Trust me,
I was very opposed to the idea of meds, but I was also really
tired from years of dealing with various behaviors that you
described very well. More importantly, I was concerned about his
growing frustration and discouragement as he got older and more
self-aware and as the expectations at school increased. The
thing that helped me most was that I have a tremendous amount of
trust in his doctor, Brad Berman. I trusted the diagnosis,
because it was certainly not something that Brad rushed into.
Nevertheless, I felt very sad about it because I felt terrible
that my son was going to have to deal with all this (meaning the
ADD label, taking meds, etc). When Brad pointed out that my son
was already dealing with it (meaning ADD itself), I realized that
perhaps my resistance to meds was not helping my son. I was also
terrified that my kid would be dramatically different and somehow
not-himself if he took medication.
I wanted to write to tell you that trying meds was the best thing
we could have done. My kid is still his same wonderful smart
weird energetic (and occasionally very trying) self, but it is
just much easier for him to focus and control his impulsivity.
He handled what could have been a very difficult transition to
middle school this fall beautifully. He likes school and is doing
very well there, both academically and in terms of behavior. He
would tell you himself that it helps him to take the medication.
One initial issue was getting the right drug. He started on
Concerta, which kept him up all night, but after switching to
Ritalin, that was much better. The other, ongoing, issue is that
he doesn't have much appetite in the middle of the day - we've
had to be pretty vigilant about making sure he eats.
I would encourage you to get a second medical opinion if that
would help, and then just to give it a trial of a month or two.
You can always take them off medication if you feel the harm
outweighs the benefits. I still cannot necessarily say I'm
thrilled at the idea of medication, and I just have to tune out
those who want to be judgmental about it, but our experience has
been very positive.
Good luck with your choice.
Been there, doing that
This is a very hard issue -- I know just what you are going
through because we have faced this situation and are still
grappling with it. Our son is now 12 and still struggling with
ADHD/ADD symptoms, as well as some other symptoms that
unfortunately also have left him without friends. We started
trying medications because of very intense pressure from his
school. We resisted for a very long time and also tried many
different kinds of alternative therapies, none of which had
much impact. We finally gave in because of the pressure as
well as our feeling that we needed to do something to allow him
to have as much of a ''normal'' childhood as possible -- which he
clearly was not having. So we tried many different kinds of
medicines, most of which had very little impact and some of
which had horrendous side effects. About a year ago, we
started him on Adderal time-release, which has had some
impact. He still has problems when he gets frustrated and
anxious, but in general has a much easier time focusing in
school and maintaining a least a little more even temperment in
school. However, night-time, when the medication wears off, is
more difficult at home.
It is all a very painful process -- for both your children and
for you. It never ceases to amaze me how other people make
such negative assumptions about your parenting skills when your
children ''act out.'' In our case, we had to battle not only
other parents, but the school, where the principal was very
unsupportive and, despite a public pronouncement
of ''community,'' took a hands-off approach to creating a
community for our son. We, like you, have clear rules and
clear consequences and discipline at home, but suffer others'
assumptions and implicit criticism when our child acts in a way
that is contrary to their expectations.
Good luck in your decision.
anonymous
I don't have advice, mostly because I'm right about the same
place you are. But I sure do sympathize. I have a bright,
extremely active, emotional, and impulsive 6-year old first grade
daughter. During her troubled K year we sent her to a
psychologist for play therapy and it seemed to help somewhat with
the outbursts and periodic non-cooperation at school. This year
started poorly and we are now getting a behavioral pediatrician
to evaluate her. Maybe you've done something like that? It's a
dozen sessions total with the doc plus he does numerous phone
interviews with the people she interacts with. We will see what's
on the other side of that, and although I will exhaust all
avenues before medication, the downside of her behavior is so
damaging to her sense of self I cannot let it go on indefinitely.
Our options are 1)find a less structured school, or move to the
outback and homeschool 2) commit to long term therapy to see if
the psychological support helps 3) meds. Obviously keeping a
solid routine at home -- guarding their sleep and eating habits
-- helps quite a bit, but it sounds like you have that covered.
My kid does no extra-curricular stuff outside of school since
she's exhausted and fragile at the end of the day, and much more
apt to lose control.
Are your kids at public or private school?
And did you find the Magic 1-2-3 program helpful at all? I'm not
familiar with it.
signed,
sarah, a sympathetic mom
I wish I could give you a hug! I too have been down the road of
the judgement of others youre too permissive, but you
shouldnt yell, your child is too loud, too active, calls out
the answers, reacts bigger to teasing and such.
Do you know that your kids have ADD/ADHD? Have they been
diagnosed? If they havent, you need to do that. If they have
you need a really supportive doctor. I use Brad Berman who is
WONDERFUL. He really likes my kid! He really cares. Hes told
my son to call him anytime. They have one-to-one talks. Brad
tells my son how terrific he is and is frank about the issues
hes dealing with. My son too is gifted, cares about school,
has friends. But the ability to control himself is not all
there yet. We decided to put him on meds when he expressed his
concern about how things were at school. He is very clear that
having meds helps him focus on school and on his homework. It
has helped with his cooperation as well. He was already a very
self aware person not that he sat down and talked a lot about
it, but at times he certainly does. It has made life much easier
for everyone and school is much better. We also decided in
middle school to put him in a private school with whole-child
approach - that is they care about his mental and emotional
state as well as his academic performance.
By the way, I got the recommendation for Dr. Berman a few years
ago from this list. His office is in Walnut Creek and his phone
number is 925-279-3480. There was a waiting list for new
patients when we signed up. But I left a very frank message
about how hard things were and they got me in earlier.
Good luck! Don't be afraid of meds.
a mom who has been there
Phew! You have your hands full. A household full of ADHD is an exciting and
demanding place to be a parent. I have three perspectives to offer you. I got a
diagnosis of ADD Inattentive for my 7th grade daughter many years ago and
followed the suggestion of the doctor to give ritalin. I was really shocked when she
commented, ''Now I can follow the conversation at the dinner table mom!'' She was
not really the shy, uninterested in people, more interested in TV kid that I thought I
knew. She had a great, dry sense of humor and enjoyed eighth grade more than she
had ever enjoyed school because she discovered that her ''exposed'' personality
made her POPULAR. The key to getting this is to see that she was always there, but
her distractibility (among other things I won't get into here) made it so hard for her
to keep up with the action that she just gave up. She later went off meds in high
school, the sense of humor and popularity stayed, the things she had learned while
available on meds continued to help her stay organized and recognize when her
ADD was getting in the way. The story is longer, and not everything is so lovely, so
in other words, she is really a normal kid. That's my personal, indirect, experience.
I am also a volunteer facilitator for an adult support group and a certified parent
trainer for CHADD. I hear a lot there from people who have experienced AD/HD
from both sides, medicated and non-medicated. chadd.org has a national
clearinghouse and it is a place to get information about medication and support
groups for parents. Schwab Foundation has a parent message board.
In my private educational therapy practice I see people who have had both good and
poor results with medication. It's not for everyone and it's a very personal choice.
Medication works best with education - of kids, teachers, parents, family, friends.
The practical considerations you mention are the reality of life with ADHD in this
time and place. It's not easy, but it doesn't have to be awful! Good luck to you.
linda lawton
Two words about your situation: Brad Berman. He is fabulous,
thoughtful, and knows his stuff. Other postings have mentioned
him as well. Our child is 100% better all the way around after
starting on meds. Why have your child(ren) struggle and fail
academically and socially if they can't help themselves because
their brain chemistry is off? If your kid was diabetic and
needed meds, you'd use them. It's the same deal with ADHD. If
your child doesn't improve with meds, you can always stop them
with no adverse affects. And forgive people who judge you and
your children: they are clueless, thoughtless, and obviously
need all the help they can get in order to be kinder and
gentler in the world.
It can get better
Another perspective on meds for ADHD: I'm always wary of comparisons of ADHD
with medical conditions such as Diabetes (as in advice like ''If your child had
diabetes you wouldn't withhold insulin, would you?''), which are illnesses that involve
the body failing to produce a needed chemical/hormone/whatever that it naturally
produces--like insulin, or thyroid hormone for people with thyroid conditions or
even seratonin for depressed people. Ritalin and many ADHD medications do not
replace missing chemicals in the body--they introduce new ones, often stimulants,
and the long-term results of medicating children like this are still being studied.
The jury is by no means in, as far as I understand it, on those effects. For instance, I
gather it is now proven that prolonged use of ADHD medication can permanently
stunt a child's growth. Also, anecdotally, I know more than one child who has tried
the spectrum of medications offered for ADHD and who may be doing better with
attention, but whose appetite has not returned despite prolonged use and the
promise that it will, and whose sleep patterns seem to be permanently disruptive. By
no means do I think that medication should NEVER be tried, but I DO think that the
argument that medication is THE answer to ADHD needs to be greeted with some
sceptcism, especially when advocated by an organization (CHADD) that, while
appearing to have sprung up from a grass-roots parent support group, is actually
deeply funded by Ciba Geigy, the very drug company that makes Ritalin. (see this
PBS report for more detail: http://www.pbs.org/merrow/tv/add/chadd.html). I say,
don't rule out medication, but try everything short of it first!
Susan
Oct 2005
My son has mild ADHD, and has never had medication. He does
well at school, except for homework, which often is
incomplete. Also, his spelling is very non-standard, so to
speak. I wanted to talk with other parents of kids with
ADD/ADHD that do not medicate their child (I am not interested
in any advise that is pro-medication) and ask how they deal
with homework, the intensity of anger with parents and
siblings, the distractability, etc. How are you able to help
channel your child's strengths in a productive way?
