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Selective Mutism Support Group Northern Calfornia
What is Selective Mutism (SM)? Do you know a child who can talk freely at home but appears frozen in other settings like at school or out in public? Do you know a child who seems so shy that they take a long time to warm up in social situations, if at all? Does it seem out of the normal range of shyness you observe in other children? If so, you may know a child with Selective Mutism. Selective Mutism (SM), is best understood as a childhood anxiety disorder characterized by a child or adolescent's inability to speak in one or more social settings (e.g., at school, in public places, with adults) despite being able to speak comfortably in other settings (e.g., at home with family). In association with http://www.selectivemutism.org , our goal is to provide a local network of families and treating professionals who understand the struggles of SM. We are dedicated to sharing resources and support to those impacted by Selective Mutism (SM). Start seeking information!
I have read some postings here about selective mutism. After reading more and more about it, i am starting to suspect that my 4.5 year old is showing most of the symptoms of selective mutism. Not sure if i am right or wrong, but can really use some help from other parents who have dealt with this situation earlier.
He is a very bright kid with his drawing/learning etc., skills way above his age level. Talks a lot at home, mostly questions abt why/how etc., He has started preschool last September and has not said a single word in his class ever since. Has not made any friends at school. Now, the situation is becoming worse at home where he is taking a lot longer (arnd 1 hr) to talk to our friends visiting us.
I am kind of lost with where to start, what to do etc., We live in Fremont. So, any good therapists in and around Fremont who have experience in treating this kind of situation? What can be done by parents?
Thanks in advance for all your help.. G
But the biggest thing was our therapist, Dr. Joanna Self. She's in Oakland, which is not so close, but not impossible. Her number is 510 847-8139. She REALLY went all out to help our son. She had the whole familiy involved in cognitive exercises for him. I wish I'd known her when he was little. At least call her to see if she knows anyone in your area. It's hard to find a good therapist who really knows how to work with SM...we've been thru a bunch who really didn't know but said they did....I knew more then they did.
The biggest thing is DON''T PRESSURE HIM TO TALK. It makes the anxiety worse. Check out www.selectivemutismcenter.org There is a world of info there.
Often SM goes along with other anxiety issues and also learning disabilities. You have to become your son's advocate so people know how to be with him if he's not speaking. Check out the website, call Dr. Self and definatley call me. I have a lot of info and LOTS of experience. Good luck. June
Our 4 yr old son is no longer speaking or making eye contact with anyone other than my husband, myself and one friend at school. It's been difficult for him at school as he is not socializing and responding to the teachers. In addition, he seems to be on an eating strike and is oly eating a few select foods ( carbs) and sweetened soy milk. We've brought him to our pedie and there are no physical reasons for his lack of eating. Though, he has lost a lot of weight and we can't let this go for too much longer.
Has anyone dealt with Selective Mutism (diagosed by a therapist at his preschool and our research online)? If so, are there any local resources for children and families? Or suggestions of how you helped your child find the tools to be more comfortable? Searching for help! Thank you.
What have you experienced with Prozac and Selective Mutism? I was against any meds with such a young child 4. But, every case study has shown that the earlier the better and the least amount of time on the medication. Prozac has not been studied for long term effects. DN
When my son was 9 I finally agreed to put him on Prozac. We started with small doses and built up slowly. It seemed to help somewhat, with no sideaffects, but bottom line...my son didn't start talking. After 2 years on Prozac and my son (small to begin with ) was not growing, I discovered that Prozac is known to stunt growth in pre-adolescent boys. I was furious at our psychiatrist for not telling me this to begin with. I took my son off of the Prozac over the next month and fortunately he started growing again.
