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I have been diagnosed as having Meniere's Diesease, an inner
ear disfunction that causes vertigo, fullness and ringing in
the ear. I have had this problem on and off for the past 7
years. It has usually been associated with a cold but was once
brought on by flying in a small, unpressurized plane. Attacks
have been mild or a few have been really dibilitating. My ENT
just prescribed prednisone to reduce the inflamation of the ear
cannal and acetazolamide to reduce water retention. However, I
am nursing and cannot nurse while the prednisone is in my
system and am saving the other medication only for an emergency
attack in which case I would have to give my baby formula or
pumped milk. I was wondering if anyone had any experience with
this disease and any natural remedies or alternative treatments
to help ease the symptoms. I have read the posts and nothing
was mentioned specific to my question.
I encourage you to get more information on the use of Prednisone
while breastfeeding. Doctors discourage it, being conservative,
but I believe
Tom Hale's ''Medications and Mother's Milk'' concluded that it is
fine. My local La Leche League leader has a copy; you can find
your local leader's number from the LLL website
I was first diagnosed with Meniere's disease in 1999, when my baby
was a few months old. I saw a number of specialists, including ENTs, a
neurologist, and and an allergist, before turning in desperation to an ad
in the Chronicle by a medical group called Allergy Therapy Solutions. I
am now symptom-free, and I recommend ATS highly for anyone
suffering from Meniere's disease or asthma who has failed other
therapies. The number is 888-738-3200. You'll reach an answering
service who will put you in touch with Dr. Calenoff, the director. He
interviews potential patients personally before they even come in for an
office visit. They also have a website www.to-ats.com.
Acupuncture can be effective
for Meniere's disease. Rest is also often important, which
can be quite challenging when parenting an infant. I would find
some good acupuncture recommendations (start with this list) and
ask about their experience with this condition.
Does anyone know how effective allergy screening and treatment is on Meniere's disease? A company
with offices in SF & Walnut Creek offers allergy testing & shots to help with Meniere's, as well as other
things, but it is kind of pricy. Any other advice would be appreciated!
A friend of mine cut out all dairy which helped, and I was told to avoid salt to help with Meniere's, so it
might make sense to do a more complete allergy screening. In my case, the vertigo turned out to be
related to full-blown mono (Epstein-Barr virus). My doctor finally did a blood test which can culture the
virus up to around 18 months after infection. It's taken me about 2 years to recover. Good luck.
I'd like to get in contact with the person who asked about RAST testing for Meniere's disease through a
company called ATS. I had hoped to see some responses to your post, as I too am considering doing
this testing. If you are interested in comparing notes, sharing stories, etc. please contact me.
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