It is very important to keep in mind that just because your child has
ADD, it does not mean he does not have any other problems. I say this
with regards to his spelling. Many different things can cause spelling
trouble, and many with ADD have no trouble with spelling. I am not
saying ADD is not the problem, I am just saying that there may be other
problems.
With regards to controlling ADD, and channeling the energy, deciding not
to medicate often means deciding to allow your son to live a slightly
different life than traditional children live. Students with ADD/ADHD
tend to have higher energy, and they therefore require a high energy
lifestyle. He will require more activity, more
attractions/distractions, more behavior management, especially with
regards to conflict and boredom.
PaulTheTutor
I'm sure you'll get lots of advice on this. As a teacher of kids w/
ADD/ADHD I will give you my single best suggestion for homework...
predictable routine. I would try to work with your child's teacher and
ask him or her to reduce the amount of homework (only for a while) and
see if she/he can allow for predictable assignments (i.e. a mathwork
sheet each night in math, the same part of a spelling unit every
Tuesday, etc.) That way, you child will know exactly what needs to be
done. If your child can start getting into the habit of doing a little
homework, and realize that it is something he/she can do and complete, a
routine will get established. You can gradually add more and include
different types of assignments. It will take some communication with the
teacher, but it is worth a try. Best of luck. I think you will be able
to do it w/o meds.
-a teacher
Have you tried books on food allergies and how diet affects children
with ADHD? There are several out there. I have a friend whose son was
diagnosed with ADHD, and wasn't convinced his medication was the right
thing for him. She spent countless hours researching foods on the
internet, and found which foods to avoid -- many contained high levels
of sugar and sodium. Her child's behavior changed dramatically as a
result of his new diet. Hope this helps.
anonymous
Sometimes people who are trying to avoid or reduce medication try The
Listening Center in Walnut Creek. It is very expensive and very time
consuming. They do Tomatis based therapy for auditory processing
disorders. This may help your child if he also has auditory processing
disorders in addition to ADHD. If it is 'just' a question of 'pure'
ADHD which is a neurochemical imbalance then I doubt this method would
help him. They do an evaluation($375)for auditory processing disorders.
A LOT of intensive excercise may also help with the neurochemical
imbalance in the same way that regualar cardiovascular excercise has
been shown to be as effective as an antidepressant in some studies. My
daughter does better sleeping and being calm when she gets LOTS of
excercise.
good luck
Nov 2006
I am interested in what other families have done if the Ritalin
or concerta for ADHD seems to be causing rages in a teenage girl
but no other medications works well enough to get her through a
day at school. This has happened with my daughter. The rages
were so bad that she almost had to be hospitalized. We have
Kaiser Insurance and I am frustrated with the lack of
coordination between the pediatric department and psychiatry
(the only discipline who can prescribe something other than
stimulants)
There is a similar question in the archives but I would like to
know if any other family is currently dealing or has dealt with
this issue and how they handled it.
My daughter has tried adderal and a high blood pressure medicine
without success.
Any advise appreciated
worried mom
Have you considered getting your child off of the meds and in a school that has a
different sort of structure that may be more conducive to her personality? While
ADHD certainly has a basis in the individual, it is also a social construct.
Meaning, in a different sort of situation, a different sort of schooling
atmosphere, the ''problems''
of ADHD - the lack of focused attention, hyperactivity, etc - would not be the
level of problem that it is in a traditionally structured school. Perhaps a
smaller, more collaborative, more physical type of environment would suit her
personality and allow her to succeed without the potentially scary side effects of
the meds, like the rages or whatever else. Just a thought.
Anon
As I have stated before, I do not accept the designation of ADHD as a ''disease'',
and feel that the use of stimulants to ''treat'' this condition is misguided in
almost all cases. I am not a psychiatrist, but, as a neuroscience professional, I
am very concerned about the effects of stimulants on the developing brain. In my
experience, many kids with the diagnosis of ADHD are, in reality, bored and/or
underchallenged in their school situation, or are sufficiently ''different'' that
they disturb the status quo; and, as is common in our culture, need to be
''medicated'' so that they ''fit in''. Often, changing the school situation, and
use of physical activities can go a long way to deal with ''hyperactivity'' and
other ''learning disorders''.
Get another opinion from a good psychiatrist, preferably of academic standing .
Robert A. Fink, M. D.
My son had and has trouble with anger and rage. For him it isn't caused by meds
but I think some meds are better than others. We are using strattera now and
things are not perfect but we're managing. We followed the advice on this list
and went to Dr. Berman. He has been terrific. I hope someone with Kaiser can
help you.
Best of luck to you. This is so hard!
still working on it
I have to ask some hard questions here:
what is this child's diet? how much sugar? wheat? dairy? meat?
and what kinds of sugar, wheat, dairy and meat are being imbibed?
what excercise is this child getting? as in how many HOURS a day?
how much television is this child watching? what kind of television? how much time
playing or watching video games? what kind? how much time on a computer? is this
time on the computer supervised.
what attention 1-on-1 is this child getting? how much of the time each day, of
this child, is supervised by the parents, grandparents, aunts and uncles and
caring adults in the childs life?
it sounds like you are solely ''working'' with allopathic dr's and, frankly, you
are getting the results you are... it is no wonder.
i do not believe in medicating our children. i believe that there are better
answers than poisoning our up-and-coming generations.
hopefully, you will see the answers not hidden within the questions that i have
asked above.
finally, i dont know if you meditate (and i am speaking of non-christian eastern
type meditation) however, if you do not, it is time to learn how to and then teach
this child.
there are MANY MANY forms of ''skilled relaxation'' meditation, guided meditation,
all sorts of tapes/recordings, self hypnosis (my favorite) and so much more.
do not be brainwashed by the allopaths. they are NOT the sole answer, and
frequently, they are no answer at all, as you are experiencing.
this, of course is only my opinion, however, if you look at my questions and find
some non=allopathic pysicians with whom you can work, you will be amazed at the
speedy recovery of your child.
cw
How long has your daughter had these rages? My son (12) had a terrible time at
school last year because his teachers ignored his special ADHD needs (he just got
angrier and angrier) but now that he is in a new school with teachers who know
his issues and how to work with him he is much happier. If these rages have been
going on for some time you need more help than you are getting from Kaiser. Ere
you familiar with Dr. Daniel Amen and his clinic in Fairfield? He has worked with
many types of ADHD kids (and adults) and uses different types of anti-depressants
and/or stimulants to help his patients. His web-site is brainplace.com. He could
also suggest someone closer to you that could help. I often have to go outside of
our healthcare plan to work with specialists but it's worth it because I can't
afford to waste time by not using the best. a concerned mom too
I don't recall your original question but I'd like to add my 2cents
based on the other responses I've read. (As an aside, for what it's
worth, here's a baby boomer who's horrified at the medicating of so many
children, prompted by doctors, ''supported'' by pharmaceutical companies
and completely agree with Dr. Fink and the respondant with the ''hard
questions''). But I have another question. Have you paid attention to
the timing of these rages? Is she menstruating?
If so, are the rages in conjunction with her period? As someone who
suffered from PMDD (a horribly exaggerated form of PMS), until recently
when my periods finally ended, I would say a good 2.5 to 3 weeks of
every month were given over to the hormones around my period, including
deep sadness and rages.
It wasn't until a couple of years ago (after 40+ years of suffering from
this monthly and when it was basically too late to do anything
significant about it) that I finally realized what was going on - in the
meantime it impacted my entire life in many negative ways. Please check
her out for severe PMS (or even PMDD symptoms) so that if this is what's
affecting her, she doesn't have to suffer as well, though it may be
difficult to distinguish if she's being negatively affected by her meds.
Good luck
Joan
I missed the original post, but read the responses with interest.
My son (now grown) was diagnosed with ADHD when he was about ten. We
had him on Ritalin for perhaps 2 weeks. The ''rebound''
effect when he got home from school was absolutely frightening.
He was so angry and violent. We took him off the meds, went further
with diagnosis, and eventually tried him on a variety of other things.
The school was annoyed with us for ''giving up'' on Ritalin so quickly,
but I told them we and he shouldn't have to pay the price we were paying
for a calmer school day. Eventually what worked best for him was a
boarding school for alternate learners (NAWA academy--he didn't get
there until mid-year of 11th grade). He was still on some meds (but not
stimulants) when he was there, but once he graduated, he chose to go off
the meds, and as an adult is managing well without them at a college
that accomodates alternative learning styles (Antioch). He is NOT
bipolar, despite his huge mood swings on ritalin. He is intelligent,
enthusiastic, and highly empathetic after all he has been through. The
bottom line--whatever you decide about medication, if the current med is
causing huge rages at home, you don't need it and she doesn't need it.
There has to be a better way, with or without meds Hang in there--it's
worth it
May 2005
Has anyone used or known anyone who has used a childs individual
neurotransmitter and amino acid tests to manage ADHD. My child
has been on ritalin and concerta for 4 years. For the past 8
weeks there have been progressively more intense angry rages and
outbursts. She is 12 years old. I have lowered her dose and would
like to wean her off the ritalin and concerta. I would like to
begin to use an alternative approach. A reference to the use of
neurotransmitters and amino acids was made in an ADHD parent
support group web site. Any experience or information from any
parent or guardian in this group would be greatly appreciated.
I am also looking for a homeopath with experience with ADHD and
children in Oakland or Berkeley.
Thanks much
Desperate and Anon
Randall Neustaedter, OMD CCH specializes in children and ADHD.
He is a doctor of Oriental medicine and a classical homeopath.