Then I met a highly recommended psychiatrist who after a series of tests, had me put my son on high doses of Omega-3 Fish oil. The change was pretty miraculous. His anxiety level decreased hugely. Couple that with a FABULOUS therapist who worked on behavior modification, my son is now speaking to all new people who don't know that he ''doesn't speak''. He went to sleepaway camp last summer for the first time and talked to everyone. He's a different kid. I also put him on a gluten free diet which made him much calmer and nicer (he was very volatile too).\
I believe that it is not necessary to put SM kids on meds. The medical world and most therapists know so little about nutrition. We are lucky that we found this great psychiatrist. If you e-mail me we can talk further. Been doing this a loooong time. June
Our 3-year old son talks about anything and everything with us, during play dates, with family, etc., but does not talk at school. He's been at the same preschool, which we've been really happy with, for an entire year. I recently volunteered in the classroom , during which time our son talked to me, which really shocked the teachers - they had no idea he could talk as well as he can. Aside from them thinking he can't talk, it's been a problem around the potty, because he won't tell them he has to go and has accidents (at home, he goes all by himself) since the potty is down the hall. I mentioned this to his pediatrician, who said this is called selective mutism and that it's a form of anxiety. I saw some old advice on this in the archives, but am looking for fresh words of wisdom on how to deal. What approach works best from teacher and parent? He seems to have a good time at school - he's excited about going and talks about it afterwards, so why the anxiety while there, manifested in not speaking? His home life is stable, consistent, and happy, and other than a relatively new baby brother (9.5 months), there have been no stresses I can think of. Anyone dealt with this before? anon
Our daughter who just turned four has always been extremely shy about speaking to strangers. In fact, she just won't speak to them at all -- she freezes up and hangs her head. At home and with her friends she speaks and carries on normally. When she started a new preschool last fall, she didn't speak at all to her teachers for almost three months. Now that she's familiar with them, she speaks some of the time, but they are still concerned about her, and they have recently suggested that we get her evaluated for Selective Mutism. But I'm not sure exactly how to do this. Our pediatrician suggested a behavioral pediatrician, Joan Lovett (who is on our insurance), and I am trying to set up an appointment with her. But perhaps we should be trying a child psychologist (for the anxiety angle) or should we be going the speech-language route? Do any of you have advice and/or specific providers to suggest who have experience with Selective Mutism? (I have read the previous postings on Selective Mutism, and know there are some other families out there who are dealing with this issue. I would love to be in touch with you.) Thanks!
However, one day when she was about 4.5 she just started talking at school. She is in a Montessori School so she was with the same teachers and many of the same students that she had been with all along so it wasn't because of some change in her situation. She said she just decided to start talking. Her decision followed a period when I was particularly concerned because it seemed that her selective mutism had become more entrenched. Ultimately, though we had been working on the issue for 1.5 years and had consulted all these professionals, I think it was just her decision. I think all we were able to to do was avoid doing things that would make her anxiety worse. Feel free to contact me with any questions you have. Roxanne
Now that he is 6, he is doing great in Kindergarten. He is still shy but can answer adults briefly; he speaks more casually with his peers. I basically have come to believe that this is more of a personality feature and less of an ''issue'' that needs to be corrected. He likes to observe and take things in before getting fully engaged in something himself. Despite not talking much, his vocabulary is great and he loves words and puns. He answers questions readily in class, though not expansively. I do often try to coach him about what he could say in given situations. ''If Jimmy grabs your toy, you could say, -I'm still playing with that!'' ''If Mrs. T asks you how you liked the book fair, what will you say?''
I'm not advising you to ignore the issue if you and your pediatrician and your daughter's teachers feel that she should be evaluated. But I do think that it's easy to over-react (I did early on). If you feel that she is physically and emotionally healthy, developing well and continuing to improve, maybe you don't need to intervene as much as you might first believe.
Good luck! Anon
My son is turning 8 next week and has selective mutism. He has come a long way in the last year and a half at school, he now participates in school by raising his hand and answering questions, reading aloud, and even taking part in plays. I am struggling with the part that is not changing, that being him talking to absolutely nobody in unstructured times. He plays with the kids at recess, but does not talk. I would love for him just to talk to even one, and I have had his best friend over various times, but still nothing. Anyone have any ideas on what else to try?? Terri
Have you been to www.selectivemutismcenter.org ? This is the website of Dr. Elisea Shipon-Blum, founder of the center, nationally known lecturer of SM. She's an MD, whose daughter had SM and thru her own research, therapies, etc. helped her daughter get over it. I'd love to talk more to you. THere are a handful of kids in this area with Selective Mutism. It's becoming more and more known about.
Above all you cannot expect your son to talk or pressure him to talk. The focus must be aleviating his anxiety and then when he's ready he'll talk. Pressuring or expecting these kids to talk just piles on more anxiety which will get us further from the result we ultimately want...for them to talk. Does your son talk to these same friends in your home? In their homes? In smaller groups? Is your son on medication for SM? Has that been suggested? Would you ever consider that?
We put our son on Prozac last July. I waited that long because I couldn't see putting my child on medication. I have to say the Prozac has helped a lot....he's still not speaking to teachers/adults but he's come a long way in a few months.