He is in Redwood City at the Classical Medicine Center and
probably worth the drive. You may also find a homeopath or
other practitioner who specializes in children and ADHD by
searching the directory of the Holistic Pediatric Association
at www.hpakids.org.
Jane
I wonder if your daughter is getting more moody because she has began
menstruating recently. Depression doubles in girls at the onset of
menstruation, around age 12. Also, age 12 is a tough age for adolescents and
girls at this age can get into clicks and become difficult to communicate with. I
speak from experience remembering what a hard year my daughter had at age
12, and also as a psychiatrist I often find in women with depression that their
first memory of feeling sad began about age 12.
anon
I wanted to suggest to you that the rages you are seeing are as likely to be in
response to reducing the Ritalin as they are a side-effect of taking it. I take Ritalin
on a daily basis I can tell you that attempts to under medicate, or medicating only
every 4 hours (unless that happens to be your metabolic rate) can lead to moments
of rage and despair (as well as fuzzy thinking) as the meds wear off.
If your child was accurately diagnosed, and medication previously has helped, it may
be that what's needed is more of what she's taken in the past, or a different
medication. Only an expert you trust can tell you whether reducing her meds, or
changing her regimen is a good thing to do -- or even safe. Please, tell me that the
changes you are proposing are being made under the care of an ADHD expert.
Heather
April 2005
My eight-year-old son is a very enthusiastic student and tries
hard in school but has been struggling with reading since 1st
grade (he is in 2nd grade) so it was suggested that he be
assessed by the district and evaluated for ADHD.
For the ADD evaluation, we went to Richmond Kaiser and during the
3-hour process, we filled out reams of paperwork, then sat in a
room full of parents and heard a lecture from the head of
behavioral psychiatry while our son was observed in a room with
12 kids of different ages (all of whom were being evaluated for
behavioral problems). The psychiatrist told all the parents that
the only treatment option for ADD is drugs and Ritalin has no
side effects which I found hard to believe.
Directly after, we reconvened in a psychologist’s office with my
son. It was awkward to discuss why we were doing the evaluation
while he was in the room but we did our best. At one point, my
spouse mentioned that our son’s gymnastics teacher said he
doesn’t always follow instructions in his class and he had to
give him a few ''time outs''. It was the only example we could
think of behavior that might be different from his peers.
Otherwise, he is an active little boy who is happy and mostly
well-behaved. From preschool through second grade, teachers have
said good things about his behavior.
My son told me later that during the group session one little
girl got up and was turning the lights off and on, then a few
kids started yelling: “we’re prisoners, we’re trapped here, let
us out”. He admitted that he did some yelling too. He wouldn't
say much about it beyond that.
After the appointment, we and his teachers completed evaluation
forms about his behavior. A few weeks later, the psychologist
left a phone message that he was negative for ADD/ADHD. However,
she had observed some defiant/oppositional behavior. She offered
us space in an Oppositional Defiant Disorder Workshop. At that
point I was feeling so demoralized, I didn't bother calling back.
I have since had a subsequent conversation with her and clarified
that there will be a note in his medical record that she observed
''oppositional'' behavior in groups. It's not a diagnosis, just an
observation and was supported by what my spouse had said about
the gymnastics class. I thought about defending my son,
explaining that it had been a bad day and his rowdy behavior was
out of character but it seemed pointless.
I am still frustrated by the whole experience and feel like he
got a raw deal. Have other parents who have been through an
evaluation at Kaiser experienced something similar?
frustrated mom
Hello,
I really sympathize with you. I think you can have a private
evaluation if it is possible. I would not trust anyone who evaluated my
child in group formats because your child can behave differently with
all the other kids with behavior issues.
I strongly suggest that you tackle the reading problem soon.
My son had reading problems since 2nd grade. I have tried everything
know possible to get help for him. We have not had him tested for ADD. I
have had private tutors, been to Sylvan Learning Center, been to
Lindamood Bell program. I have spent so much money, with no significant
improvement. He is in 7th grade now and his poor reading skills is effecting
him. Just last week, I found about a place called Interactive
Metronome. You can check them out on the net (they promise great reuslts like
everyone else) We are going to see if that would help my son. Wish you
the best.
mother
Sept 2004
Is an IEP appropriate for a 7 year old child just diagnoised with AD/HD? Should I
request an IEP from the school? We have not yet tried drugs, but I want to get more
information before we try them. I wonder if the school/teacher would give him
more attention if he has an IEP in place, or if this would lable him. ANy help is really
appreciated. Thanks.
Mom
As a parent of a teenager who also was told in Kindergarden
that he needed an IEP, I would say to hold off as long as
possible. Schools often try to insist on an IEP to put your
child in Special Educ. classes, which he probably doesn't need,
and where, unless he is extremely slow, he won't learn much.
The reason they do this is because they get much additional
funding for everyone they put into Special Educ. Putting my
son, at the teacher's recommendation, into a special educ.
class, even though it was only for a semester, was the worst
thing I ever did to him, and put him behind. He is now a h.s.
sophomore and doing fine with the regular curriculum because I
worked with him at home every evening (he has ADD & is
dyslexic, etc.) and kept him out of special educ. They are
still requesting an IEP for him, but at this point, I think it
would do more harm than good. Don't do it!
a former teacher
How is your child doing in school? Is the ADHD adversly affecting his
academics, behavior, or social emotional well being? Ask the teacher
how he is doing. Ask her/him if you can have a Student Study Team
regarding this current diagnosis. A Student Study Team (SST) is
(hopefully) made up of a school psychologist, the principal, the
Resource Specialist, the classroom teacher, the parents, and possibly
others. Here is where you talk about the childs strengths, get/give some
information, discuss the concerns, what are some modifications/
accommodations, and make a plan. It may come up that he is showing
some significant learning issues that may warrent further testing for an
IEP. If not, and you still think you want something more that lists
accommodations given in the classroom you can then request a 504
Plan.This is an Accommodation Plan for all students having (usually)
health issues that are interfering with their learning. It is not special
education but under the Office of Civil Rights. Let me know if you have
any problems or more questions.
Liz
ADHD itself is not a sufficient reason for an IEP. It is
generally not considered to be a qualifier for special
education unless it is impacting your child's learning
significantly. Generally this is defined as being at least two
years below grade level in one or more subject areas. Also,
there has to be a discrepancy between ability and performance
i.e. if the child is demonstrating an average or above average
IQ and has standardized test scores significantly lower than
what they should be then he or she might qualify for special
education. You can request testing for an IEP but be aware
that you are requesting testing for your child to be placed in
special education and that you may not want to do that unless
your child really has a learning disability. However, if you
feel that your child does have a learning disability along with
the ADHD and is not getting the necessary help in class then
looking into testing would be the thing to do. Many schools
will hesitate to test a child who is in first grade or below,
but if the parent requests testing they have to comply.
However, you can't request that your child have an IEP- only
that he be tested for the school to determine whether or not he
will qualify for one. Hope this helps and good luck!
A diagnosis of ADHD does not make your child eligible for an
IEP. Only students with one (or more) of the 13 disabilities
recognized by the Individuals with Disabilities Education Act
may receive special education services. So, unless your child
has another disability (such as a learning disability, which
often occurs concomitantly with ADHD), an IEP is out of the
question.
He is, however, eligible for services under section 504 of the
Rehabilitation Act (which is a Civil Rights act that deals with
access). Called a 504 Plan, this plan is a program of
instructional services to assists students with special needs
(who don’t qualify for special education) in the regular
education classroom. The plan should detail strategies for
helping you child be more successful in his classroom setting.
It may include things like: quiet room for testing, seating
close to the teacher or away from distractions, assignment
modification, etc. Since anyone can begin the referral process
for a 504 Plan, I suggest you make a request in writing to the
school district/school asking for a 504 Plan referral. In your
request, mention the ADHD diagnosis and include a written
record from the physician, neurologist, psychologist or other
expert who made the diagnosis. Hopefully, the school will
comply and ask you to be a part of the process. At the 504 Plan
meting, you would offer your suggestions for what would help
your child be more successful. Here’s a link with some more
information about 504 Plans.
http://www.schwablearning.org/articles.asp?r=777
Medication should ALWAYS be a last resort – something you try
when you’ve tried everything else and your child is still not
meeting with success. Many teachers and administrators will
suggest medication because it’s easier than trying to implement
behavior plans and educational plans and doesn’t cost the
school district anything. As a special educator, I know how
important and therapeutic meds are for some kids. But it’s
important to explore all other options.
Finally, I understand your concern about labels. Our culture is
very quick to identify someone with a label. Some labels are
good, though. Your reaction to your child’s ADHD will have the
most impact on how it is perceived. It is important to get your
child the help he needs so that he can be a success – that’s
the label you want for him. Be honest, open and loving about
his ADHD and help him understand how it makes him unique. Begin
to teach him now how to advocate for himself. And by all means,
don’t let a thing like a label prevent you from getting him
what he needs. You’re his voice until he’s able to have one
himself.
Good luck!
shari
I would like to comment on previous responses to this request for advice. They all
had useful information and good advice, but there were also things that weren’t
quite right or partly right. I’m not disputing anyone’s personal experience, but
adding clarification about the law.
''Schools often try to insist on an IEP to put your
child in Special Educ. classes, which he probably doesn't need,
and where, unless he is extremely slow, he won't learn much.
The reason they do this is because they get much additional
funding for everyone they put into Special Educ.''
It is true that districts receive money for each special education student, however,
the grants for special education don’t begin to approach the costs; districts and
general ed parents complain that special education ''encroaches'' (the word makes
me cringe) on the general fund.
The Individuals with Disabilities Education Act [IDEA] requires that students be
educated in the ''least restrictive environment,'' which is the general ed classroom
for the large majority. The school is not likely to place a student in a ''special day
class'' unless he or she really belongs there. A kid of average intelligence with
ADHD, with or without learning disabilities, would not be placed in SDC without
some severe behavioral problems, for example.
''Only students with one (or more) of the 13 disabilities
recognized by the Individuals with Disabilities Education Act
may receive special education services. So, unless your child
has another disability (such as a learning disability, which
often occurs concomitantly with ADHD), an IEP is out of the
question.''
ADHD is expressly considered a qualifying condition, usually as Other Health
Impaired without other problems. It was added to IDEA in 1999 because a lot of IEP
teams didn't realize that it could fit the definition of OHI without being named. A
couple of people noted that ADHD has to adversely affect the student’s educational
performance (which is more than grades) to be a qualifying condition for special
education, and that is exactly true. All the other eligibility categories require the
same criterion, that to benefit from school, the condition has to adversely affect the
child’s performance *and* the child needs special education to address the problem.
OHI students do not have to demonstrate a discrepancy, though students with
learning disabilities must, but California does not require a student be two years
behind, as someone suggested. Absent needing special education remediation and
support, 504 accommodations may cover what the student needs, and either family
or school may request evaluation for special ed or 504.
Regarding medication, one person wrote that
“Medication should ALWAYS be a last resort - something you try
when you've tried everything else and your child is still not
meeting with success.”
That’s one opinion. I have seen many, many families grapple with the difficult issue
of medication. Another view might say that parents may not want their child to have
met failure in everything they’ve tried before trying medication, which after all, is
not an irrevocable decision. That’s between the doctor and the family. The school
can never demand that a child be medicated, though in my opinion it’s not out of
line for a caring teacher to say something like, “Have you thought of consulting your
doctor about medication? Other people might say that a teacher should never
mention medication because they aren't professionally qualified to diagnose and
treat, and that they’d be seen to be doing it for their own ends, in order to have a
compliant student.
Sorry this was so long, and I hope it made some things clearer.
Dana Lear, DrPH
Negotiating the Maze
Special Education Advocacy, Research, Support
www.negotiatingthemaze.org
Sept 2004
I am trying to help a family member cope with her wonderful yet ''souped up'' 8 year
old daughter, who is taking Ridalin to help her focus in school. She does not have
the classic symptoms of ADHD, and the psychiatrist wonders if she could be manic.
She took Ridalin for four months, and her reading improved 3 grade levels.
Impressive, but she hates taking it (she cries every morning) and has no appetite.
She literally did not gain one pound last year. While the drug does help her focus,
her personality seems to be pulled back to the point where she doesn't quite have
her usual spark. (In fact, she asked her class whether they liked her better with or
without medication. The kids voted for without, while the teachers clearly saw better
learning outcomes since she could concentrate.)
Are there better alternatives? Someone mentioned the drug Straterra... Are there
effective alternatives to drugs? I believe in a holistic approach but do not want to
send the parents through a path of snake oils. I welcome your advice, which I will
pass on.
THANK YOU!
Help Needed
I have seen great results in treating issues like these (bipolar
disorder, ADHD, ADD, etc.) with nutrient therapy. See
www.hriptc.org for an approach. This clinic, although located in
the midwest, does outreach clinics around the country and will be
in the Bay Area next month. Feel free to contact me for more
details.
Robin
I was diagnosed with adult ADHD and began taking Straterra about
8 months ago...it has been an incredible help to me. The
advantage over Ritalin is that it is not a stimulant, and
therefore not a controlled substance. The disadvantage is that
it is patent-protected and therefore much more expensive. For
me! the cost is very worth it. A holistic approach would include
therapy but I don't have the time or patience. :-)
Michael
Hi
There is a great organization called Feingold
(http://www.feingold.org/home.html) that every parent should
know about. My son was displaying behaviour problems often
associated with ADD. He also had problems concentrating and
sitting still at school. On the other hand, he was able to sit
still for a very long time at certain times. The Feingold
organization has done ''numerous studies that show that certain
synthetic food additives can have serious learning, behavior,
and/or health effects for sensitive people.'' My son has become a
different person with the help of this organization. It is well
worth the effort.
happy without medicine
Spending time in a leafy environment can reduce ADHD symptoms.
http://cms.psychologytoday.com/articles/index.php?term=pto-
20040406-000015
Do you really have a proper diagnosis? Is it really ADHD?
http://adhdparentssupportgroup.homestead.com/50conditionsmimicing
ADHD.html
Neurotoxins could be the problem:
http://www.childenvironment.org/factsheets/neurotoxins.htm
sunsol
If you are dealing with ADHD the best first treatment is with
either a stimulant med or a non-stimulant med (Strattera).
Improving diet and lifestyle are definitely helpful, too. (I liked
the comment you got from Michael Bahn about not being
patient enough for therapy -- ADHD humor, ha ha).
If you are dealing with something ''like'' ADHD then Feingold
or a nutritional approach may be all you need. A child who is
sensitive to additives could appear to be ADHD, and benefit
from intervention -- but whether that child has ADHD is a
different question.
ADHD is not a nutritional failing or a character flaw, its a
genetic neurochemical disorder for which there is a known
successful treatment. If you trust your diagnosis and the
doctor who recommends Ritalin, try it If you aren't sure --
find another doctor and get a second opinion. Just because
Ritalin is over-prescribed in general doesn't mean your
child's life can't be transformed by appropriate diagnosis
and treatment.
Heather
Sept 2004
My son is far behind others in reading, spelling and
comprehension as he enters second grade (good oakland public
school). We have had various tests done, and while he is quite
bright, he displays some processing disabilities and mild adhd
behaviors. We are wading through all issues, including IEP,
behavior counseling, Ann Martin tutoring, Lindamood Bell,
further more specific tests on learning. Can anyone offer
advice based on their experience? I am looking for experienced
professionals who can help us with behavior training (us and
him!) and tutoring at our home. We feel by starting early we
can get a handle on this, but we would really benefit from some
expert advice.
Concerned mom
I would be happy to discuss this with you. I'm an Oakland parent
with an almost 9-year old who has been receiving services from
the district for 5 years. He initially presented with a language
delay - still the crux of his problem - but he currently has the
most trouble with learning behaviors if in a standard classroom.
We tried having him in his local school, but after only 2 months
it became a nightmare for him. He's now in a non-public
placement with a very small class size and a functional behavior
based model, and he's doing incredibly well - testing right at
grade level, actually finished 2nd grade in less than a school
year. But put him in a class with 20 kids and he dissolves.
I think the list of ideas for you to try would be too long to
burden this email list. If you want to email me we can discuss
offline.
Regards
Nancy
Dec 2003
My child was recently diagnosed with ADHD and is now
on medication (whoopee, it is really helping!)
1st question: do others of you tell family and friends
your child is on a stimulant? Do you get unsolicited anti-
med advice? How do you handle it?
2nd question:
I have been diagnosed with ADHD too (no surprise)
and have been prescribed a med. The psychiatrist I saw
charges $15/month to process the triplicate. Is this
typical?
thanks!!
It has been my experience that people have some strong feelings about
ADHD meds and are not hesitant to communicate their personal biases if
you give them an opportunity. I would advise giving yourself time to
assess your own response to medication before inviting confusion into
your decision. Your child's teacher should know that your child is
medicated because that relationship is impacted and the teacher can
offer valuable feedback. Teachers are required to maintain the
confidentiality of that information. I am a teacher and an ADHD
coach, so I have heard a lot about this!
Linda Lawton
My 8-year-old daughter was also diagnosed with ADHD (finally!).
She is on Adderall, and is doing immensely better.
Yes, I tell family and friends, and if I got anti-meds flak from
them (which I haven't so far), I woudl offer to let them watch my
daughter for a week or 2 without meds. People who haven't been
in the situation and know nothing about it shouldn't be judgemental!
As far as your psychiatrist charging you to fill out the
triplicate forms - mine doesn't, but I don't feel that it is
unreasonable - since the meds are a controlled substance, there
is probably a certain amount of extra paperwork/processing
involved dealing with the triplicate forms and whatever
regulations are involved.
feel free to contact me if you want a sympathetic ear!
nkf
In reference to the question about meds for your child, my
child is diagnosed with another disorder and has been on meds
for almost a year to control his aggression. I do not tell
everyone, only select family members that will need to know for
his care. There are some people, including family and parents,
that have never accepted his disability from the beginning so
they definately wouldn't understand the fact that he has to be
on meds. I am very careful about who knows and it's not
discussed very often.
Anonymous
Though I don't have enough experience to really answer your question,
there is
a great parent bulletin board/forum with a ton of parents who have
dealt with
this at www.schwablearning.org.
Good luck!
Anon.
Initially I was pretty circumspect about telling people that my
child had ADHD and was on meds. Then I decided that I was role
modelling that it was something to cover up. So I started
treating it like I did my other child having an allergy. Yes,
people do sometimes offer unsolicited advice. But if you
present the information with a tone of confidence (this is how
it is) rather than inquiry (what do you think?) they are much
less likely to say anything. If they do, you can say something
like, thanks for your concern, we're doing fine.
BTW, I realized from the tests that I have mild ADD and have
developed coping mechanisms over the years. So you and I can
attempt to explain what it ''feels like'' but the truth is they
may never understand.
anon mom
The question isn't who to tell, but what to do with unsolicited
advice? In this case I think I'd develop a stock and fairly
harsh response for most people, along the lines of ''Thank
you. I appreciate your insight, but of course you really know
nothing about my child or our circumstances''.
Unsolicited advice is one of the more annoying by-products
of life in Berkeley. PLEASE don't suffer it in silence...