Dr. Blum has some very helpful literature on her site. I'm thinking since your son is 8, you probably know way more than someone with a younger child. Please get in touch with me so we can talk further. But meanwhile, if you haven't alredady, check out Dr. Blum's website.
Good luck. This is a tricky one. June
My daughter is going to 7th grade next but I am worry that she will be lost in such a large school. She was diagnosed with Selective Mutism. She has no friends at and does not speak at all school. At home and with certain people (counsins, aunties) she has no trouble speaking. She is determine to start talking in another next school year...start all over again in another environment. She is very smart...excellent writer and loves to read...not so strong in math but did really well with the STAR test. All the teachers she had recommended her to join the GATE (Gitfted And Talented Education? program but she does not want to join.
We live in Richmond and I want to find a school near by. My daughter likes music...more into the rock/punk type. She is learning guitar but likes to start learning the drum. The school she now attending does not reflect her personality and talents. I believe she needs a program where children's individualism is respected. Perhaps, a small school with high academic standard and high emphasis on social skills. If any one know of any schools around the Richmond, El Cerrito to Berkeley area please list names and locations. Thank you for your help! anonymous
I've posted this request here before, but it's been a while.... I'm looking for a therapist or psychiatrist who has successfully treated children with the social anxiety called Selective Mutism. It's a pretty limited pool cause SM is just becoming more widely known of and treated. Any recommendations will be appreciated. Thanks, June
My daughter is extremely shy in school - sometimes termed
selective mutism. We are just re-locating to Berkeley from
overseas and are a bit anxious about how the public schools here
deal with this kind of issue. Does anyone have children with
similar problems and/or do the schools seem able to handle kids
with these kinds of anxiety problems?
parent in Berkeley
You can also go to the class and ask for a few minutes to explain to all the kids.
I find that the kids ''take care'' of my son and are very helpful. Given that SM is not a learning problem, there is really no ''special ed'' available since the child won't speak to people he/she doesn't know. It's a tough situation. I'd be happy to talk to you more about it. If you can't find SMF.com e-mail me and I'll mail you a copy of my info.
I'm wondering how old your child is and how well she (I thnk you said daughter?) warms up to kids. Does she eventually speak to adults? My son doesn't usually....there are a few random ''new'' adults that he occasionally will speak to, Camp counselors,etc. There is a handful of adults in his life that he does speak to other than me and my husband.
Good luck with this situation. Contact me if you want to talk more. June
My 7 1/2 year old son is currently in 2nd grade at our local public school. So far his teachers have been wonderful, however, my son has a social phobia called Selective Mutism. He speaks to some people and not others. In his case, he speaks to most kids, and a handful of adults. Never to adults he doesn't know, even after he knows them. He needs warm up time to new situations. The 3rd grade teachers at our public school will not be good matches for him so we are looking into private schools.
The 2 that I'm interested in hearing about are East Bay Waldorf School and Black Pine Circle. Both were recommended to me as schools that teach in a different way than public schools.My son is not very motivated in school, though he's very bright, loves math, is extremely creative and agile. I think because of his non verbal-ness in school he's slow to learn to read (doesn't seem to have any learning disabilities). I'll be going on school tours in the next few months. I'd like to hear from parents with kids at either of these schools. Good experience? Bad experience? How do they work with children who don't follow ''the norm'' of kids. (My son plays and talks to kids with no problem after the initial ''shyness'' wears off, but has never spoken any words to his teachers, though he gets his messages across nonverbally).
I'm interested to hear your opinions and stories about the two above schools...also any other really great schools....convenience is somewhat of a factor. We live in East Richmond. I'm just not willing to drive to Oakland every morning. Thanks for info. June
Re: Social phobia: selective mutism.
There were a few times when I saw postings from the parents of the children who have Selective mutism, and finally decided to share my experience with this disorder. My daughter was diagnosed with it after she didn't speak in her preschool for 1 1/2 years, and after she stopped speaking even to her grandparents (with whom she spoke before). When she was 4 1/2 she spoke only with her parents, and only if there was nobody around. That is when we realized that she is not just shy and quiet, but there is something else going on. So I called behavioral therapy in Kaiser, got appointment right away, and my daughter got a diagnose Selective Mutism. To tell the truth I was shocked that my little beatifull daughter was diagnosed with a disorder from psychiatric text book. Now I understand that we were very lucky to know it when she was so young and didn't start school yet. Later you start harder it is to help the child.