But, if in fact the advice is from family who know and love you
and your child --- I'd request that they withold judgement for
six months and see how things are going. ...And, there's
always the ''Stimulants for ADHD are like glasses for
myopia'' argument. (Its not kind to withold them unless they
aren't really needed).
p.s. My doctor charges $10 for writing the prescription.
Heather
March 1999
I have a 10 year son who has recently been diagnose with ADD. He is not
on any medication(ridilin).
His Doctors recommend the Feingold diet before starting the medication.
I would strongly suggest some research and a visit with a
behavioral pediatrician. There are many useful techniques
for dealing with ADHD that don't involve the use of medications.
The Feingold diet is not one of them.
The Feingold diet removes foods containing additives and preservatives
on the theory that these substances cause ADHD. This claim has not
stood up under scientific testing.
Russell Barkley, Professor of Psychiatry and Neurology at
University of Massachusetts Medical Center, is a leading
ADHD researcher. In his book "Taking Charge of ADHD" he
addressed Benjamin Feingold's claim:
"Most of the substantial research done over the next
decade [after Feingold announced his theory] was
simply unable to substantiate Feingold's claim. In fact,
only a very small number (5% or less) of mainly preschoolers
showed a slight increase in activity or inattentiveness
when consuming these substances. No evidence has ever
been provided that normal children develop ADHD or that
ADHD children are made considerably worse by eating them."
Barkley also addresses another myth about diet--that sugar
causes ADHD.
"Not a single scientific study has been provided by proponents
to support these claims. Since 1987 a number of scientific
studies of sugar have been conducted, and these have generally
proven negative."
There are number of people who promote low-sugar diets for
treatment of ADHD. The diets with the best self-reported
success rates tend to be extremely structured. Researchers
believe that the success of those diets comes not from
lower sugar levels, but from the increased structure
in the child's life and changed parental expectations.
A healthy diet can only help any child, but none of the
diet-based theories about the cause of ADHD have panned out.
Research has established that ADHD is linked strongly
to heredity, and current research points to inherent
chemical imbalances in the brain. In light of these findings,
it seems unrealistic for parents to pin their hopes
on diet as a solution to the problems associated with ADHD.
Ken
With regard to info of interest re ADD, John Taylor, PhD has written
several books on the subject and also speaks nationally about nutrition
and ADHD. He also includes why nutritional blue green algae shows
benefits in many cases across the country.
MaryAnn
Feb 2002
Have any of you ever heard the idea that too much T.V. can be linked
to development of AD/HD?
I'm particularly wondering if any of you have read anything by T.
Berry Brazelton or Matthew Dumont that supports this idea.
Does anyone have copies of these two reports?
* Rosemund, John. ''ADD is Real, and Misunderstood, '' (Raleigh, NC)
The News & Observer, July 9, 1996.
* Rosemund, John. ''The ADD-TV Connection Affirmed,'' (Raleigh, NC)
The
News & Observer, 1997.
Also, does anyone know, have any independent, verifiable,
double-blind (i.e. scientific method) studies shown any link between
AD/HD and T.V.?
Colleen
I have read articles about this, but don't remember source. However, my
sister is a preschool teacher and told me about a particular case of one of
her kids being diagnosed as ADD. She met with the parents and suggested they
cut out T.V. viewing and computer games (child was a youngest sibling)before
administering drugs. Parents were amazed at the results - how much this
child calemd down. Apparently children are meant to do experiential learning
- by doing and moving. When they are passive - as in T.V. viewing - the
energy gets pent up and kind of explodes at some point. Of course, not all
kids react in this way, but for those who do this restriction can really
help.
I am a research psychologist and UC Berkeley specializing in the study of
behavior disorders in children and I've worked extensively on 2 studies of
ADHD in children. I know of no evidence linking TV viewing to ADHD. There
is no theoretical reason to believe there would be a link, and certainly no
conclusively evidence that this is the case. ''Proving'' that ADHD is
caused by TV viewing would require randomly assigning children to either
watch TV or to not watch TV for long periods of time. No one could
implement a study like this, and no parent I can think of would agree to
have their kids watch TV to see if ADHD develops. I am certainly not
advocating a lot of TV watching, but there is no reason I know of to believe
it causes or is even linked to ADHD. Note however, that there is ample
evidence linking the viewing of violent content on TV or in films to
aggressive behavior.
May 2003
My recently-turned-18 y.o. son has a problem which I
don't really understand. He's had his driver's license
for 2 y ears now. Early on in his driving career he put a
few dents in my car, one of which resulted in a point
being added to our car insurance (at an additional
$2,000 premium). Then he bought his own car (with
his own money) with the stipulation being that he would
pay for his own car insurance. Over the last year or so
he has gotten numerous parking tickets (all of which he
paid), had a moving violation for which he did traffic
school, and recently another moving violation. He was
going to go to court to ask the judge whether he could
go to traffic school again, but he thought it was today
instead of yesterday so missed the court date. I wasn't
even aware that the date was yesterday or I would have
reminded him (is that possibly the problem, that he
should be remembering these things by himself,
instead of being reminded?).
Well, today I'm taking him off our policy, which will mean
he can't drive. He doesn't seem to have a problem with
this (he sold his car after he realized that it was more
hassle than cool), since he'll be occupied with stuff over
the summer that won't really require driving and then off
to college.
I don't understand what's going on. We lecture him ad
infinitum, he dutifully takes care of the associated bills,
but the consequences of his actions don't seem to sink
in on some level - that he's throwing money away and
shooting himself in the foot. In most areas he's a very
responsible individual.
If this is an indication of how he's going to deal with
issues when he goes out in the world on his own, I' m
worried for him. Questions - anyone have any idea
what might be happening here? Do I just sit back and
let this one play itself out and let him handle it
completely, or should I try to guide him through it? One
factor in my questions is his age. Supposedly he's an
''adult''. At what point do we abandon them to their
unwise choices?
Naturally I blame myself. I've had pretty severe
depression most of my life and only recently with drugs
has the heavy blanket of fog lifted so that I can see
what's going on around me. I certainly wish I hadn't
resisted anti-depressants for so long; it certainly would
have made me a much better parent. How do I help my
''adult'' child when I know that the parenting he received
was far from optimal? Or do I just say that these are
the cards he was dealt and he'll have to find a way to
play them?
His father (we're not together) was recently diagnosed
with ADD; as with many diagnoses, it seems that
eveyrone has this these days. But I don't want to
completely discount it. Is this a possibility? With the
necessarily limited information I've given and the
numerous questions, does anyone have any
ideas/suggestions?
It seems to me as if things are working perfectly! He is 18
and is learning how to deal with issues for when he goes out
in the world on his own.
Example: He bought a car, had numerous problems dealing
with it and sold it. That is a great lesson for him to have
learned! Next time, he'll buy the car knowing what's
involved and he'll then be ready to deal with the
responsibilities.
Example: He's accepting the consequences of not having
insurance by not driving. And is going on with his life.
This is a very valid choice.
My advice for you is to celebrate his successes: ''dutifully
takes care of the associated bills'', ''In most areas he's a
very responsible individual. ''
As far as the problem of ''throwing money away and shooting
himself in the foot,'' from your description, I would ''just
sit back and let this one play itself out and let him handle
it completely.'' This is the learning process. I wouldn't
completely ''abandon them to their unwise choices'' yet . . .
I'd give advice (knowing that it might not be taken.)
Congratulations on coming out of your fog. As far as
helping your ''adult'' child when you know that the
parenting he received was far from optimal, I think that
talking with him about it openly would be beneficial.
Acknowledge that you know you weren't always ''there'' for
him, express your sorrow for that and tell him that you are
so thrilled by how he's growing up, what a good person he
is, how responsible he is becoming [I believe in seeding
self-fulfilling prophecies ;-)], and how well he did without
optimal parenting, etc.
Are you seeing a therapist as well as the person who is
prescribing the antidepressants? It might help you keep
things in perspective.
My 19-year-old has been going through very similar things,
but he's very good (too good?) at telling me that this is
his life, he needs to make a few mistakes, he won't be
sleeping in a box under the bridge, he'll make more money if
he wastes some, going to college a year after high school is
a valid option, etc etc.! And, you know, he's right! This
year he's in college and is turning in his assignments on
time, reminding me to pay his tuition, living within his
budget, riding his bike to school . . . And it sounds as if
your kid will be fine too.
Another Mom still in training
All of the behaviors you described sound typical of ADD,
plus it does tend to run in families (along with
depression). Considering how dramatically an ADD
diagnosis and treatment seem to have improved many
people's lives, I think it's worth looking into.
I think I know how you feel, though. I keep struggling
with my own skepticism and confusion, because for my
family and me nothing is ever so simple as the latest
popular diagnosis or solution. Neither antidepressants
and therapy nor self-help books, exercise, thyroid pills,
Omega fatty acids, workshops, church, etc. etc. have
made my depression go away completely. One of my
sons, who was diagnosed with ADD four years ago and
medicated for school days and homework ever since,
still has lots of times when he can't focus enough to
accomplish anything. My older son seemed to get his
act together academically without medication, but he
has gotten in serious trouble several times and is
currently way behind on a big research project.
Anyway, it can’t hurt to learn about ADD and consider
having him evaluated for it. There are lots of books
available, including a few focusing on teens and adults,
and lots of resources at http://add.about.com and
http://add.org.
Good luck, and don't blame yourself or think about what
you should have done differently; just go from here to
help your son learn how to help himself.
I think we need a Berkeley support group for parents of
ADHD teens! Anyone else interested?
anonymous mom
It sounds to me like your son is learning from
experience. Lots of people screw up on dates and
paperwork. And it does get expensive.
Whether or not he has a learning disability, it appears
to me that he is dealing with the car insurance in a
logical and realistic manner to me. Is he ranting about
the fact that he can't drive? If not, I'd count my blessings
and move on to the next opportunity for growth.
~Anita
May 2002
My son has recently been diagnosed with ADD. In many ways it
explains some of the difficulties he has been having in school.He
does not have the emotional or behavioral difficulties that often
complicate this condition but has great difficulty with focus,
concentration, impulsive behavior etc... He is repeating 2nd
grade and not doing much better than before. As I look back it
makes sense to me that his father (we are now divorced) also
likely shares this condition although it was never diagnosed or
treated. It is also likely that his father ''self medicated'' (ie:
drug use) to deal with the challenges this condition brings. The
doctor has suggested Ritalin and I have many questions. Will it
turn my son into a zombie? What are the long term effects? I
would like to hear from parents who have had to make this
difficult decision. I would like to know about the good, the bad
and the ugly. I want what is best for my son. I want him to have
a chance to be successful.I have been doing some reading but I
would love to hear from other parents about how you and your
child are managing. Thanks.
a mom
There is a great book that I used for the Cody's Parenting
book group called ''Smart Moves: Why Learning is Not All in
your Head.'' The author, Carla Hannaford, offers a less
typical approach for dealing with ADD that you may find
helpful. She advocates for something called 'brain gym'
which she believes has helped children with all different
types of learning difficulties. Good luck!
Ilona
My now 14-year-old daughter had problems with organization and
attention starting in 2nd grade. I felt that she might have ADD,
but none of her care providers or teachers would acknowledge
that ADD existed. I had her evaluated for all sorts of learning
problems, put her in counseling, etc. Four years later, when she
was ending 6th, I still was reading the same comments on the
report card since 2nd grade: ''Talks too much in class, can't
finish assignments--too distracted. Trouble paying attention.''
My daughter also felt like her impulsivity was irritating to her
friends sometimes. Her self-esteem started really suffering. So
I finally found a specialist who instantly agreed she had ADD.
She has been on Concerta (timed-release ritalin) for almost 2
years. She is much happier. Her grades have improved
significantly (Now As and Bs). I feel our family relationship is
much better because there is less stress. Nightly homework used
to be a nightmare. The main problem now is that some core
academic skills (reading, spelling, vocabulary) were not
instilled during elementary school and, now, in middle school,
she has some problems in those areas. My suggestion is to try
the ritalin and see what you think! It's not a lifetime
commitment. You'll know pretty quickly if it works or if it
doesn't. Hope this is helpful for you and good luck. PS--don't
be surprised if you run into very strong anti-medication
opinions. Read the studies in the clinical journals. Ritalin is
one of the most tested drugs available.
Anonymous
My son also had trouble with focusing and getting things done
and he had some really hellish years in school. No teacher ever
suggested that I have him tested, they said he was smart and
needed to pay better attention. He told me at age 10 that he
wished he had ADD so people wouldn't blame him when he couldn't
focus. He was VERY ARTICULATE. I talked to his pediatrician who
talked to my son. They decided to have a diagnosis. The doctor
found that he has ADD and we started on Concerta (later switched
to Metadate because he didn't sleep well with the Concerta) but
there were results right away. It was easier for him to complete
a task from homework to chores. If you don't see a benefit right
away then you can just stop the medication. It has really helped
my son's confident. It hasn't changed his personality -- as he
says ''I wish it made me want to do homework.'' But now he knows
he can do it and he gets a lot of positive feedback in the
classroom instead of constant reprimands to sit down, stop
talking and not call out the answers. He feels like he's more
under his own control. I really angsted about giving my child a
drug for his brain but he is so much happier. I do keep reading
about it and I subscribe to an e-mail newsletter about the
lastest research findings. You can sign up to receive the
newsletter at http://www.attention.com. Good luck I know it's a
really hard decision and you know your child best.
anon
I've learned a lot about AD/HD lately as I recently made a career
change and became a teacher -- a teacher of special needs kids
with AD/HD and other Learning Differences. I also found out that
I have AD/HD myself!
It is important to know that there are three potential causes for
AD/HD in the brain, and that the medication that can work for
your son must be targeted to the specific cause. What this means
is that your pediatrician needs to try different medications,
carefully monitoring the effects, and see which one works the
best. Don't get discouraged if Ritalin doesn't seem to do the
trick. You may just need to keep trying. Make sure that your
doctor is willing to take this approach and doesn't just write
you a prescription and not follow up.
Meanwhile, there are many things you can do to help. One of the
most important is making sure that your son gets LOTS of vigorous
aerobic excercise, every day! This has been clinically shown to
have a therapeutic effect for people with AD/HD.
There are lots of other, simple ways that you and your teachers
can help him cope. More information is available at a great
educational outreach organization in Campbell (San Jose) called
Bright Solutions. Their Web site is www.dys-add.com. The head of
the company, Susan Barton, conducts workshops on dyslexia and
AD/HD on a regular basis, and she puts aside a chair or two for
parents, for FREE, at each seminar. Please contact her -- she is
a great source of help and inspiration.
Finally, you should be aware that AD/HD, for all it's
difficulties, is a gift. It is strongly associated with higher
IQs and brilliantly creative minds. Tap into that, and your son
will find that he has an incredible asset in his ''different'' ways
of thinking.
Colleen
I don't know a lot about Ritalin or ADD, but I listened to an
interview on NPR on the subject a week or so ago. A book
was recommended which advocates against being too
quick to label a child with ADD, when any of a number of
attention deficits may be to blame for their behaviors. The
author believes that many children are diagnosed with ADD
who don't actually have it, and while Ritalin may be helpful in
making their behaviors more manageable, it's not the best
thing for them, because it's a drug ... for life ... which doesn't
actually address their true problem. If you're interested, the
name of the book is A Mind at a Time, by Mel Levine (sp?).
Susan
I just noticed postings about ADHD so I thought I would let
people know about the free 4 week ADHD series for parents
or teachers. On Thursday June 13th at 6:30Pm till 8:30Pm
Dr. Mel Burman and I will discuss medication issues. We'll
cover the pro's and con's of using medication. The classes
are interactive with a focus on answering parents questions.
Anyone is welcome to attend...no pre-registration is
necessary and no childcare is provided. This will be class
#2 . Weeks 3 and 4 will cover parenting and school issues.
The classes are at Kaiser Permanente, Richmond Medical
Center, 901 Nevin Ave in Richmond (off of Harbor Way) You
take elevator ''C'' to the 3rd floor.
Rona Renner
March 2002
My seven year old son has been diagnosed with ADHD. It's pretty
obvious, and I know he needs help. Although stimulants are
recommended I am curious to know if there are parents who have had
luck with any alternative treatments: homeopathy, behavioral mod.
etc. I would also be interested in any success stories from anyone
using the medications. I'm just concerned about long term medication
on a still delveloping brain. Are my fears unfounded?
Worried Mom
I tried everything possible to avoid medication. We waited till he was
almost 7 yrs. I tried the OPC-3, a health food drink with documented
improvement with many kids with ADHD. I tried for about 4 months, with a
teenie bit of relief. With school progressing, and his situation getting
more demanding, we finally conceded to Ritalin. The result is remarkable.
He is now on a time released all day medication.. It has made an amazing
change in his life, and the rest of our family. Getting him to eat is the
only , but large problem. That is my constant challenge to get him to eat,
let alone foods that are high in calories, but healthy. I choose not to
share this with the school. He still is a wonderful, but very tough child.
anonymous
I can completely relate to your concerns regarding longterm affects of
medicine on a growing body. And I think they are valid concerns. When my
(then) 5 year old was diagnosed 2 weeks before the start of Kindergarten, I
resisted medication for the same reason. I spent a year and a half trying
alternatives including several different homeopathists, and a food allergy
theory that basically eliminated wheat, sugar and milk products (this was
really hard!). Although I believe we gave all approaches a fair amount of
time, sadly, they did absolutely nothing for our daughter. As a result, she
had a miserable Kindergarten experience, and only a somewhat better First
Grade experience (mostly because of a great teacher who was willing to go
way out her way to help her). Mid-way through First Grade, I caved and
decided to try traditional medicine. As much as I hate to say it, I now
believe this is the right road and only wish I had done it sooner. My
daughter, now in second grade, can actually sit and listen and take turns
and cultivate friendships, etc. The key, I think, is to have a doctor that
is well-versed in the condition as well as the available meds and their
possible side-effects - a doctor that has the sense to start small and is
willing to closely moniter your child's health. For instance, the medicine
my daughter is on has been known to cause heart problems in a very small
number of cases. Some doctors' approach is to say just that and assume your
child statistically will fall in the category of no harm done. Instead, my
daughter's doctor requests regular EKG's at Children's where an expert can
look for the slightest anomaly. These are powerful drugs and it is very
scary to put your child on them. But I think if it's done with care and
intelligence, it's worth it. You have to weigh that against the emotional
damage and lowered self-esteem that occurs when they are constantly getting
into trouble at school and when noone wants to be your child's friend. Best
of luck to you as you make this difficult decision.
Anonymous
For both of the ADHD posts, I would consider doing two things. Checking out
food sensitivies (particularly food coloring and additivies) and visiting an
experienced homeopath. There is a great book written about homeopathy
and
ADD/ADHD called ''Ritalin Free Kids''. I've seen other alternative
approaches such as herbs and nutritional supplements work with ADD kids,
but
diet and homeopathy almost always have an quick impact. There are lots of
good practitioners in this area; many have been mentioned here before and
are in the archives.