The reason why I am writing this posting is that we were able successfully treat it. If you meet my daughter now (she is 10 yo) outside school you would never even guess that this child was not talking in public situations for two years. We still have some problems at school though. At school she is much quieter than other kids (and believe it or not but this is a problem for many teachers). If she is asked a question she needs about 30 sec to think before she can answer it (even if she knows the answer) and she uses minimum words to answer it. I talk with her teachers at the beginning of each grade, tell them about Selective Mutism and ask them to make a few adjustments for her, such as giving her more time for oral answers and such. Outside school she is very outgoing, has lots of friends, and not quiet.
What we did. Read all possible information from the internet, joined Selective mutism chat rooms (learned a lot from other parents), ordered a book ''Selective Mutism'' through UC Berkeley interlibrary service and read about possible treatments.
What didn't help at all:
--- Play therapy. Our therapist was very skillfull with play
therapy, and there were some improvements in communication
between her and my daughter but this didn't have ANY effect on
communication between my daughter and outside world, and that is
what really important. To clarify the situation, my daughter
was very good in communicating her thoughts and needs in non
verbal ways, so this skill didn't need any improvements. We
really wanted her to talk.
--- Using bribery, reasonning, punishment didn't help.
--- I read a lot about using antidepressants and there success in treating Selective Mutism in children and adults, but because my daughter was so young, and her history of non-talking was relatively short, we decided to try non-medicated techniques first.
What really helped:
--- Treating Selective Mutism as other types of phobia. The book I mentioned above talked a lot about desensitization technique, so we decided to start with it. The same technique might be used for example for treating spider phobia. It is hard for me to write in a few words specific things we did but we had a tremendous success. We started using it in January-February and when my daughter came to kindergarten in September she could wisper to her teachers and classmates. She could sing in holiday show in December, and was able to talk(the first time in her life after being in prescool for two years) during show and tell in the class.
As you can see I am very passionate about this topic and can write forever. I also realize that this is still a rare disorder and there are not many people on this list who are interested in it. But if somebody is I will be very happy to share details and specifics of the therapy we used with my daughter. I still remember the frustration and the feeling of helplessness of those years. The first time I got a note from the teacher that my daughter talked too much during the lesson I thought to be my happiest day. :)))
I finally decided I need to ask other parents' advice on this one:
My 3-yr-old daughter just would not talk to anyone other than her family. She is otherwise very assertive, opinionated and easy-going. At home, she can have a discussion, make an argument, make up her own song or poetry, but just would not talk at all to anyone outside her immediate family. She has been going to the same preschool 3 days a week for 10 months now. She plays with other children but would not talk to them neither to her teachers. Same happens in the park, at BD parties, at her art & music classes. Recently, she even stated it so: ''I do not talk to anyone but my mommy, daddy, and Anya (her big sister) because I don't need to.''
At this point, it starts being a little odd, especially when people ask me surprised: She cannot talk yet? My husband suggests that we start sending her to her preschool full-time to force her interaction with children and adults outside of home, yet neither he nor myself are quite sure that it will do the trick, since she has a lot of social interaction as it is, and this will deprive her (and her mom) of some quality time together. Besides, if it has to do with her personality (nature as opposed to nurture), then this will not achieve a thing.
Just for the record: Our older daughter is 6.5 and she has always been the most outgoing child I knew in my life, and she never stops talking.
I'm sure someone on the network has been in a similar situation. Could you please tell me how you worked through it? Maria
My daughter is now almost 5, still shy but much happier at school. Things started getting better when she turned 4, as I remember. It was a lot of work but it all paid off when a teacher called one day and told me they, for the first time, had to ask my daughter to be quiet becuase she talked too much.
Please feel free to contact me if you'd like to share more thoughts and ideas. Chris
Children with SM (we discovered our 7 year old had it between 3 and 4) typically speak to their parents and siblings and maybe a few other people. The intensity of the behavior varies. Sometimes kids will not even speak to their parents if someone they don't speak to is in the room. A family I know who's child has SM doesn't speak to any kids either, though he has lots of friends and he communicates non verbally. Our son now speaks quite comfortably with most kids. It used to take him at least 45 minutes to warm up to any situation and speak to any new person, so the fact that now he speaks to kids and doens't need warm up time is a great step. He doesn't speak to any new adult. There are about 10 or so adults in our life that he speaks to.