Tara
Many alternative health care options do exist for helping a child who
presents with ADHD. Sometimes the underlying cause is stress, not
necessarily current but past. Hans Selye and others point out that a single
life event can deplete the adrenal glands and interfere with a person's
ability to ride the tide of daily ups and downs. This could even be too
long being birthed. Osteopathy can help with such birth trauma and get the
child's body on the road to healthy response to quotidian stress. Sometimes
the child has a nutritional deficiency that, while not presenting as THE
deficiency disease, has effects on the efficient interface of child to his
environment. Dr. Abram Hoffer pioneered the use of therapeutic doses of
selected nutrients as early as 1951, with remarkable results. Dr.Hoffer's
ABCs of Natural Nutrition for Children (2001) is a possible resource. A
doctor local to the Bay Area, Richard A. Kunin, does blood and urine tests
to identify possible contributing nutritional deficiencies that may play a
role in behavior. If you want more info about him, you can contact me. No
More Ritalin by Dr. Mary Ann Block is complementary, although generic,
view of nutritional factors.
I hope this helps.
Nori Hudson
March 2002
My 7-year old son developed a vocal tic while on Ritalin. Has anyone
had a similar experience? Does anyone know the prognosis for remission
of the tic? Does anyone know any effective treatments to make the tic go
away? e.g. acupunture, osteopathy, homeopathy treatments?
Obsessive Compulsive Disorder (OCD) has been known to occur in my family.
Consequently, I know that sometimes vocal tics are related to OCD. Doing a
quick search of the web for this, I found a fascinating link to an article
about strep infections sometimes causing tics:
http://www.findarticles.com/cf_dls/m1200/10_158/65913260/p1/article.jhtml
Any chance his tic could have been associated with strep rather than the
Ritalin? Either way, it sounds like further investigation into OCD and
related things might be in order. Here's a link to start with:
http://www.anxieties.com/5OCD/OCD_summary1.htm
There are various treatments for OCD and related disorders, some of them
''allopathic western medicine'' approaches, and some of them more holistic.
Not all treatments will be listed on all pages (some of the pages, for
instance, are actually sponsored by the company that makes the drug they
recommend--so be aware of any potential bias in this regard). I hope you
are able to find a treatment regimen that works for your family. Good luck!
June 2002
I am looking for a support group for my teenage daughter
who has ADD. We are seeing a counselor, and she agrees
that my daughter would greatly benefit from a group of other
girls her age with her same challenges. Things are pretty
dicely right now between us, and I think we both need
support. The counselor is directing me to a group in SF, but
my daughter still needs one. Any leads?
Teen Mom
My daughter is twelve, going into eighth grade next
Fall. She is a mild ADD child, with very few noticed
behavior problems at school. At home, she is a
high-maintenance child. She needs help with organizing
her time, her assignments, her belongings, and so on.
I am very organized and can offer her all sorts of
help in managing her life. However, I get exhausted
from monitoring and shaping her behavior. I could use
some help from a peer support group. Are there any
support groups for ADD teen girls in the
Berkeley/Albany area?
Please reply to the newsletter. Thank you.
Replies received:
Ability Resource Center
Nov 2002
I'd like advice from parents who have had their child worked up
for ADD by a practitioner who specializes in ADD diagnosis and
treatment. Has anyone had a good experience? Also does anyone
have any recommendations regarding Children's Hospital ADD
clinic, The Amen clinic or Dr.Josephine Lindt? I've checked the
archives and need more specific information. Also,ADD runs in
our family and I think I may be affected. Any experience with
specialists for adults? I checked with CHADD and they weren't
very helpful. Thanks!
ADD mom and child
ADD evaluation: Dr. Brad Berman in Walnut Creek.
Excellent, expensive, takes a while to get in his office.
mom with son with ADHD
My advice (of course based on past experience) is NOT to go
directly to the pediatrician (or in Berman's case, developmental
pediatrician). Educational testers like the Ann Martin Center
and A Learning Place, both in Oakland, cast a wide net and look
for much broader possibilities than just ADD. After my son's
teacher told us to get him tested for ADD we almost went the
medical route. The broader testing really suggested to us that
his issues were much more subtle, and the tutoring he's gotten
since has been invaluable.
ADD DAD
I would suggest that you take a look at ''Why Our Children Can't
Read and What We Can Do About It'' by Diane McGuinness. The
author makes several assertions about ADD, that, if true, are
astounding (I trust her because her research seems quite
meticulous). One is that Ritalin does not help ''ADD'' children
learn. Yes, it does help them exhibit behaviors that teachers
prefer, but it has NO impact on their performance on standardized
tests. In other words, it helps the teacher, but not the student.
On page 164 their begins a discussion of ''Control of Attention''.
The author writes that the belief that ''attention deficit''
causes failure to learn persists despite 20 years of research
showing that ''ADD'' children have no attentional problems.
''Instead, research has shown the opposite: Learning failure
causes an inability to attend.''
She also says that 80% of so-called ADD children are boys. ''When
sex ratios for an alleged ''brain disorder'' are so lopsided, this
is extremely suspicious.'' p. 166
If your child is having reading problems, take a look at this
amazing book. The author claims 100% success in teaching any
child who can speak normally to read. There is so much in this
book that I can't recapitulate it all here.
Here is another reason to think twice about Ritalin:
TUESDAY, Nov. 5 (HealthScoutNews) -- Drug use during adolescence,
including such commonly prescribed drugs as Ritalin, may upset
brain chemistry more than any other time in a person's life, new
research says.
The findings should help scientists better understand why
addictions generally begin during adolescence, and what the
long-term risks result.
''This is a major public health question,'' says the lead
researcher, Dr. Michelle Ehrlich, a neurology professor at Thomas
Jefferson University in Philadelphia. ''The adolescent brain
appears to be more sensitive to certain effects of these
psycho-stimulant drugs. We need to see whether this sensitivity
leads to permanent brain changes and behavior changes.''
http://health.yahoo.com/search/healthnews?lb=s&p=id%3A30948
susan
Another route you might want to consider if your child is having
difficulty in school or concentrating (in addition to a medical
evaluation) is to have your child's vision checked by
a ''behavioral optometrist'' (This might seem like an unfamiliar
term but there is even a scientific periodical called the
Journal of Behavioral Optometry !). As an example of how this
might be relevant, if your child's binocular vision is off, it
can make it very difficult to see and focus on words on a page;
but your child won't himself or herself know that this is what
the problem is, or at least a contributing problem is, since
they have no experience of seeing well to compare with.
I learned a lot about vision and how the brain and eyes work
together when I did vision training with a behavioral
optometrist at Harvard University to reduce my myopia (near-
sightedness) from 20-100 to 20-25 (it was a lot of work but well
worth it). Yet I'm often told by medical doctors that I cannot
do what I did. Since I'm a scientist, this attitude really irks
me; they tell me my story is just an anecdote. Yet the plural
of ''anecdote'' is ''data'' ! And more and more data are showing
that vision training is helpful for a variety of vision and
behavior problems. It's not clear to me, however, that a
medical doctor would be up-to-date on these studies. Therefore,
if my toddler has issues in the future with reading, I will
certainly look into a vision problem FIRST before I decided to
go a medical route. Be warned that a medical doctor may think
this is ridiculous because they weren't taught it in medical
school. But specifically a behavioral optometrist (and not a
vanilla optometrist at a commercial outlet) will have a better
idea of how a vision problem could be affecting your child's
learning and attention.
For a description of what behavioral optometry is, go to:
http://www.babousa.org/behvis.html
For your specific issue it says:
''For Learning Related Visual Problems: Approximately 25% of all
patients entering a behavioral optometric practice elect to
enroll into a program of vision therapy. Of this population,
nearly one-third are children with reading and learning
difficulties, most of whom have 20/20 sight acuity but who have
a primary visual difficulty. A primary visual difficulty is most
often found to be the cause of the child's learning dsability.
The most common problems seen in this group are tracking
difficulties (inability to keep one's place when reading), eye-
teaming difficulties (inability to keep both eyes pointed to the
same place in space), and visual focusing difficulties
(inability to keep attention on a particular object in space).
Vision therapy has been shown to have cure rates in the high
90th percentile for these types of visual difficulties. Once the
visual difficulty has been eliminated, the student learns much
more easily. On average, treatment for these difficulties
involves 6-9 months of 40-50-minute treatment sessions 1-2 times
a week.''
I just did a search on the web and also found a link to Parents
Active for Vision Education at www.pavevision.org. I have no
experience with them, but there is a local Bay Area chapter that
you could probably find a recommended list of local doctors from.
This site also has a lot of helpful links and discussions on the
topic and on doctors and their relevant training.
anon
Feb 2000
I just had a conversation with my son's teacher which has led me to seek
testing for ADD for him. My insurance (Health Net with Insight as their
mental health providers) has given me four names of Drs. he can go to
and have told me there are additional names and I should start with
those. I've looked on the parent's site and one of the Dr.s that comes
highly recommended, Dr. Brad Berman, is not one of their providers. Can
anyone give me an opinion on any of the following doctors - past
experiences, hearsay, whatever and/or recommend other Drs that are
providers for Health Net and Inshight? Specifically my son presents
symptoms more often associated with girls - such as distractability and
innatentiveness among other things. He does not present hyperactivity in
it's more traditional forms. Also, can anyone recommend what questions I
should ask and what tests should be done? Thanks.
Dr. Nemirow
Dr. Feingold
Dr. Fallenbum
Dr. Siegel
I have not heard of the doctors you have listed (and I work in the field).