Usually they grow out of it by 9 or 10, but not always. Some times anti anxiety drugs are used but they have side effects. SM is a social anxiety. People think it's related to autism because of the muteness but it has nothing to do with it. Most SM kids are quite bright and have a great vocabulary when they are speaking.
Typically parents think their toddlers are extremely shy and don't realize there is something else going on untill they go to pre-school or kindergarten and aren't talking to teachers, kids, etc.
Our son used to talk to everyone in his pre-school, but he has not spoken to his K, 1st or 2nd grade teacher. We ask that the teachers give him plenty of opportunity to talk without embarassing him or being unkind. We also ask the teachers not to allow other kids to speak for him. He has to somehow make his needs known. He does.
My son once told me, when I suggested that he could say hello to one of my friends, that he wants to speak but no voice will come. He said he felt like something was in his throat not letting him speak.
We've done play/art therapy with no results and in fact I think that the therapist allowing him not to speak helped cement his non-verbal patterns.
We've tried all kinds of bodywork too, cranio-sacral, particular forms of chiropractic adjustments, osteopathy....all fabulous therapies, but no particular changes.
Behavior modification is said to be the best therapy for SM kids. For example our son used to whisper to us when someone he didn't speak to was in the room. We told him he couldn't do that anymore and that he had to use a regular voice. Eventually he did that and now, though he won't call to me across the room, he will talk to me in his normal voice when others are around. There is a Selective Mutism foundation. If you just key in SelectiveMutism.com or something similar it will take you to 1 or 2 places. You can get some printed info. It's a really interesting behavior.
I suggest that you don't overprotect your daughter. There must be kids that she likes, even if she doesn't speak. Arrange play dates. Explain to the other parents that she ''may not'' speak to them. In some cases you have to let the other kids speak for her.
There are 2 other people in Berkeley and one in Hayward that I know of who's children have Selective Mutism. One child is about 9 or 10, and the others are about 5 or 6 or so. I have a friend in Albany who's daughter seems to mostly have outgrown it, though when out in the world is pretty quiet. We've talked about trying to get together as a support group but it hasn't happened yet.
By the way, my pediatrician and other MD's I had spoken to had never heard of it so I recommend you get the info you need and self diagnose. Don't expect too much help from the MD's. I would be happy to talk to you further about it...I could go on and on. Please feel free to e-mail me. June
Help! My soon-to-be 9 year old daughter is extremly shy. It is very difficult for her to make friends. So far she had only 1 true friend and this school year the friend moved away. I asked her if anyone in her class talk to her. She said yes but the problem is she does not talk back! From what I can get out of her, she is very nervous about what to say and how to say it. It is affecting her classwork becuase now that she is in 4th grade she needs to do partner work. At home she is fine. Any suggestions would be helpful!
Second, some practical advice that might help your daughter. A friend's daughter had a similar problem, though she was a little older (11). She started going to a large school after being home- schooled and leading a pretty isolated life. She simply didn't know the nuts and bolts of how to meet new people, and felt very intimidated by it all, so she didn't have any friends for a while. What helped her was actually learning ''scripts'' for approaching new friends (her college-age cousins helped her with this). They thought of a few good ''openers'' (complimenting someone, asking for advice, etc.), and also a few good ''closers'' to help her back out gracefully if the other person didn't seem very friendly. They told her to pick a few kids who seemed friendly and not too deeply involved in a ''group'', and to try to strike up a conversation with them. They also told her to make a point of speaking up in class at least once every day or two, just to get used to hearing her own voice. This was challenging for her, but it did help. The main point of this that might be useful for your daughter is the insight that social skills are not magic, they can be practised and learned. Maybe you or someone else (closer in age might be easier) could help her with this - actually rehearse small conversations with role plays.
Other things that might help her are finding some other small group situations - some kind of class, maybe, or Scouts - a situation where she can make a fresh start. By now she probably already feels very self-conscious about her shyness and her lack of friends at school. The less other people talk about her being shy, the better! Also, maybe helping her develop her self- esteem - at this age many girls are already worrying about their bodies and their image - by developing some of her skills and interests so that she feels really good about at least some aspects of her life.
Finally, keep supporting her with the message that she is OK and that she will make some friends soon! For some people it just takes a little longer. Remind her it's OK not to be super outgoing, the important thing is to meet a few people she really likes to spend time with.
Best of luck to her!
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