Brad Berman
is very good. I have heard that Dr. Landman may be too quick to give the
diagnosis. Dr.
Diller in W.C. wrote a very interesting book called Running with Ritalin.
He is more
cautious about medication, even though he speaks of the value for some
children. Ann
Parker is very good (if she still takes new patients). It's important that any
evaluation be done by gathering information from teachers and parents. Also
doing
a complete history with the parents is essential. It is often difficult to
differentiate
ADHD (inattentive type) from Learning Disabilities. The school can do
testing to help
with that.(Put your request in writing). There are no tests that are done
to make the
diagnosis of ADHD, so it takes someone with experience who knows how to
talk with parents
(and listen), and who will do some simple educational screening tests with
a child.Many
people will use a CBCL form for the adults to fill out to gather
information. They
are various types of reporting forms.
I have seen many children have a great deal of success on
medication,(including inattentive type)
often after they have tried other things. When the diagnosis is made with
attention and care, and
the situation is evaluated, medication can mean the difference between
functioning well or failing
and feeling dumb, different, or not liked. I was resistant to medications
until recently, and it
has made a big difference in my ability to start a task and actually finish
it. It's like getting
glasses and being able to focus in a new way.
I suggest you do as much reading as you can (go on-line an type in ADHD),
and talk with other
parents. Children with ADHD need to be understood, coached, and guided.
Kaiser Richmond does free classes for parents, and I hear that they are
open to anyone.
Jan 1997
We are looking into having our son evaluated---for possible ADHD,
and any other learning disabilities or whatever. Is there anyone
out there who has traveled this path and can help me find the
right resources? Our son will be 5 next week, and will start
Kindergarten in Berkeley in the fall.
We saw Dr. Brad Berman (a developmental/behavioral pediatrician)
last year, and we are scheduled to see him again in February. But
I am interested in learning more about what's out there, and what
sorts of testing we ought to be doing. We will probably need a
psychologist, too.
Can anyone help?
For people concerned about learning disorders, hopefully they
have had their child's vision checked out. Our binocular vision clinic at
UC deals with lots and lots of children who have trouble learning because
they are not able to see correctly.
Barbara, School of Optometry
I would like to caution parents who are thinking about having ADHD
evaluation done. I'm glad that my son was evaluated, but I found later
that just getting the testing done is enough to earn the ADHD label for
your kid, so be careful who you share this info with. My son later
applied to a school that required parents to state whether they had
ever had their child tested for learning disabilities or ADHD. I also
learned from another parent that the teachers at my son's school were
doing a *LOT* of ADHD referrals. (My son was referred by his teacher).
In the grade below my son's, over half the boys in the class had been
referred for testing, and this was a small academic school where
screening for admissions was done. I began to think that at least
part of the problem was the teachers' frustrations dealing with active,
unruly, uncooperative pre-adolescent boys. (is it just me, or are
they [boys] all like that?) Certainly I've been EXTREMELY frustrated
at times with this kid, and will continue to be so, but in retrospect
I'm surprised at how eager I was at the time to deal with him by getting
a prognosis and a prescription. I don't mean to say that there are
not kids who have ADHD. Just that there are a lot of kids who don't.
re restless young males: I also have had experience with elementary school
teachers who were intolerant of what I considered to be usual little kid
(especially little boy) behavior. One 1st grade teacher recommended over
half the boys in her class for retention (which seems to be more a comment
on her than on them) and a nursery school teacher seemed to me to be
entirely too quick to recommend medicating boys (including my son) who she
perceived to be "a handful" (in other words, they wouldn't sit still for
extended periods of time and color neatly inside the lines of the coloring
books). I concluded that my son was bored to death and got him out of
there. Unfortunately, I couldn't do something preemptive about 1st grade
and he was considerably traumatized by the experience. Given the way that
traditional American elementary school classrooms are run, quiet children
with a high tolerance for desk work are always going to be favored by
teachers who are trained to value that type of "learning" over all others.
I too have been through the ADHD testing and diagnosis. I'll tell my story as an example of a child who needed something
else.
My son, Matt, was diagnosed with ADD and prescribed Ritalin in the 3rd
grade. His behavior had become so impulsive and dangerous that my husband
and I were scared of what he might do next. I was advised to have him
tested for learning disabilities because of his reluctance to read and do
homework even with our help. So the first thing I did was request testing
from the School District Psychologist. Matt was put on a waiting list and
tested four months later. The psychologist defined the problem as a
short-term auditory memory disability combined with an anxious personality.
Matt qualified for the Resource Specialist Program and Title I funding
which requires the district to provide him with an individualized educ
program geared toward his needs. Since January of 1996 he has been going
to a special "quiet" classroom every afternoon with a group of five other
children to practice reading, spelling and writing.
I am so happy and proud to say that he has improved incredibly this year.
Not only academically but emotionally and socially as well. He is on the
honor roll. He can read and chooses to do it. He does his homework. He
cries less than he used to. He is managing his insomnia. He stopped
fighting. He has made friends and has a stronger sense of self than ever
before.
I think the key is finding what is at the root of the individual's problem.
If you find the cause it may be possible to change the behavior that is a
result of the problem. Resources I used in my quest for answers were: the
web ADD site, the library (books on ADHD, learning disabilities,
personality traits, child development, stress, discipline, etc.), other
people who have experienced similar problems with their children or
themselves, tutoring, family counseling, support groups, the UCB vision
clinic, you name it. It took time, energy and patience to figure it out
but it was worth it.
I joined a local chapter of CHAD when my son first diagnosed with
ADD. My husband and I attended several CHAD meetings, seminars and the
like and found them very informative and helpful.
Please note however that there was a huge 20/20 type TV show that
addressed the fact that CHAD is primarily funded by the pharmaceutical
company that makes Ritalin. Ouch !! Many local chapters including ours
pulled out from National Headquarters because of it.
I tend think that any "active" kid has a good chance of being labeled
ADD/ADHD, even with the consensus of both a pediatrician and
psychologist, as was the case with our son. (Of course we all know of
"extreme situations, that are truly valid and must be horrible). We
were warned that when the harmones start to kick in, esp. with boys
and a bit of maturity develops, the activitity level lessens
considerably; as is the case with our son.
Good luck to the Digest Member
Nov 1998
My 10 year old son will be going through
testing at school to see if he has any learning disabilities. They
have suggested that he be tested for ADD by a pediatrician because ADD
is a medical diagnosis. Our entire family sees a "General Physician"
and my boys don't have a pediatrician. I will be asking for a
referral to a pediatrician through PacifiCare and am wondering if
anyone has any reccommendations for a pediatrician who may have
experience with ADD diagnosis and is located in Martinez, Pleasant
Hill, etc. area (Hill Physicians Medical Group).
Kaiser offers a small group screening for ADHD every six weeks which is
pretty thorough. The cost is minimal.
Galen
I have LOTS of info about ADHD. There's a lot of misinformation out
there about ADHD and treatments. This "disorder" hasn't been termed
"hyperactivity" for years and years. I would be very suspicious of an
evaluator who called it that and then gave you the information that since
she "attends" to what interests her, she is not "hyperactive." This is
THE classic definition of ADHD. Have your daughter evaluated
professionally by someone who knows what they are doing. NO teacher or
parent can help your child develop normally if her brain synapses aren't
firing correctly. Believe me I know what I'm talking about.
There's a ton of information about
this very real disability on the Net. Also, your daughter may not have
ADHD. There are many other conditions that cause children to appear
"hyper" and unfocused, from emotional trauma and life changes (a divorce
for instance) all the way to brain tumors. She needs a complete battery
of
tests before you decide on an
intervention. The results of a looong study on children are just coming
out. You may have read about it. The gist of it is that therapy, behavior
mod, counseling, beneficial classroom environment, parental training,
etc. are all good and important, but NONE are very effective without
medicine. And fortunately or unfortunately, depending on how you look at
it, EVEN
MEDS ALONE ARE MORE EFFECTIVE THAN ANY OF THE OTHER INTERVENTIONS
COMBINED. It's a hard decision to put your child on medicine, but I see
it much the way I would feel if she needed glasses to see with.
I am not pro-meds, by the way. Nor do I think every "hyper" kid needs
treatment, far from it. Kids exist along a spectrum from very quiet to
very
wild and it can all be within the range of normal. My 8-yr-old daughter's
behavior wasn't within that range, and I knew WAY before she was
officially
diagnosed at the end of second grade. She was not a behavior problem, just
very "spirited." But it would take her 3 hours of intense struggle,
watching her every moment, to do 15 minutes of 2nd grade homework and she
couldn't learn to read at all, no matter how hard she tried. Now in third
grade, she reads all the time and is doing very well in school, almost
caught up and in some cases, ahead of her class.
Parents, run screaming from anyone who presumes to "know" your child is
ADHD without a professional evaluation. This is a serious condition.
People with untreated ADHD have much lower social and economic success in
later life. They are frequently ostracised and many have few if any
friends. They often end up "self-medicating" with illegal drugs. They
take impulsive risks. ADHD is potentially life-threatening. It is a
diagnosis, not a term to thrown at any kid who is spirited.
Online Resources
From: Trish (June 1999)
www.chadd.org
www.add.org
www.nimh.nih.gov/publicat/adhd.cfm
www.oneaddplace.com
www.addvantages.com
An outstanding site for both consumer and professional information on
Learning Disabilities and ADHD is at www.ldonline.org. Subscribe to their
free monthly newsletter. It is chock full of information and is
non-commercial.
OTHER RESOURCES:
The ADD Warehouse Catalogue (800-233-9273)
CHADD Chapters are available in every county. (415) 441-6329
510 581 9941
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